PART 3 OF PARENTS' TESTIMONIES.

[Guest guest]

Fwd: PART 3 OF PARENTS' TESTIMONIES.

Some parents choose to do the dairy free version of SCD,thus remaining

GFCF.Other parents give their children yogurt and certain cheeses to

promote the healthy gut microorganisms.I have included reports from

both groups.

I am reporting on all the cases that I know about.Those that showed

improvements and those that need more work to show improvements.

The other reports will come in the next 10 days.

[from private email with permission]

Hi Mimi Yes we did, but after many weeks of terrible diarrhea, crying,

tantrums and irritable behaviour. I posted on this a while back and I am

sure that our problems were because our little boy is sensitive to some

of the foods normally included in the diet (for example eggs). Once we

sorted that aspect out by eliminating the " problem foods " he settled down

and is now doing well. Also when we started the diet we had a candida

albicans problem in his gut rated at a 3+ on a scale on 1-4. So in other

words a fairly bad candida problem. Within a couple of months of starting

the diet, the candida was down to 1, which is rated as normal.

I should qualify this by saying we also used olive leaf extract and

probiotics at the same time so I can't say 100% that the diet was

entirely responsible for our success. Although I am sure it was a big

part of the equation.

I am not sure how you are rating success in your survey, but I would say

yes in the longer term the diet was successful and I do believe it is the

best approach to diet for ASD children. We have only been following the

diet for a few months so it is too early to tell what other improvements

we might see.

Best Wishes

Alison on

*********************************************************************-

Hi,

My son, , is 5 and a half, and autistic. Various dietary measures

helped, but it is only since going SCD since last October, that his

stools were finally the right colour, and usually pretty firm and

predictable. We believe his autism was caused by the combo of antibiotics

before and post MMR.

I read a post on recoveredkids about the scd and joined their list to

learn more. Although it was helpful, as was the BTVC book, I had to leave

that list due to volume of mail. I am also on enzymesandautism, and that

is where I read about this new list. The question of probiotics and the

yogurt has remained an issue, as seems better kept dairy free at

present, and also still has candida, according to a recent test. I keep

wondering if any goat's milk product would be okay, and would like to

hear from other parents regarding this. When began this diet, he

had been on candida specific transfer factor for a couple of weeks, but

it was within a day or two of removing the last potato that he finally

produced a firm brown stool. Also within two weeks he correctly used the

toilet for this, and also began to understand counting. Also, when

starting the diet, his longest utterances would typically be 3-6 words.

This, 10 months later, has increased to around 12-13 words, in little

sentences. We did change to a more VB approach in our home program last

September, but even his pronunciation is clearing, and I credit bio-med /

diet for this. is still low salycilate, virtually no sugar, and low

phenol, so although the SCD has helped, his food list is still very

restricted. We know he has high lead levels, and the candida at present,

but we hope to address both with the help of a DAN doc we are seeing next

month in the USA. We have not found a UK doc who can sufficiently address

his needs yet. We have tried! My little boy is an absolute star, and

works harder than any other 5 year old I know, just to keep up and make

sense of the world, and to communicate the simplest

things....................I would love to help him get to the stage where

he could also enjoy a few edible 'treats', instead of always just

sticking to meat, veg and water! It would also be easier if his 3 older

sisters did not always have to hide any treats they are enjoying! Enzymes

help, but not with sugar, and the houston enzymes are out for present due

to the rice bran base.............so no-fenol is out, and we have to

still restrict further to avoid phenols. I hope to learn more from this

list about how to help my son.

Ross, Scotland.

[unfortunately suffered a setback after an illness. cannot

make goat yogurt because she cannot find a goat yogurt starter in the

UK.We are all hoping that will get better and continue to progress]

**********************************************************************

Just wanted to let everyone know that Hunter seems to be finally

overcoming his regression. For those of you who don't know Hunter(almost

5), when we began chelation with DMSA only he had some dramatic

improvements. When we eventually added ALA and TouefF, he had a huge

regression that has lasted close to a year. I've had reports from

school for the last 3 weeks that he's improving again and seems to be

getting back to pre-regression. He's excelling again in his ABA

programs and appears to be able to read since he does amazingly well

with matching words to objects. Although we haven't been strictly SCD,

we have done extremely low carb with him with only the occasional

piece of rice bread or a few french fries. We have started Brainchild

vitamins/minerals and they seem to be really helping although he's a

bit hyperactive. I'm going to go buy some Kefir which was suggested by

. I still feel that the homemade yogurt is very important

although I've been chicken to try it. He's started pointing also which

we've been working on for 2 years now. Let's pray that the

improvements continue.

