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Hello lin,

Welcome to the home of the monster, I am just sorry that you have to be here. My name is Barbara R and I live in MS. I am 62, married and have 4 children and 6 grandchildren ranging in ages from 2 to 18.

If you have to have IPF I can tell you that this is the place that you want to be. There are some great people on here that have a lot of insight and who care about each other. I don't post often but I did want to let you know that we are out here and that we care. If you have questions post them and if anyone has an answer for you we will sure let you know. We are a praying bunch and always lift each other up in prayer and you will be counted among the ones that will be on my list.

You said that you have been sick for 10 years, but just recently had your OLB. Had they given you a diagnosis of IPF before you had the OLB. I was diagnosed in Jan 2003 and like everyone else I have had a lot of ups and downs but at this time I have stabilized and hopefully I will stay that way through at least June. My youngest daughter is getting married in June and I would like to be able to go to her wedding. She is marring a really great guy that she met on line in the spring of 2000 and she has been living with him in WI since July 2000. She has a 17 year old daughter from her first marriage and her feature husband takes good care of both of them. That is all a mother can hope for isn't it? That her children have happy lives.

Again welcome to this board.

Hugs and Prayers!

Barbara R IPF 1/2003See what's free at AOL.com.

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Hello lin,

Welcome to the home of the monster, I am just sorry that you have to be here. My name is Barbara R and I live in MS. I am 62, married and have 4 children and 6 grandchildren ranging in ages from 2 to 18.

If you have to have IPF I can tell you that this is the place that you want to be. There are some great people on here that have a lot of insight and who care about each other. I don't post often but I did want to let you know that we are out here and that we care. If you have questions post them and if anyone has an answer for you we will sure let you know. We are a praying bunch and always lift each other up in prayer and you will be counted among the ones that will be on my list.

You said that you have been sick for 10 years, but just recently had your OLB. Had they given you a diagnosis of IPF before you had the OLB. I was diagnosed in Jan 2003 and like everyone else I have had a lot of ups and downs but at this time I have stabilized and hopefully I will stay that way through at least June. My youngest daughter is getting married in June and I would like to be able to go to her wedding. She is marring a really great guy that she met on line in the spring of 2000 and she has been living with him in WI since July 2000. She has a 17 year old daughter from her first marriage and her feature husband takes good care of both of them. That is all a mother can hope for isn't it? That her children have happy lives.

Again welcome to this board.

Hugs and Prayers!

Barbara R IPF 1/2003See what's free at AOL.com.

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I'm Marilyn I live in Az. have had IPF for years took Dr. 10 years to

find out what I have open lung biopsey last May told thim now I want to

lern to now all about it I'm 59 marred 4 kids 16 grandkids an 2

greatgrandkids an 1 coming in Oct. I have 2 dogs an 1 fish an love to

read an do crafts

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Hi Marilyn,

Welcome to the group. My fiance commented the other day and said we

were all " super troopers " here at Breathe-Support. And I thought

for a minute and said, " Heck Yeah! What's my Name! " LOL! Sometimes

it takes others to see the strength that we may not see in

ourselves...at least for me, I forget who I really am, my true

essence ;-)

I'm Jo. I'm 33 y.o. with fibrosing NSIP. I was dx in '05, but doc

thinks I've had the disease for a few years prior to dx. I have no

children, just my two chihuahua mix dogs- Laverne and Shirley. I

like to spend time outdoors, reading, crocheting, and acting silly

with friends :-)

I believe we all come here for a reason and that our sharing has

meaningful purpose. Again, welcome.

Jo

Fibrosing NSIP 3/05

CA

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Hi Marilyn,

Welcome to the group. My fiance commented the other day and said we

were all " super troopers " here at Breathe-Support. And I thought

for a minute and said, " Heck Yeah! What's my Name! " LOL! Sometimes

it takes others to see the strength that we may not see in

ourselves...at least for me, I forget who I really am, my true

essence ;-)

I'm Jo. I'm 33 y.o. with fibrosing NSIP. I was dx in '05, but doc

thinks I've had the disease for a few years prior to dx. I have no

children, just my two chihuahua mix dogs- Laverne and Shirley. I

like to spend time outdoors, reading, crocheting, and acting silly

with friends :-)

I believe we all come here for a reason and that our sharing has

meaningful purpose. Again, welcome.

