Reply to : new PLS patient

[Guest guest]

,

Welcome to the group. There has been much debate on the relationship between

PLS and ALS. The answer is not very clear. There are some excellent

articles on the PLS website that you might want to read, then make up your

own mind about it. I was diagnosed in April, 99, after 9 months of my doctors

being 99% sure I had ALS. Currently, I take Baclofen 10 mgs. 3Xday. It

makes you sleepy and lightheaded at first, but I was able to adjust in about

5 days. I also take Vitamin E, C, Melatonin, and Beta Carotene. I am about

to restart Creatine, and am considering Lecithin. I started PT, but quit

going when my doctor suggested it might be a waste of time. Now, I take

water aerobics at the Y two days a week, and am trying to motivate myself to

ride the stationary bike at the gym. I used to walk on the treadmill, but

became frightened that I would trip and fall, so for now I'm sticking to the

water, where my balance is much improved. Sadly, I have gained about 10 lb.

over the last several months due to inactivity. My goal is to exercise as

much and as safely as I can. Fatigue is a huge issue, and we should all try

not to become overtired doing any activity (even shopping)! Hopefully, this

group can provide you with enough information to clear up some of your

confusion......it has helped me tremendously. We have all been right where

you are at, so feel free to ask or comment on anything.

Jo Ann