Jo

Representative for Unlocking Autism in South Carolina

www.unlockingautism.org

******************************************************************

This was posted in the phoenixkids yahoogroup(reposted with permission)

Hi to all,

This is my first post. I have read your messages and learned so much from

all of you. Thank you. I will make this brief.... My son is (9,not

sure where he falls on ASD, Crohn's, Profoundly Mentally Retarded) These

are some of the official diagnoses.I have learned not to let the title

dictate his ability. I just call him our wonderboy.

We moved to Oregon(for my husband's new job) from Chicago last June. In

Chicago we saw 2 different GI's MULTIPLE TIMES for his chronic diarrhea

for 4 years.(15-20 Diapers a day) We had every test in the book.

Including a celiac panel where 2/3 tests came back positive. (I was never

informed about these results. I was told that " everything looks fine and

they just couldn't figure out why my little guy stooled so much " I found

out about these test results when I requested my medical records and I

made a " Life Line " for Doc Green. At the age of 8 Drewie weighed 34lbs. I

never knew or heard anything about Gluten. We had tried high fiber diets

and low fiber diets. After our move, we met Keli and another mom and they

hooked us up with Doc Green. They educated us about the diet and the

supplements. I went to FEAT in Sacramento and DAN! in San Diego. Drewie

has been GFCF since Aug 10th. We had GREAT results. After the diet he

only had 8-10 Diapers a day and not so runny. Drewie started to look AT

us instead of at our hair. He slowly started to interact more with us. He

actually turned a radio on! We tried antifungals(for his yeast

problem)but he couldn't tolerate them. He ended up with a " crohn's

flare-up " and was hospitalized. Doc Green mailed the book Breaking the

Vicious cycle to me. On Oct 10th we started Diet #2. We followed the

book/diet 100%. 2 weeks ago we saw our new GI for an upper and lower

scope(he has developed some fissures and fistulas) He did some biopsies

and found NO YEAST. The other great news was that his ulcers in his

digestive tract are gone. There is only a small area of inflammation. We

are so thankful for Doc Green's advice and the book. Drewie now weighs 40

lbs. He looks so much healthier.His hair is shiny and not brittle. He

plays with toys. He seeks our attention. He gives hugs. He poops 3-6

times a day. We are still working on the poop thing but we are thrilled

with where we are right now. My husband and I agree that would not

be alive today if we had not started the diets. SO a BIG Thank you to

Keli and Doc Green and all of you who have helped us so much.

Beth Hauser

p.s. Doc Green, we'll be back this summer!

********************************************************************

From this website:

http://www.scdiet.org/6research/autism.htm

The following highlights some dialog between Elaine Gottschall and Dawn's

regarding Dawn's success with the SCD and the success of her autistic

daughter, Allie.

Dear Elaine,

Oh and I ate a ton of delicious food last night! We started with dry

white wine, then Butternut Squash Soup w/ Pears, followed by a spinach

salad (spinach, tomato, cheddar cheese, mushrooms, oil & lemon dressing),

free range Cornish game hens stuffed with celery, raisins, apples, &

carrots, and glazed with an apple sauce, then finally the peanut butter

cake. Yum! Am I really the same person who was whining about missing my

favorite foods 7 months ago? *grin*

[responding to Elaine's question about how Allie came to feel so

much better]

I had written in about this before. She has been on SCD for 4 months now

and has been declassified from her autism diagnosis. She is still a very

spirited little girl, but all her autistic behaviors have disappeared. I

am using the yogurt and cheeses with her. Her favorite treat is the

orange juice/yogurt creamscicles! She has a couple of those a day. She

alo loves the half & half yogurt mixed with apple butter.

Dawn UC 11 yrs, SCD 7 months - no meds

Allie cured autistic, SCD 4 months

*****************************************************************

I recently found another message from ,the founder of the list

RecoveredKids. was mentioned in part 1 of the parents report.Here

she mentions another boy who did SCD.