Jo

Fibrosing NSIP 3/05

CA

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Guest guest

Hi Marilyn,

Welcome to the group. My fiance commented the other day and said we

were all " super troopers " here at Breathe-Support. And I thought

for a minute and said, " Heck Yeah! What's my Name! " LOL! Sometimes

it takes others to see the strength that we may not see in

ourselves...at least for me, I forget who I really am, my true

essence ;-)

I'm Jo. I'm 33 y.o. with fibrosing NSIP. I was dx in '05, but doc

thinks I've had the disease for a few years prior to dx. I have no

children, just my two chihuahua mix dogs- Laverne and Shirley. I

like to spend time outdoors, reading, crocheting, and acting silly

with friends :-)

I believe we all come here for a reason and that our sharing has

meaningful purpose. Again, welcome.

Jo

Fibrosing NSIP 3/05

CA

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Guest guest

Hi Marilyn,

Welcome to the group. My fiance commented the other day and said we

were all " super troopers " here at Breathe-Support. And I thought

for a minute and said, " Heck Yeah! What's my Name! " LOL! Sometimes

it takes others to see the strength that we may not see in

ourselves...at least for me, I forget who I really am, my true

essence ;-)

I'm Jo. I'm 33 y.o. with fibrosing NSIP. I was dx in '05, but doc

thinks I've had the disease for a few years prior to dx. I have no

children, just my two chihuahua mix dogs- Laverne and Shirley. I

like to spend time outdoors, reading, crocheting, and acting silly

with friends :-)

I believe we all come here for a reason and that our sharing has

meaningful purpose. Again, welcome.

Jo

Fibrosing NSIP 3/05

CA

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Guest guest

Hi Marilyn,

Welcome to the group. My fiance commented the other day and said we

were all " super troopers " here at Breathe-Support. And I thought

for a minute and said, " Heck Yeah! What's my Name! " LOL! Sometimes

it takes others to see the strength that we may not see in

ourselves...at least for me, I forget who I really am, my true

essence ;-)

I'm Jo. I'm 33 y.o. with fibrosing NSIP. I was dx in '05, but doc

thinks I've had the disease for a few years prior to dx. I have no

children, just my two chihuahua mix dogs- Laverne and Shirley. I

like to spend time outdoors, reading, crocheting, and acting silly

with friends :-)

I believe we all come here for a reason and that our sharing has

meaningful purpose. Again, welcome.

Jo

Fibrosing NSIP 3/05

CA

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Guest guest

Hi Marilyn,

Welcome to the group. My fiance commented the other day and said we

were all " super troopers " here at Breathe-Support. And I thought

for a minute and said, " Heck Yeah! What's my Name! " LOL! Sometimes

it takes others to see the strength that we may not see in

ourselves...at least for me, I forget who I really am, my true

essence ;-)

I'm Jo. I'm 33 y.o. with fibrosing NSIP. I was dx in '05, but doc

thinks I've had the disease for a few years prior to dx. I have no

children, just my two chihuahua mix dogs- Laverne and Shirley. I

like to spend time outdoors, reading, crocheting, and acting silly

with friends :-)

I believe we all come here for a reason and that our sharing has

meaningful purpose. Again, welcome.

Jo

Fibrosing NSIP 3/05

CA

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Guest guest

Hi Marilyn,

Welcome to the group. My fiance commented the other day and said we

were all " super troopers " here at Breathe-Support. And I thought

for a minute and said, " Heck Yeah! What's my Name! " LOL! Sometimes

it takes others to see the strength that we may not see in

ourselves...at least for me, I forget who I really am, my true

essence ;-)

I'm Jo. I'm 33 y.o. with fibrosing NSIP. I was dx in '05, but doc

thinks I've had the disease for a few years prior to dx. I have no

children, just my two chihuahua mix dogs- Laverne and Shirley. I

like to spend time outdoors, reading, crocheting, and acting silly

with friends :-)

I believe we all come here for a reason and that our sharing has

meaningful purpose. Again, welcome.

