Guest guest Posted November 25, 2001 Report Share Posted November 25, 2001 Hi all, I wanted to take a moment to welcome both Lana and Pam to our group. I will write more when I can, but wanted to thank you for letting us know about yourselves. Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2001 Report Share Posted November 25, 2001 Hi Pam, I'm hoping you find out you DON'T have RSD. I'll be praying for you. Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2001 Report Share Posted November 25, 2001 Thanks for the welcome Jo, I do hope to get good news tomorrow. I will let you know what I find out. Pam >From: jomal1@... >Reply-To: RSD-CRPS >To: RSD-CRPS >Subject: Re: new to the group >Date: Sun, 25 Nov 2001 20:00:20 EST > >Hi all, >I wanted to take a moment to welcome both Lana and Pam to our group. >I will write more when I can, but wanted to thank you for letting us know >about yourselves. >Hugs, >Jo _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2001 Report Share Posted November 25, 2001 thanks jo, the other possibility may be compartment syndrome. Have you heard of this? Pam >From: jomal1@... >Reply-To: RSD-CRPS >To: RSD-CRPS >Subject: Re: new to the group >Date: Sun, 25 Nov 2001 20:21:45 EST > >Hi Pam, >I'm hoping you find out you DON'T have RSD. I'll be praying for you. >Hugs, >Jo _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2001 Report Share Posted November 25, 2001 Hi Pam, another TMJ'r here. as much as I didn't want the diagnosis of RSD (once I found out what it was!) it was sure nice to be able to connect my various health problems. Looking at all of them separately, all the docs had the same answer - " there's nothing wrong, I'm sure it will go away! " By the way, what surgeries have you had for TMJ? I just had bi-lateral disk removal with fat grafts and previously have had everything from simple joint lavage to osteotomy (breaking the bones and resetting) and did all the " non-invasive " therapies. Good luck at the doc! Lana p.s. I love your e-mail address!!!! > thanks jo, the other possibility may be compartment syndrome. Have you heard > of this? Pam > > > >From: jomal1@a... > >Reply-To: RSD-CRPS@y... > >To: RSD-CRPS@y... > >Subject: Re: new to the group > >Date: Sun, 25 Nov 2001 20:21:45 EST > > > >Hi Pam, > >I'm hoping you find out you DON'T have RSD. I'll be praying for you. > >Hugs, > >Jo > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2001 Report Share Posted November 25, 2001 Hi Lana, glad to meet you. My email name came from my 13 yr old son. Kids ya gotta love them. LOL. I hope to get good news tomorrow or at least some kinda of news. I am going crazy trying to fit this all together. It just makes no sense. Anyway to answer your question. I had my discs removed in 85. I had silastic implants put in. I had grafts from cartlidge taken from behind my ear. I wore them out in a year. The doc said I heal like sandpaper. They just went in to try and clean me out and get my bite opening bigger. I am at 11mm and dropping. They tried to do it arthroscopicaly and it failed. I thought it would. I told this doc that every other time they tried it that way they had to open me up all the way to finish the surgery. I want to have them test for silastic and silicone when they do the pathology this next time. I should be going in a Jan or Feb some time. The dr. said he wouldn't wait much longer than that. I actually found this group from Kathy and the email she sent to the tmjd group. I hope to see ya posting there soon. You will find alot of information and support just like you do in this group. I hope all goes well for you with your trying to get back to your studies. I will let you know what the drs. come up with if anything. The other thing they are looking into is compartment syndrome. Ever heard of it? I am learning all kinds of new things these past 2 weeks. It has been a real eye opener. Take care of yourself. Hope to hear from you soon. Pam >From: lanalane@... >Reply-To: RSD-CRPS >To: RSD-CRPS >Subject: Re: new to the group >Date: Mon, 26 Nov 2001 04:24:42 -0000 > >Hi Pam, >another TMJ'r here. as much as I didn't want the diagnosis of RSD >(once I found out what it was!) it was sure nice to be able to connect >my various health problems. Looking at all of them separately, all >the docs had the same answer - " there's nothing wrong, I'm sure it >will go