Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 , This doc sounds good--alleluia!!! I hope you get relief and answers soon. Tucking in a special prayer for you.... Love, Ann-Marie ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 .... Boy am I glad to hear you finally have someone who will treat you and listen to you. Your right, the staff of any doctors office says a whole lot. Sounds like this doctor really knows his stuff and is willing to do it step by step in finding the reason why your feeling so bad. I hadn't heard anything about Vioxx. Is there suppose to be a problem with it? Here's a funny for ya... I went to Wal-mart yesterday and I saw a patio swing that I thought I would really like to have. I sat down in it and realized that the bar in the front of the seat was hitting the back of my legs and it was very uncomfortable. I went to get up and couldn't. The harder I tried the worse it became. Finally all I could do was just sit there and laugh. I'm sure people thought I was nuts but I just couldn't help it. I finally had to crawl out and put one knee on the ground and grab a chair near by to pull myself up on. As I'm doing this I'm still laughing so that didn't help me to much. But, when I feel good I forget that I can't do some things... guess that swing is out!! Next I'll try a hammock.... now that should be an experience. Cari, is the new ISP working out better for you? I hope everyone else has a great day and weekend. I'm going outside and do some watering while I still have the energy. Talk to you all later. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 Vicki Let me know when you plan to try the hammock.......this I GOTTA see.....LOL Teddi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 Thanks - He seems good but Ive only seen him twice and the second time he was in a really foul mood. I just hope that that is not common behavior as it really made me apprehensive !!!! Have a great day !!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 Vicki--- Thanks for sharing the Walmart story of the infamous swing! I CRACKED up! (mostly, because I could picture myself in the same situation--LOL!) Have a good week end! Ann-Marie ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 Hey - Yes I am a cat lover and also a member of catsegoups (DOT) I am owned by 7 little furry children and 2 of the two-legged variety as well. They all keep me very busy and now with this lovely diagnosis, must beg for help from them all (yes, even the kitties have a chore chart) !!! I have an appointment to get my stitches out (from my biopsy) tomorrow and it is also my birthday so am going to relax with a few friends for lunch and hopefully take it easy the rest of the day !!! Can't wait !!! Have a great Sunday !!! >^..^< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 It came out black on my monitor (wahhhhhhhhhhhhh) !!!!! Couldn't read it !!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 Hi I am also a " cataholic " being owned by four fabulously finiky felines.........would love to have them on a work chart......how do you do that?????......mine think I live here ONLY to cater to their every wish. Happy Birthday! hope you had a great day in spite of the stitches I have dermatomyositis.....was dx in 1996 but think it was coming on for years.....am supposedly in remission now but with DM you can't tell the difference! Most everything else that is wrong with me is from the predisone. Talk about a no win situation, right? Teddi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 Hi Catz... OMG... I didn't look to see which ISP you have and now I see you have AOL.... I've left my html code on because it doesn't seem to bother the other service providers. AOL is the only one who can't read html codes in the email. I'm so sorry for this. I'll make sure to remove it when I send from now on. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 Oh Vicki Thank you !!! But if it is a bother then dont. AOL can be sort of a pain in the patootie sometimes !!!! Meow, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 Ok, I think I've missed an email. I didn't get the question to the email below... LOL Thanks - He seems good but Ive only seen him twice and the second time he was in a really foul mood. I just hope that that is not common behavior as it really made me apprehensive !!!! Have a great day !!!! ------------------------------------------------------------------------ Get your money connected @ OnMoney.com - the first Web site that lets you see and manage all of your finances all in one place. http://click./1/3012/8/_/561170/_/957713774/ ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 AMEN !!! I hate this prednisone !!! I am dizzy all the time and just feel plain yuck !!! Doctor decreased me from 40mg to 30 mg to try and relieve it but to no avail !!! And he doesnt want me to exercise which puts me in a no win situation too !!! I was finally able to get back down to my desired weight of 115 pounds last summer and now have wrecked it all and am right back at 140 again !!! Talk about a clothing investment !!! I think my husband is going to take away my checkbook and my credit cards soon !!!!! Another thing is my inability to get a decent nights sleep !!! He prescribed a med to help me sleep but the side effects are dizziness and nausea, which the prednisone already does so I didnt fill that one !!! Will try Tylenol PM first !!!! Thanks for the birthday wishes !!! I am going to lunch with some friends and then will come home and RELAX with the kitties !!!!! Have a meowvalous week, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 Polymyositis was my diagnosis. Did a muscle biopsy last week and it came back good (checking for whole body inclusion). Nice, big incision on my thigh but I did get a wheelchair ride through Sea World out of the deal from my family !!!! The prices we have to pay, huh !!