Guest guest Posted July 29, 1999 Report Share Posted July 29, 1999 Hi Kate, Welcome to the list. I have a 11 month old son who was dx at birth with a hearingloss, he is showing a moderate to severe loss, and yes he can hear alot without his aids on! It really is amazing how loud things in the world really are, until you get familiar with the terms frequency and decibels, you will realise what your daughter can and cannot hear. When was first dx, I told the drs. over and over, you are wrong, he can hear me, I would call his name, or one of his brothers would yell and he would respond, I thought the drs. where nuts, and I am sure it was denial as well. But being able to hear something , and being able to hear something well enough to understand and learn speech are two different things. I am sure ocne your daughter gets her aids, you are going to see such a difference, as if it is a whole new world to her. And do not worry too much about keeping the aids in, it takes time for a child to adjust to them, and then they realize WOW if I keep these in I can HEAR!!! Good luck, you are in the best place for support and information. Debbie 's mom (11 mths HOH) > >Reply-To: Listen-Uponelist >To: Listen-Uponelist >Subject: New also >Date: Thu, 29 Jul 1999 09:33:59 -0700 (PDT) > > > >Hi, > >My name is Kate, and my 18 month old daughter, Kyra, was just diagnosed >with a moderate hearing loss. Kyra is not speaking yet, and the >audiologist was a little unclear about exactly how much she is hearing. > We have an appointment with the ENT next week, and I wanted to find >out what questions I need to be asking. > >I am confused because, maybe we are just in denial, but Kyra responds >to my voice and seems to hear music if it is loud enough. How is it >determined when a child needs a hearing aid? Also, how can we help her >develop her vocabulary? > >Thanks, I am really looking forward to learning from you. >Kate >_____________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 1999 Report Share Posted July 29, 1999 Kate, Our son Adam has a severe to profound hearing loss, but he has wonderful speech. If you putt your finger on the side of your nose you can feel letters like m, and n. You can also feel the sound by placing her hand on your throat. Then we taught him to push out the air by placing his hand in front of our mouths for some of it as well also the k can be felt with a hand in front of the mouth. There are many ways to help her develop her speech. Adam uses both speech and signs to communicate. One helps the other. He has also learned to read lips but that is not reliable. One of the hardest things we had to teach if was to blow out his birthday candles. That was a hard one. Many matches and many hot fingers. LOL All the test in the beginning are very confusing and overwhelming. <A HREF= " http://www.audiology.org/consumer/understandaudio/uya.htm " >Understanding Your Audiogram</A> Try this. Doris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 1999 Report Share Posted July 29, 1999 > I am confused because, maybe we are just in denial, but Kyra responds > to my voice and seems to hear music if it is loud enough. Sound comes in a wide variety of frequencies. Think of it as keys on a piano. When you are listening to speach, music (obviously) or any other sound, a number of those " keys " are being played. Hearing loss seldom affects all " keys " the same. Typically, some keys will play louder, and some softer, some not at all. Kyra may actually be hearing all the keys, but more than likely she's only hearing some of the keys. Translated back into the world of hearing loss, voiced words are made up of a number of frequencies. Being able to adequately hear all the frequencies is essential to being able to distinguish one word from another. A problem in even one frequency (depending on which one) can make it difficult to be able to discriminate between the different vowel sounds, or make consonants sound similar. > How is it > determined when a child needs a hearing aid? Opinions on whether to amplify a mild hearing loss vary. Here is a page on my private site that has excepts from one prominent audiologist and what she thinks about the issue: http://lonestar.texas.net/~listenup/peptic/flexer.htm > Also, how can we help her > develop her vocabulary? Work (play) with her, talk to her, read to her, making sure you're close to her " best " ear. Target words you would specifically like her to learn. You can find lots of articles, and ideas here: http://members.tripod.com/listenup/language.htm Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 1999 Report Share Posted July 29, 1999 > All the test in the beginning are very confusing and overwhelming. > Understanding Your Audiogram > http://www.audiology.org/consumer/understandaudio/uya.htm I wanted to send her to this site, but unfortunately, AAA is restructuring their web site so the pictures on this page are not available. This one is pretty good though: How to Read Your Hearing Test http://www.earinfo.com/howread1.html Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 1999 Report Share Posted July 30, 1999 At 09:33 7/29/99 -0700, you wrote: >I am confused because, maybe we are just in denial, but Kyra responds >to my voice and seems to hear music if it is loud enough. My daughter has a moderate hearing loss (55 db in the main speech frequencies). She can hear quite a lot without her aids. However, hearing aids have been a tremendous help to her. For one thing, we didn't realize that we were all talking louder. Although she *can* understand speech without aids, she also misses a lot, esp. if the speaker isn't looking at her or is speaking rapidly. I don't think that you are in denial. Just keep in mind that just because she can hear *some* things, it doesn't mean that she can hear *everything*. I initiated my daughter's hearing evaluation because I was sure that she had some hearing loss. Our pediatrician told me that she was sure Miranda had normal hearing---that she just wasn't co-operating with the test, but she gave me a referral to the audi " just to be sure " . After our first two visits to the audi she told me that she didn't think Miranda had any hearing loss, but that she couldn't rule it out based on the tests done at that point. We wound up doing 5 audiograms, 2 typanograms, an OAE and an ABR to identify her loss. She was nearly five before we started this process. Barbara Handley A community is a place in which people face each other over time in all their human variety, good parts, bad parts, and all the rest. Such places promote the highest quality of life possible, lives of engagement and participation.---- Gatto Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 1999 Report Share Posted July 30, 1999 Kate, Welcome to the list. It's a great place to learn. It's not unusual at all to have a child with a moderate, or even a severe loss, to respond to your voice unaided. You will learn these things over time. Right now I would encourage you to see a pediatric audiologist as soon as you can, and discuss your options. Hearing aids and an oral approach are one option, there are many others. I know that hearing aids can be intimidating at first, when it's your child, and they are so young, but realize that if you take that route, that it is what they need. Vocabulary? Treat Kyla like any other child. Talk to her, face to face. Read to her. Have silly conversations with her. You may want to get in touch with the Clinic http://www.johntracyclinic.org and sign up for their correspondence course. I am a father of two profoundly deaf children, , 8, and , 3. By all rights, with their hearing loss, they should be signing, or have a cochlear implant. They wear hearing aids, and listen and speak. Don't let anyone's philosophy or beliefs unduly influence you. Go with what your gut tells you. Good luck, and welcome. Chris At 09:33 AM 7/29/1999 -0700, you wrote: > > >Hi, > >My name is Kate, and my 18 month old daughter, Kyra, was just diagnosed >with a moderate hearing loss. Kyra is not speaking yet, and the >audiologist was a little unclear about exactly how much she is hearing. > We have an appointment with the ENT next week, and I wanted to find >out what questions I need to be asking. > >I am confused because, maybe we are just in denial, but Kyra responds >to my voice and seems to hear music if it is loud enough. How is it >determined when a child needs a hearing aid? Also, how can we help her >develop her vocabulary? > >Thanks, I am really looking forward to learning from you. >Kate >_____________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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