away! " >By the way, what surgeries have you had for TMJ? I just had >bi-lateral disk removal with fat grafts and previously have had >everything from simple joint lavage to osteotomy (breaking the bones >and resetting) and did all the " non-invasive " therapies. > >Good luck at the doc! > >Lana > >p.s. I love your e-mail address!!!! > > > > > > thanks jo, the other possibility may be compartment syndrome. Have >you heard > > of this? Pam > > > > > > >From: jomal1@a... > > >Reply-To: RSD-CRPS@y... > > >To: RSD-CRPS@y... > > >Subject: Re: new to the group > > >Date: Sun, 25 Nov 2001 20:21:45 EST > > > > > >Hi Pam, > > >I'm hoping you find out you DON'T have RSD. I'll be praying for >you. > > >Hugs, > > >Jo > > > > > > _________________________________________________________________ > > Get your FREE download of MSN Explorer at >http://explorer.msn.com/intl.asp > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 Hi Pam, No, I've never heard of compartment syndrome... I'll have to look it up and see what it is. Good luck with the Drs. I hope you find some answers. Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 Yes Pam, it is possible for the swelling to go down and the prednisone was probably helpful. What is not helpful is protecting your leg to he point of no use. You have got to keep your leg moving some of the time if you do have RSD. I hope it goes well today at the doc. For any who want to read about comparment syndrome, here is an address: http://www.nlm.nih.gov/medlineplus/ency/article/001224.htm Kathy Goldenkranz Aptos, CA 95003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 Thanks Jo, I called my pcp this morning. Most of the swelling has gone down in my leg. I still feel weak and have pain in the calf area. I hope we get good news. I have been on the prednisone for 3 or 4 days now. I forget how long. Is it possible with rsd-crps for the swelling to come and go like this in the early stages. I have been off my feet pretty much for 3 days. It has gone down before and then returned with a vengence. Is this normal for this disease? I have so many questions. Any help with this would be appreciated. Thanks, Pam >From: jomal1@... >Reply-To: RSD-CRPS >To: RSD-CRPS >Subject: Re: new to the group >Date: Mon, 26 Nov 2001 09:06:07 EST > >Hi Pam, >No, I've never heard of compartment syndrome... I'll have to look it up and >see what it is. >Good luck with the Drs. I hope you find some answers. > >Jo _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2003 Report Share Posted July 7, 2003 Welcome to the group! I fortunately haven't had to go through breast cancer but I did have a scare last year at only 19 and thankfully it was benign. I'm what everyone else here calls me their cheerleader! I recently did a marathon walk for breast cancer in May in Cincinnati called the Avon Walk for Breast Cancer & I also recently did the Detroit Race for the Cure and hopefully going to do the Grand Rapids Race for the Cure in September & God willing the Chicago Race for the Cure and then the Detroit Making Strides Against Breast Cancer walk the weekend after the Chicago Komen Race for the Cure! I keep all of you in my prayers. God Bless in what ever treatment that you have to go through. Kerri Saikin # 1116 ksaikin@... 2003 Cincinnati Avon Walk For Breast Cancer Personal Avon Walk Site: http://avon.convio.net/site/TR?pg=personal & fr_id=1023 & px=1001656\ May 17 - 18, 2003, I traveled to Cincinnati & I walked 26.2 miles for BREAST CANCER. new to the group Hi all - This is my first time to ever post a message on a web site. I received the results of a needle loc biopsy last week and I am told that I have LCIS - my understanding so far is that this is the earliest stage of BC, almost pre-cancerous, but I am still very worried and scared. I don't want to interfere at all with those who have more serious situations - I am praying for all of you. I wonder if there is anyone with LCIS and what kind of treatment/surgery you experienced. Right now, my first opinion is for no surgery and five years of tamoxifen with close followup. I am 53 years old, no family history - stopped smoking one year ago after thirty years of 2-3 pack a week habit. Thanks for any help at all - hang in, everyone Quote Link to comment Share on other sites More sharing options...
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