Guest guest Posted February 16, 2000 Report Share Posted February 16, 2000 Rita,you are right where is the documentation! . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2000 Report Share Posted February 16, 2000 You are all still defending this doctor, where are the answer's to my questions? I am not trying to burst anybody's bubble, nor am I trying to make a fool out of anybody. I just feel that false hope, is a terrible thing to give anybody. If some good give me proof (rather than hearsay), I would be the first one to jump on the bandwagon for the good doctor. But so far, not one of my questions have been answered. I am not a college graduate, so if people find my choice of words offensive, that is certainly no intentional. All I have is 20 years with this disease, and that is all I have. You notice when you people disagree with me, I don't jump all over you. If people have faith in this man, and believe in what he is doing, go for it, but I don't feel that what he is doing is right, unless my questions are answered. I have talked extensively with my doctor about the good doctor, and have read him just about everything I have, that pertains to him, and his formula, or what ever it is, and he told me that if this was indeed something that would benefit people with PLS, after 32 years, the medical profession would have heard something of him by now. Rita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2000 Report Share Posted February 16, 2000 Don: My question is, if Dr. Phral has had such great success with what ever, why is it not known in the medical field. How come there is if he has been expermenting for all these years, the medical profession does not know about it. It is such a mystery to me. Why can't I go to my doctor or any doctor, and tell them or him, about Dr. Phral. They should know about whatever he is doing, why not? These are the things I wonder about. You would think my doctor would jump at the chance to contact Dr. Phral, but he never heard of him, and insist there is nothing to it. Like I said, I am not a college person, just a Grandma, who is skeptical about things I don't understand. And that is why I go to my doctor whenever, I hear of something new, or I don't understand. I can't take the word of a lay person. I am not trying to start any trouble, I just don't understand. And if I offended anybody, I am truly sorry, that was not my intention. What does your wife's doctor say regarding Dr. Phral? Is there anybody else taking this stuff, who's doctor has endorsed this stuff. If so, I would like to know, so I can present it to my doctor. Rita ' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2000 Report Share Posted February 17, 2000 rita, i agree that there is a lot of quackery out there but i only wish i had at least tried prahl's drug when first dx'ed in '93. [symptoms began in '88] maybe i wud not be in such a dependent and deteriorated state now. i called him in florida in '93 but opted not to try his 3036 remedy due to his arrogant demeanor 'n method of payment. i advise everyone to go for it! i want to try it at this late date but need his fl tel. no. i emailed frank levy for it at 73112611@... but the postmaster returned it. don burge Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2000 Report Share Posted February 17, 2000 ramble on rita. i dig your philosophy on living! don Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2000 Report Share Posted February 17, 2000 Don: That is exactly what I am talking about, something smells about the whole thing. There is so little know about PLS, and I can't understand why he singled out PLS, something is just not kosher. This disease, like any other unknown disease, is going to effect us in one way or another. Some worse than others, some slower and some faster than other's. but it is going to happen, and we can only adjust our lifestyle accordingly. This is what I have done, every day since id was diagnosed. This is what I am trying to tell people, after having this disease for so long. Believe me, if I thought for one minute that Dr. Phral's formula would have helped me, I would have tried it years ago. But my gut instinct told me " NO! " This why I say listen to your body: I tried swimming-my body said " no " I tried exercise-pain. When I get over tired, my speech slurs. If I sit around to long,my legs get stiff If I get stressed out for one reason or another, my whole system reacts. So I have learned the do's and the don'ts over the last 14 years, and I have seen a vast improvement in the way I feel. When I am tired, I do nothing. I don't have to see my doctor till 2001, and thats OK by me. We just keep plugging along, and do the best we can. Like I say there are a lot od things I can't do any more, but by God I keep doing the things I can do. And I am always discovering new ways to do old things. I don't have time to sit around and worry what tomorrow will bring, I am enjoying life the best I can. I am going to be dead a long time. I am sorry to be going on so, but once I get going, I sometimes start to ramble, forgive me. Rita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2000 Report Share Posted February 17, 2000 Thanks Don, I am glad I am finally saying something, that doesn't get me in trouble. Don, I have been thru all the frustration your going thru, and it ain't easy. I am not overly religious, but I do go to church, and do believe in a higher power, and believe that " He doesn't close one door without opening another " . So hang in there, and take it one step at a time. Let me share something with you. Before I had PLS I was a worry wart, I smoked 2 packs of cigarettes a day. I bit my nails, I literally was a basket case. When this disease kicked in and I had to change my way of life, I am happier now than I ever was when I was " normal " . I do so much more with my idle time. I learned how to do counted cross stitch, 10 years ago. Never did anything with my hands before, but spank my kids. After my first year I won two blue ribbons and best of show in the biggest state fair here in New Hampshire. Last summer I exhibited 30 of my pieces at our Old Homes Day Celebration. It was one of the most wonderful experience of my life. I felt like a celebrity, and now I am. People see me, and say you are the lady who does the beautiful needlework. I have displayed my work at the local high and junior high schools. And have been asked by our local grade school to teach 4th grader's how to do it. I have worked with mentally hill people, visiting people who have with drawn from society, and have 3 success stories. The one I am most proud of is a gal named Cheri, who was molested by her father, and her mother would not believe her. Cheri became a manic depressant, had a nervous breakdown, and was in complete isolation. We became friends right away. She has forgiven her father, and is back with her family, and now goes to auctions buys and sells antiques. I go with her, and I am learning things about antiques that I never dreamed of. I am now Vice president of our local Senior group here in town. and I could just go on and on (there I go rambling again), but I had to turn my life around, I could not go leading the life I was leading siting in a chair, smoking, eating and feeling sorry for myself. I was not a nice person to be around. I hope you get where I am coming from. You can have a disease like PLS and have a full active life (of course I don't move like I use to, but so what I can still move, and thats whats important. That is the support I offer to this PLS line, not how many pills I take, it how to live your life. I am sorry, I do get carried away. But, if I can help one person, to carry on the best they can, than having this PLS is worth it to me. I feel like a messager!! Best Regards! Rita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2000 Report Share Posted February 18, 2000 U GO GIRL!! Quote Link to comment Share on other sites More sharing options...
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