pauldiamond

[Guest guest]

I'm sorry, I can't find your post to respond to it so I am starting a

new one.

I read your post and am glad you joined the board--it is a supportive

place for us KO's.

I also wanted to ask if you saw the article in the Washington Post on

January 6th. A friend sent it to me, I can't figure out how to link

it. Very disturbing article but it starts to put the pieces together

for some of us living with CFIDS. The article was how Childhood trauma

(abuse) was tied to CFIDS. They just came out with this study. If I

remember correctly, it states that 60% of people who have CFIDS/ME have

veen badly abused as children. We also have a very diminished salivary

cortisol response to stress. Very disturbing. I've been sick with

CFIDS/ME (and lupus) for 2.5 years and this article really hit home.

All of the pieces of my life are finally fitting together,

unfortunately.

Try to google the article and I hope you can find it.

[Guest guest]

>

> I'm sorry, I can't find your post to respond to it so I am starting

a

> new one.

>

> I read your post and am glad you joined the board--it is a

supportive

> place for us KO's.

>

> I also wanted to ask if you saw the article in the Washington Post

on

> January 6th. A friend sent it to me, I can't figure out how to

link

> it. Very disturbing article but it starts to put the pieces

together

> for some of us living with CFIDS. The article was how Childhood

trauma

> (abuse) was tied to CFIDS. They just came out with this study. If

I

> remember correctly, it states that 60% of people who have CFIDS/ME

have

> veen badly abused as children. We also have a very diminished

salivary

> cortisol response to stress. Very disturbing. I've been sick with

> CFIDS/ME (and lupus) for 2.5 years and this article really hit

home.

> All of the pieces of my life are finally fitting together,

> unfortunately.

>

> Try to google the article and I hope you can find it.

>

Thank you, I am not so certain how to navigate around re;

sendind/replying, but I will try to search this article. Though, I

am not surprized, for in the early years of my abrupt sink into

CFIDS/Fybro, there was alot of contoversy of CFIDS being AIYH (All in

your head), which infuriated the patients and few specialists that

represented them, that was say nearly 20yrs ago. To my delight and

surprize returning stateside was this commercial re; Fybromyalgia,

and in all these auto immune diseases there seems to be an emotional

set off/with or without a corresponding physical trauma.

I realize my writing is spacey and I credit and thank you for daring

to read through. I guess I tried to cram a lifetime, to pointedly get

to IF it were OK to " DAnce " (get on with ones life), as I no longer

have the physical energy to deal with Nada. After reading all these

peoples stories recently when I got the rare tel. over the holidays,

I could just catorgorize each fragment of her conversation, seeing

through her like I never did before. Its been ten years I just

realized, that I haven't seen her. To me that reads as How badly I

was stung by her BETRAYEL, then abandonment, like to toss me under a

rug, than realize how she had destroyed my life, .Only later did I

realize how my spirit has been so damaged as well. Betrayal gnaws at

the very core, for myself, perhaps where hope once lay.

Then, I am wondering, is it , not really having closure that has

truly crippled me and physically dragged my health down. I am doing

so poorly, I feel like I am trying so hard to abort breaking

completely.

Living around the few hours energy in a day, surviving everyone

haunts me 24/7. And for a first in my life, I have noone in any

country, and so alien here.

Too, what you said about us not making the hormones for stress, it

seems to go directly to our physical bodies.

I am parralized in my freedom, its absurd.

Somehow I feel, I must have retreated from the world, living in the

Big picture of seeing the world, perhaps than my own mortal

boundaries because I no longer have the strenghth to deal. To " COPE " .

I'd make a better King of the World, than I could function within the

framework of family, that now I am understanding are the fleas in my

own life.

Maybe more like, The King of Hearts, an aesthetic association to

the film with Alan Bates, A must see!

Well Thank you, and as well, might I ask if you found any CFIDS

groups for more long term patients. My good friend, same diagnoss now

with 16 brain lesions, she became ill twelve yrs prior to me. I must

be so antiquated,among all you people, young and full of promise.