Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 Good luck and best wishes for the implant, the house sale and the improved school services. We also moved for school services and it was one of the best things we have ever done. We send prayers your way. Mom to Kendra, and Camille 2nd cochlear implant I just wanted you all to know that we head to the hospital tomorrow for our second cochlear implant. The first one has never been successful for Bryce (we've had it three years) so we are going to try and implant the other side. We have a great team of specialists but they have no idea whether this one will work any better for him. It seems that his nerves are dead on the implanted side. They just don't know what the other side will be like until we try. It's tough to go through the surgery with such unknown outcomes but we felt like the potential payoff was worth the try. We;d appreciate yours prayers! We are also in the midst of moving to get better services for Bryce next year in kindegarden. We started our own private (we raise all the money) preschool for hearing impaired kids and it has been great but he's aging out now. We got an offer on our house yesterday so we are on our way! The services in the next county over are quite good so that's where we are headed. Deedee, Mom to 6 year old Bryce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 best of luck and in our prayers--good luck on the move. the halloran's 2nd cochlear implant > I just wanted you all to know that we head to the hospital tomorrow for our > second cochlear implant. The first one has never been successful for Bryce > (we've had it three years) so we are going to try and implant the other side. > We have a great team of specialists but they have no idea whether this one > will work any better for him. It seems that his nerves are dead on the > implanted side. They just don't know what the other side will be like until > we try. It's tough to go through the surgery with such unknown outcomes but > we felt like the potential payoff was worth the try. We;d appreciate yours > prayers! > > We are also in the midst of moving to get better services for Bryce next year > in kindegarden. We started our own private (we raise all the money) preschool > for hearing impaired kids and it has been great but he's aging out now. We > got an offer on our house yesterday so we are on our way! The services in the > next county over are quite good so that's where we are headed. > > Deedee, Mom to 6 year old Bryce > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 I certainly hope this inplant works. Kay Kay She who laughs.... LASTS 2nd cochlear implant I just wanted you all to know that we head to the hospital tomorrow for our second cochlear implant. The first one has never been successful for Bryce (we've had it three years) so we are going to try and implant the other side. We have a great team of specialists but they have no idea whether this one will work any better for him. It seems that his nerves are dead on the implanted side. They just don't know what the other side will be like until we try. It's tough to go through the surgery with such unknown outcomes but we felt like the potential payoff was worth the try. We;d appreciate yours prayers! We are also in the midst of moving to get better services for Bryce next year in kindegarden. We started our own private (we raise all the money) preschool for hearing impaired kids and it has been great but he's aging out now. We got an offer on our house yesterday so we are on our way! The services in the next county over are quite good so that's where we are headed. Deedee, Mom to 6 year old Bryce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 our prayers are with you, i know its not a somple srugery. erika is starting with a BAHA implant on Jun 3rd, which will proabably end up being a Cochlear implant with in 6mos., they felt it was worth trying a BAHA first as it is much less invasive. cant imagine going through that 2x. our prayers are with you cathie, mom to erika Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 Good luck Deedee, We will keep Bryce in our prayers and hope for a good outcome for this implant. Our daughter Susie has done a fantastic job at learning to hear and speak with her implant, it has been one of the best things that ever happened to our family. Good Luck Debbie Cachia, Mom to 9, 7, Susie 5 (charge) and baby Evan, and wife to . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 DeeDee, hope all went well, post when you can and let us know how he is doing... ~ Weir Mom to Kennedy, 5yr old CHARGEr, 13, 11, and wife to Graeme Saint , New Brunswick, Canada Visit the Weir Family Website - http://personal.nbnet.nb.ca/gweir CHARGE Syndrome Canada - http://www.chargesyndrome.ca 2nd cochlear implant I just wanted you all to know that we head to the hospital tomorrow for our second cochlear implant. The first one has never been successful for Bryce (we've had it three years) so we are going to try and implant the other side. We have a great team of specialists but they have no idea whether this one will work any better for him. It seems that his nerves are dead on the implanted side. They just don't know what the other side will be like until we try. It's tough to go through the surgery with such unknown outcomes but we felt like the potential payoff was worth the try. We;d appreciate yours prayers! We are also in the midst of moving to get better services for Bryce next year in kindegarden. We started our own private (we raise all the money) preschool for hearing impaired kids and it has been great but he's aging out now. We got an offer on our house yesterday so we are on our way! The services in the next county over are quite good so that's where we are headed. Deedee, Mom to 6 year old Bryce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 Deedee, I wish you guys the best of luck with the second implant. Haing the cochlear implant has been one of the most powerful changes for and I just hope he gets good benefit from this. Hoping for a speedy recovery. Barbara, mom to (2 1/2 years and implanted with N24 11/01) > I just wanted you all to know that we head to the hospital tomorrow for our > second cochlear implant. The first one has never been successful for Bryce > (we've had it three years) so we are going to try and implant the other side. > We have a great team of specialists but they have no idea whether this one > will work any better for him. It seems that his nerves are dead on the > implanted side. They just don't know what the other side will be like until > we try. It's tough to go through the surgery with such unknown outcomes but > we felt like the potential payoff was worth the try. We;d appreciate yours > prayers! > > We are also in the midst of moving to get better services for Bryce next year > in kindegarden. We started our own private (we raise all the money) preschool > for hearing impaired kids and it has been great but he's aging out now. We > got an offer on our house yesterday so we are on our way! The services in the > next county over are quite good so that's where we are headed. > > Deedee, Mom to 6 year old Bryce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2003 Report Share Posted April 9, 2003 I'm assuming from your experience that the first implant actualy doesn't work at all? The talk of Cochlea Implants has led me to wonder whether any of you with implanted chargers have considered a bilateral implant? Jodie's implant is 'technically' suposedly a sucess however the 'use' Jodie gets from her implant is limited. In her own words she says the sounds are not good and the implant gives her sound but she can not discriminate speech. The only answer they can come up with is that it must be because she has CHARGE and probable processing problems - though no tests have been done to prove this. She herself sees many of her deaf friends using their cochlear implants well - able to get useful sound, listen to conversations, watch T.V. etc - and all of this frustrates her. Having seen a few children over here being triald with bilateral implants, and seen the improvements with the 24 BTE (Jodie has a 22 - implanted 8 years ago) I keep asking myself whether I should push for Jodie to have a 2nd? There are two views - 1) if the first doesn't 'work' then a second will make no difference and 2) If her difficulties are due to processing then surely having the latest processor with all the improved clarity and settings will help. Does anyone have experience or views they can share? Thanks Vicky (mum to Jodie,11, England) 2nd cochlear implant I just wanted you all to know that we head to the hospital tomorrow for our second cochlear implant. The first one has never been successful for Bryce (we've had it three years) so we are going to try and implant the other side. We have a great team of specialists but they have no idea whether this one will work any better for him. It seems that his nerves are dead on the implanted side. They just don't know what the other side will be like until we try. It's tough to go through the surgery with such unknown outcomes but we felt like the potential payoff was worth the try. We;d appreciate yours prayers! We are also in the midst of moving to get better services for Bryce next year in kindegarden. We started our own private (we raise all the money) preschool for hearing impaired kids and it has been great but he's aging out now. We got an offer on our house yesterday so we are on our way! The services in the next county over are quite good so that's where we are headed. Deedee, Mom to 6 year old Bryce Quote Link to comment Share on other sites More sharing options...
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