Guest guest Posted December 29, 2002 Report Share Posted December 29, 2002 , THank you so much for responding so quickly. He has no colombomas but I do need to get him into a neurologist. I will make the appt on monday. I will go to one at U of M as his specialists are there. (u of Mich) Does anyone know the name of the ped neuro at u of m? If not, Iwill ask his pulmonologist He is g-tube fed and we donot give wheat or milk to him. He is on antibiotic prophalactically so there is the yeast deal. We are giving him acidopholus, is that enough? My husband has those nutrients and essential fatty acids in pill form. so I will start with that. If anyone has any more info, let me know. ck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2002 Report Share Posted December 29, 2002 Dear , I am not an expert but a CHARGEr parent and special education teacher. Has anyone mentioned sensory defensiveness. It is one of many many things that can cause self abuse. Children and adults can be " made crazy " by smells, sounds, certain touchings, etc. Myself, I have extremly good hearing and sometimes certain sounds " make me crazy " . As an adult I have learned to " tune them out " but children aren't so lucky. In the past I have had students that would be " hyper " or " crazy " abusive etc. The technique the psychologist gave them was " brushing " . I would use a soft brush and brush over there clothes. I also compressed their joints in a certain way. Usually twice during the school day. It realeased endorphins from the brain to calm them. I often wish someone would do that to me. I had special training to do this. There is a method to be use. Sp.Ed people, psychs, and other professionals should be able to help. Check with OT people too. An OT trained me. The OT also had a written check list to help identify sensory defensive children. Just and idea. When our was little she picked at her fingers because of nervousness and stress, eventually making them bleed. Luckly at 18 she has out growen it for the most part. Understanding and prayes sent your way. Lynn Ohio Mom to Tom 23, 18CHARGEr, wife to Doug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2002 Report Share Posted December 29, 2002 Terri, I find it interesting that your docs say clonodine is okay with heart problems. We were looking at clonodine for my daughter, and it was decided by Dr. Blake that she not be put on it because of her heart. It never ceases to amaze me how many different opinions you can get from different doctors (sometimes even in the same hospital!!!) ~ Weir Mom to Kennedy, 4yr old CHARGEr, 13, 11, and wife to Graeme New Brunswick, Canada Visit the Weir Website: http://personal.nbnet.nb.ca/gweir ICQ# 1426476 Now he has been put on trazadone along with clonodine and he seems a lot easier to handle although he still has his moments. I would have your doctor try these meds on your child. These are safe drugs for children with heart problems as Adam does have a heart condition. I hope you can find a solution for your charger. Good Luck and keep us informed. Happy Holidays & Happy New Year!!!!! Terri Mom to Adam 12 Charger 14 14 6 Quote Link to comment Share on other sites More sharing options...
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