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 Thanx for the info !!! I will keep that in mind as I dont wish to feel any dizzier than I already feel from the prednisone !!! I swear sometimes the doctors are prescription hungry !!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 ... not a bother at all. I just click on a button and bingo the html coding is gone....I'm just so use to having it on that I sometimes forget to remove it. AOL is a bugger...lol I must have missed the email as to what your being checked for. Have they diagnosed you already? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 Tylonol PM helped me......dr also rx the antidepressant Trazocine (sp) neither helps me get to sleep but sleep better once there. Teddi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 ... now I'm very jealous... when I first entered the hospital I weighed over 200 lbs and I had been on a diet which seemed like forever. I couldn't figure out why I was gaining so much weight. While in the hospital for 11 days I lost 51 lbs... wow.. I was a new person when I got out. But they put me on high dosage of the prednisone and up went my weight again. I had so many problems that they lowered it way down and I started dropping weight again. Got down to 185 and I had a major flare up so I had to go back to the 60 mg. Back up went my weight...now I'm down to 2.5 mg a day and I'm just now starting to see my weight going down. Lost 7 lbs last month and want to try for 40 lbs this month. The doctor said no more than 5 lbs a month, yea right.... I have clothes in all sizes...from tiny (size 6) to OMAR THE TENT MAKER size..... I just went and bought a shirt... when I got home I decided that if I didn't like it I can turn it into a table cloth. I have a friend who has been fighting her weight all her life and she looks really good... she seems to put it on all over... I don't.. I still have the prednisone stomach but at least I now have my neck back. Still sporting half of a water tower on my backside... I found that Prednisone can cause a myositis in itself. Thats what was happening to me. I'm doing fine with the prednisone down this low. I won't go back on it again. That is my choice.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 Thats what I have, the PM. What state are you in? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 ... If those don't work ask your doctor for Effexor XR 75 mg... I have taken some of the others and they make me a sombie.... sleeping up to 20 hrs a day and feeling dizzy all day long, while I'm awake. This drug doesn't do that at all. I take it and it generally takes up to two hours for it to make me want to sleep. Then I'm still able to wake up if I hear a noise but while I'm asleep it sure gives me a good nights sleep. Sleep lasts about 7 to 8 hrs. Unlike the others. Just something else to throw at you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2000 Report Share Posted May 8, 2000 I am in Orlando, Florida. Where are you ??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2000 Report Share Posted May 8, 2000 Believe me OMAR the Tent Maker and I are becoming fast friends. But he can forget the bathing suits this year !!!! Afraid that Sea World may get word and send the rescue team to get me !!! I seem to carry it all in my stomach too as my arms and legs are still like sticks. I feel like one of those Cambodian refugees you see in National Geo !!! Have a great week !!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2000 Report Share Posted May 8, 2000 Thank you soooo much !!! Will write that down and ask him. I go back on the 18th and will be curious to see what he says. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2000 Report Share Posted May 8, 2000 And hello to you toooooooo !!! No, I am in Orlando (home of every theme park known to man)!!!!! Our Sea World finally woke up and offered " locals " the chance to pay for a single admission and have it converted to an annual membership at no additional cost. (wonder what braintrust finally conjured up that wonderful idea) !!! We took advantage of it and it was really a nice thing. Im sure you can relate living in CA. - only the tourists get the deals usually and the local people are forgotten about. Anyway, my birthday has been very relaxing so far. In fact, I think I hear my bed calling my name which can only mean one thing - NAPTIME !!!!!!!! " We Don't Own The Earth... We Borrow It From Our Children " >^..^< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2000 Report Share Posted May 8, 2000 Hi .... Happy Birthday to you!!! I live in So. Calif. just outside of San Diego.... I just wondered because you mentioned going to Sea World... Hope your having a good Birthday. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2000 Report Share Posted May 8, 2000 , Happy Birthday--39 is REALLY young in case nobody mentioned it (I'll be 37 next month!) I know what you mean about the Prednisone. My ideal weight was 120 and I've been on Prednisone since 1994 when I was diagnosed and have gotten as high as 155. Now I am at 145. I now buy loose fitting clothes like jumpers quite a bit--anything that has some " give " that I could wear with 10 pounds more or 10 pounds less. It's so consoling to hear someone(s) else moan about the weight gain. My firend has lupus and her doctor told her " Fat or dead. " It kind of gets you between the eyes, but then, he's male, so what do you expect!?!? Take care of yourself. Ann-Marie ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
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