Guest guest Posted November 18, 2002 Report Share Posted November 18, 2002 Dear Ian, I can only imagine how disconcerting it must be to have these tremors. I agree that you should have them checked out by a doctor. Is there a chance you are undernourished? I ask only because I read somewhere (can't remember where) that anorexia is a possible side effect of IgAN or HSP. Sorry I can't remember which of the two it was connected to. I know that I have had trouble forcing myself to eat at times as has, and that might be a contributor. As and other said, we are here to support you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2002 Report Share Posted November 18, 2002 Dear Ian I am so very sorry to hear of your problem at the moment. I think the shaky vibrations are not connected to IGAN. Are you on any medications at the moment Ian that could be giving you side effects? Are you eating well, I ask as having had eating problems myself, I used to shake badly when hungry. I know it is very worrying for you and your girlfriend, but please do get yourself checked out. We are here for support in between time. Best wishes please help me Hi guys, Starting to get concerned with the vibrations in my body, very slight but have started to increase throughout. My girlfriend has felt the vibrations which are not visible. However, I apparently have a shaky head!?! This causing her to panic and think it could be early stages of 'Parkinson's. Am I the only person to be suffering with this? Or is it a 'IgAN' symptom? Any advice would much appreciated. Many thanks Ian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2002 Report Share Posted November 18, 2002 Hi Ian. I've also never heard of this as a symptom of IgAN. I don't recal your kidney function situation, but a tingling-like feeling can happen if you have really advanced kidney failure due to electrolytes imbalances. What you're describing sounds a bit like it might be a tremor. You should have that checked out by a doctor. Pierre RE: please help me > Dear Ian > > > > I am so very sorry to hear of your problem at the moment. I think the > shaky vibrations are not connected to IGAN. Are you on any medications > at the moment Ian that could be giving you side effects? Are you eating > well, I ask as having had eating problems myself, I used to shake badly > when hungry. I know it is very worrying for you and your girlfriend, > but please do get yourself checked out. We are here for support in > between time. > > > > Best wishes > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2002 Report Share Posted November 18, 2002 Hi Ian, If I recall correctly, when I was on predinsone my hands were shaking tremendously... I've always been told I've had minor shake in my hands (nothing that I've noticed personally, but other people have told me of it) and I believe my neph told me predinsone can bring that out even more. please help me Hi guys, Starting to get concerned with the vibrations in my body, very slight but have started to increase throughout. My girlfriend has felt the vibrations which are not visible. However, I apparently have a shaky head!?! This causing her to panic and think it could be early stages of 'Parkinson's. Am I the only person to be suffering with this? Or is it a 'IgAN' symptom? Any advice would much appreciated. Many thanks Ian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2002 Report Share Posted November 18, 2002 No you aren't the only one Ian I had this and extreme shakes and body jerks.......usually came on after something stressful, when my Neph saw me with my head shakes he said that could be stopped and he put me on a small dose of Atenalol which is a beta bloka. It worked and it happens very mildly occassionaly but nothing as embarrassing or distressing as before. I was told it was unlikely that it was Parkinson's but it looks just like it, I know. Best wishes Sally. please help me Hi guys, Starting to get concerned with the vibrations in my body, very slight but have started to increase throughout. My girlfriend has felt the vibrations which are not visible. However, I apparently have a shaky head!?! This causing her to panic and think it could be early stages of 'Parkinson's. Am I the only person to be suffering with this? Or is it a 'IgAN' symptom? Any advice would much appreciated. Many thanks Ian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2002 Report Share Posted November 18, 2002 mentioned Prednisone as a potential for the shakes. I have to agree with him completely. I was only on Prednisone for a couple of months right after diagnosis, and I shook so bad, I had to grab my arms to make them stop sometimes. Just shaking someones hand was enough for me to display Parkinson's -like symptoms. As soon as I stopped taking Prednisone, the shaking stopped, and has never returned. Keep in mind that that I also had severe allergic reactions to Prednisone, which eventually erupted into ulcers -- I would talk to your doctor about this immediately. Walt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2002 Report Share Posted November 18, 2002 Hi Pierre, your response to Ians problem caught my eye. Im currently scheduled for an EMG on my left foot because of tingling and numbness.You mentioned electrolyte imbalance,could that be remedied by a multi -vitamin.The tingling has been going on for a couple months.My doc thinks it's from a pinched nerve.I disagree,I've been on disabilty and CPP for the past 3 years because of IGAN and pulmonaty renal syndrome.I haven't done anything physical enough to pinch a nerve.Gotta go, kitchens a mess and the wife will be home soon from work.Don't want her to think I've been on the computer all day Take care RE: please help me > > > > Dear Ian > > > > > > > > I am so very sorry to hear of your problem at the moment. I think the > > shaky vibrations are not connected to IGAN. Are you on any medications > > at the moment Ian that could be giving you side effects? Are you eating > > well, I ask as having had eating problems myself, I used to shake badly > > when hungry. I know it is very worrying for you and your girlfriend, > > but please do get yourself checked out. We are here for support in > > between time. > > > > > > > > Best wishes > > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > Visit our companion website at www.igan.ca > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2002 Report Share Posted November 18, 2002 Hi . No, a multi-vitamin won't affect an real electrolyte imbalance. I just mentioned that as an example of what can cause tingling. Tingling and numbness among kidney patients can also be caused by malnutrition and vitamin B deficiency, and many kidney patients have what they call peripheral neuropathy (affects mainly diabetics, I think), which also manifests itself as tingling and numbness in the extremities. The first few weeks on dialysis, they mentioned neuropathy a few times when I had tingling after dialyis, until they finally figured out my calcium was too low (that's an electrolyte). I had been just borderline, and when they put me on dialysis, it dipped too low. Kitchen is Ok here, so I'm just going to leave the snow for my wife to shovel when she gets home, so she has something to do : ) Pierre Re: please help me > Hi Pierre, your response to Ians problem caught my eye. Im currently > scheduled for an EMG on my left foot because of tingling and numbness.You > mentioned electrolyte imbalance,could that be remedied by a > multi -vitamin.The tingling has been going on for a couple months.My doc > thinks it's from a pinched nerve.I disagree,I've been on disabilty and CPP > for the past 3 years because of IGAN and pulmonaty renal syndrome.I haven't > done anything physical enough to pinch a nerve.Gotta go, kitchens a mess and > the wife will be home soon from work.Don't want her to think I've been on > the computer all day Take care > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2002 Report Share Posted November 19, 2002 Ian, I don¹t know where you are regarding kidney function, but my son had pronounced tremors in his hands mainly when he tried to do some fine motor task, like tie his shoes, dial the phone, etc. The tremors developed about 6 months before his transplant and he had to have a neurological consult before the transplant to determine the cause. The neurologist decided they were caused by the level of toxicity in his blood due to his low kidney function (15 - 20% at that time), and sure enough they went away after the transplant. However, one of the immunosuppressants he has to take now has caused very mild tremors, but now it¹s only when he is holding his hands still and consequently not nearly as frustrating as the old tremors. And as mentioned in the other message, various meds can cause tremors as well. Good luck - Betsy > Hi guys, > > Starting to get concerned with the vibrations in my body, very slight but have > started to increase throughout. My girlfriend has felt the vibrations which > are not visible. However, I apparently have a shaky head!?! This causing her > to panic and think it could be early stages of 'Parkinson's. > > Am I the only person to be suffering with this? > > Or is it a 'IgAN' symptom? > > Any advice would much appreciated. > > Many thanks > > Ian > > > Quote Link to comment Share on other sites More sharing options...
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