Message 5451 of the yahoogroup RecoveredKids

From: MMous12905@a... Date: Wed Oct 3, 2001 1:40 pm

Subject:SCD - Colleen

Colleen,

I don't know if you will hear of many more success stories with this diet

because hardly anyone is doing it. I only know of one other Mom, besides

myself, and her son is recovered. Between the two of us, we've told

hundreds of parents about this diet. It took a giant leap of faith to do

this. I doubted myself big time.

********************************************************************

Part 4 will continue next week.It will be about the most recent

parents doing SCD.

--

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[Guest guest]

Hi all, I am new, just started reading your posts. I know

netiquette rules say i must read the posts but I'll never get there

in time. I am mum to griff, 7, adhd/asd ?? very slight, candida

overgrowth. Mum herself has heavy metal issues. If my boy has

peptides in his urine for caseine, I presume that means he is not a

candidate for yogurt???!!! Please excuse my cheek, asking without

having read all. Ruth

> Fwd: PART 3 OF PARENTS' TESTIMONIES.

>

>

>

[Guest guest]

Ruth,

Most of the ASD kids start SCD without yogurt....... then some families

introduce it a few months later, but using GOAT milk to make the yogurt, not

cow. Goat casein is different than cow. If you think goat would bother him as

well, you can do the diet dairy free, using probiotic supplements. Have you read

the website? www.pecanbread.com

Patti

Re: PART 3 OF PARENTS' TESTIMONIES.

Hi all, I am new, just started reading your posts. I know

netiquette rules say i must read the posts but I'll never get there

in time. I am mum to griff, 7, adhd/asd ?? very slight, candida

overgrowth. Mum herself has heavy metal issues. If my boy has

peptides in his urine for caseine, I presume that means he is not a

candidate for yogurt???!!! Please excuse my cheek, asking without

having read all. Ruth

[Guest guest]

Ruth,

My son's allergy tests showed high sensitivity to cow milk but when we

went off casein he didn't improve. I started one half teaspoon goat

yogurt the other day and nothing bad has happened. It is different

for everyone though.

Hope

mother of Gibson, SCD 6 weeks

> > Fwd: PART 3 OF PARENTS' TESTIMONIES.

> >

> >

> >

[Guest guest]

Yes Patti, I have seen the site, many times. My head is spinning

with so much info from so many groups. In any case, my son has made

great progress this year since we started GFCF BUT we've got candida

so I figure the scd might be the dot on the i for us..... griff is

very HF. Ruth

The wonderful thing is that in S Italy I can get goat yogurt when we

decide to include it.

> Ruth,

> Most of the ASD kids start SCD without yogurt....... then some

families introduce it a few months later, but using GOAT milk to

make the yogurt, not cow. Goat casein is different than cow. If you

think goat would bother him as well, you can do the diet dairy free,

using probiotic supplements. Have you read the website?

www.pecanbread.com

>

> Patti

> Re: PART 3 OF PARENTS' TESTIMONIES.

>

>

> Hi all, I am new, just started reading your posts. I know

> netiquette rules say i must read the posts but I'll never get

there

> in time. I am mum to griff, 7, adhd/asd ?? very slight, candida

> overgrowth. Mum herself has heavy metal issues. If my boy has

> peptides in his urine for caseine, I presume that means he is

not a

> candidate for yogurt???!!! Please excuse my cheek, asking

without

> having read all. Ruth

>

>

>

>

[Guest guest]

I would say that I would not use cow milk to make the yogurt.

If you are interested in trying yogurt, I would use CP starter and use

goat's milk to make it.

The protein in goat's milk is different and more easily broken down

than cow's milk.

My son could not tolerate any form of cow's milk products, but is

doing just fine on the goat and sheep cheese.

Jody

mom to -5.0 and -7.4

[Guest guest]

Ruth.......

You'd have to make your own goat yogurt, according to the SCD recipe.......

fermenting for a full 24 hrs. But, I imagine goat's MILK is easy for you to get,

too.

Patti

----- Original Message -----

Yes Patti, I have seen the site, many times. My head is spinning

with so much info from so many groups. In any case, my son has made

great progress this year since we started GFCF BUT we've got candida

so I figure the scd might be the dot on the i for us..... griff is

very HF. Ruth

The wonderful thing is that in S Italy I can get goat yogurt when we

decide to include it.