A Bad Day

[Guest guest]

Just wanted to apologize to everyone for being so grumpy. Ask Lori and

, I am really nice. Anyway, The school system is a struggle but both

and Jan seemed to feel that we need to push forward. I feel as if we

are doing a square dance but I can't hear the caller. I have a lot to learn.

I did not understand that you need to emphasize the disability and delay to

get services. I only know how to be honest. I can be manipulative but

honest. I guess what I need to realize is that the school system is a

business of checks and balances. The less they give you the more money they

keep in the system for who knows what. I don't know how in good conscience

they can deny services to a child that needs it or have unqualified " experts "

making decisions. But you know what, that's the way it is and I am picking

myself up, and moving forward. I am beginning to understand, the system does

not support HOH children. The children suffer, and there are no winners.

But let me tell you, I am going to be one hell of a thorn in there side. As

soon as I get my energy back I am getting to work on getting the media

involved. My husband is ripe for a fight as well. Basically, all of the

parents of HOH children are going to get together and demand educational

options for our children. Even if we put in a private placement, I'm

still going to fight for the cause. I really feel strongly that things have

got to change. Wow, I " m feeling better already.

Now for a more important question, refuses to wear her aids, the last

few days. I put them in she takes them out, over and over again. She was

doing so well with them I don't understand if I should push them on her or

not. Part of me thinks she is doing it for attention. She knows that I will

stay closer to her to try to get her to wear them. And lately we haven't

spent as much quality time together as we usually do. But something inside

of me is telling me that something is not right. Any Suggestions?

Sheri