self abuse

[Guest guest]

My name is Fox. My son Garin is 7 years old and has CHARGE

syndrome. We have been in and out of the hospital with the usual

CHARGE problems, but for the past 3 years he has a fixation on his

hands and fingers. He is mutalating his fingers by biting and

picking his hands. We have taped socks on his hands and put splints

on his arms but nothing has worked. His neorologist has had him on

Luvox and Choloralhydrate because he does not hardly sleep. He has

an adverse reaction to most meds, so the Luvox made him crazy. They

have also put him on Busbar and he had the same reaction. His doctor

finally sent us to a behavior doctor, which was a waste of time. They

put him on Seroquel which almost drove him insane. He gained 3

pounds in a month so the heart doctor said to take him off of that.

We are at our wits end. We have tried everything. We live in a

small town and no one really wants to mess with him. The doctors

have seen his infected hands and all they give us is some Bactroban

oint. The drugs they have had him on alter the mind. There is

nothing wrong with his mind. He acts like he is coming out of his

skin. He crys out often, bites, scratches intensely and seems to be

in pain. If anyone has any suggestions or comments please Email me.

Thank you,

Fox

Big Spring, Texas