Re: Re: Sunshine Cottage, Oops!, & Gut Feelings

[Guest guest]

Kay,

I caught it but was planning to post later. Phonic Ear is notorious for

chronically down systems. Been there, done that for years. Phonak, hopefully,

from what I've

heard is not. just got his Phonak w/ Microlink. He just had his aid (he

can only wear one due to no hearing in other ear) adjusted and is constantly

walking

around asking, " What's that noise? " He heard the dishwasher drain for the first

time, the fan whirling, crickets, etc. It's the first time he's ever heard high

frequency sounds. He's a bit distractable now due to the new noises, but he's

soooo happy and responds so appropriately to sound now relative to before. I

want to pump

as much info into him as I can while he's got this hearing aided like it is.

She's limited the maximum gain to a very small boost so that he won't be

overamplified like

before. He also has super compression on and no longer holds his ears and

winces from loud noises. The aud said that his settings that he preferred defy

the rules of

how auds would normally set the aids, but that he hears so much better with his

preferences than with the standard setting that she lets his opinion rule. She's

an

incredible audiologist tho a rather unique individual to deal with. Her way

rules and parents should butt out. She deals directly with the child... is

her client.

She works with him and not me. Kind of hard to be excluded (she does provide

information as needed) but he's been much more vocal about his likes and

dislikes and has

taken total responsibility for his equipment. She is enabling him instead of

disabling him. Such a difference for him. She actually showed him how to

program the aids

and he kept reading all of the computer prompts to her as she was doing it to

make sure she wasn't doing it wrong. She worked an hour, tickled to have him so

involved.

Anyway....wish I were moving to San ! Congratulations to you guys!

Busy trying to undo the chaos around here for 's 9th bday party tomorrow!

AARRGGHH. Spent two days trying to bake a cake and icing he's not allergic to

that's

edible. Got the cake...still working on the icing.

Dave & Kay wrote:

>

>

> > Dear Kay,

> > Would it be possible to put me in touch with the person who started

> the

> > school that your son goes to. There are a few parents in MD that are

> > interested in starting a HOH school. There are no options for us here.

>

> Sheri, the lady who started the school has since retired from working at the

> school but is still on the Board of Directors. This is from their web site:

> *************************

> Sunshine Cottage has been preparing students for life in the hearing world

> since 1947 when Dela White started the school for her 18-month-old daughter

> who is profoundly deaf. Mrs. White believed that if given the opportunity,

> her daughter could learn to speak and live a rich, self-reliant life.

> (Indeed, today she is a successful horse breeder and champion rider.) New to

> the world of running a school, Mrs. White nonetheless opened Sunshine

> Cottage in a bright yellow caretaker's cottage near her home--yellow inside

> and out because the paint was donated. Initially students were small, but

> now range in age from one month through 19 years.

> *************************

> I don't have the contact info for Mrs. White to share with you, but if you

> called the school, perhaps the director can give it to you, or at least

> maybe she can give you more info about the schools start.

>

> Sunshine Cottage School for Deaf Children

> 103 Tuleta Drive

> San , Texas

> 78212-3196

> Voice

> TTY

> Fax

> info@...

> Carolyn Walthall, Executive Director

>

> And this is an excellent time to mention something I've been going to write

> to you folks about. Sunshine Cottage has just started their annual sale of

> Chrismas Cards. Proceeds from the card sales go to fund things that directly

> beneift the kids (loaner hearing aids, field trips, stuff like that).

> Sunshine Cottage is also gearing up to be a follow-up center for those who

> fail newborn screening. When an infant in our region fails the newborn

> screening, they will be sent to Sunshine Cottage for further evaluation and

> information (and I can promise you information about ALL communication

> options will be presented to the parents.) One thing I love about this is

> that counselors will be on-hand for the parents as well as people who have

> information and answers for the parents.

>

> If you're interested in the Christmas Cards, the order form can be found

> here:

> http://www.sunshinecottage.org/christmascards.html

> If you do order, please put a #81 in the bottom right hand corner of the

> order form so my son gets credit.

>

> I'm going to set up a page on my web site for opportunities such as this so

> if any other schools are having fund raising projects on a national level,

> please let me know, send me a brochure or the website, and I'll include this

> info on the web page also.

>

> A few days ago while responding to anothers post I made an error and am a

> bit surprised no one caught it (or at least mentioned it). I mentioned

> Phonak sent a rep to help troubleshoot a problem Sunshine was having with

> the Solaris FM system. I should have said Phonic Ear. I think my brain was

> in " Park " last week, but today it's in first gear. ;-)

>

> Sheri said:

> > But something inside

> > of me is telling me that something is not right. Any Suggestions?

>

> One of the lessons I learned long ago is to trust that " Gut Feeling " that

> something's not right. Perhaps your daughter is starting with an ear

> infection, the aids aren't working right, she's outgrown her earmolds (JD

> always had a reduction in sound received before he started getting feedback

> when he outgrew his earmolds), or.....and I really hesitate to have to

> mention this......a reduction is hearing. Perhaps a visit with your

> audiologist is in order.

>

> Hugs,

> Kay

>

> > All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

[Guest guest]

,

You should send a copy of your post to Steffi. Or if you want to, I will.

Sheri

PS-Happy Birthday

[Guest guest]

preferences than with the standard setting that she lets his opinion rule.

She's an

>incredible audiologist tho a rather unique individual to deal with. Her

way rules and parents should butt out. She deals directly with the

child... is her client.

,

Who is 's audie? You may have said before but I don't remember. I am

just thrilled for you and .

>Anyway....wish I were moving to San ! Congratulations to you guys!

And I second 's comment. How wonderful it will be to have someone so

close for support!

Barb