Jo

Fibrosing NSIP 3/05

CA

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Guest guest

Hi Marilyn,

Welcome to the group. My fiance commented the other day and said we

were all " super troopers " here at Breathe-Support. And I thought

for a minute and said, " Heck Yeah! What's my Name! " LOL! Sometimes

it takes others to see the strength that we may not see in

ourselves...at least for me, I forget who I really am, my true

essence ;-)

I'm Jo. I'm 33 y.o. with fibrosing NSIP. I was dx in '05, but doc

thinks I've had the disease for a few years prior to dx. I have no

children, just my two chihuahua mix dogs- Laverne and Shirley. I

like to spend time outdoors, reading, crocheting, and acting silly

with friends :-)

I believe we all come here for a reason and that our sharing has

meaningful purpose. Again, welcome.

Jo

Fibrosing NSIP 3/05

CA

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Marilyn,

Welcome to our group. There are wonderful people here and we are all fighting the war with our enemy Pulmonary Fibrosis.....

This is a great place to learn. Go back and read some of the older posts. Click on the files, links and database and find more good info. Questions ....? ask and we will try to answer...or help you find answers.

We are all in the same boat here, so we get it! Feel free to laugh, cry and vent.

Hugs, Joyce

PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 1997 INDIANA >> I'm Marilyn I live in Az. have had IPF for years took Dr. 10 years to > find out what I have open lung biopsey last May told thim now I want to > lern to now all about it I'm 59 marred 4 kids 16 grandkids an 2 > greatgrandkids an 1 coming in Oct. I have 2 dogs an 1 fish an love to > read an do crafts>

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Marilyn,

Welcome to our group. There are wonderful people here and we are all fighting the war with our enemy Pulmonary Fibrosis.....

This is a great place to learn. Go back and read some of the older posts. Click on the files, links and database and find more good info. Questions ....? ask and we will try to answer...or help you find answers.

We are all in the same boat here, so we get it! Feel free to laugh, cry and vent.

Hugs, Joyce

PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 1997 INDIANA >> I'm Marilyn I live in Az. have had IPF for years took Dr. 10 years to > find out what I have open lung biopsey last May told thim now I want to > lern to now all about it I'm 59 marred 4 kids 16 grandkids an 2 > greatgrandkids an 1 coming in Oct. I have 2 dogs an 1 fish an love to > read an do crafts>

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Guest guest

Marilyn,

Welcome to our group. There are wonderful people here and we are all fighting the war with our enemy Pulmonary Fibrosis.....

This is a great place to learn. Go back and read some of the older posts. Click on the files, links and database and find more good info. Questions ....? ask and we will try to answer...or help you find answers.

We are all in the same boat here, so we get it! Feel free to laugh, cry and vent.

Hugs, Joyce

PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 1997 INDIANA >> I'm Marilyn I live in Az. have had IPF for years took Dr. 10 years to > find out what I have open lung biopsey last May told thim now I want to > lern to now all about it I'm 59 marred 4 kids 16 grandkids an 2 > greatgrandkids an 1 coming in Oct. I have 2 dogs an 1 fish an love to > read an do crafts>

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Hello Marilyn! Ditto on what everyone else has said to you already. I'm Sher, 68, live in Oregon. Married, grown kids....diagnosed w/ipf March 2006. Staying fairly stable so far. See ya online!

"Don't worry about tomorrow, God is already there".

Sher ipf 3-06, OR.

On Wed Mar 28 19:26 , 'marilyn hill' sent:

I'm Marilyn I live in Az. have had IPF for years took Dr. 10 years to

find out what I have open lung biopsey last May told thim now I want to

lern to now all about it I'm 59 marred 4 kids 16 grandkids an 2

greatgrandkids an 1 coming in Oct. I have 2 dogs an 1 fish an love to

read an do crafts

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