Re: just diagnosed with pls

[Guest guest]

my name is kathleen hillary. i have had pls for 33 years although i was

not diagnosed until 1997. i use baclafen and zanaflex. i also use

effexor as an anti-depressant. i'm sure you will hear a slightly

different 'story' from others but i feel that you have to go with what

works for you. if you try something and it doesn't work then try

something else. i broke my leg is 1989 and had to begin to use a

wheelchair as the leg never strengthened enough for me to use it again.

in 1994 i began using a scooter also and i love it because i can go a

greater distance than i can with a wheelchair. i especially like to ride

it in the summer. i have very little feeling left in my legs and it has

started to affect my arms a little. in october i was diagnosed with

rheumatoid arthritis and that certainly didn't help my arms or hands.

but we'll see what tomorrow brings tomorrow.

i can no longer work and really miss it but am trying to find other

things to do like reading - reading all the books i always wanted to and

never had the time for. i also began taking more college classes,

classes i always wanted to take but didn't fit into my other major and

have discovered all sorts of great things plus i found out that i can

still compete academically with the younger students. that really built

up my self-esteem. i'm not taking classes right now, no money, but still

find lots of things to read. i have discovered that my favorite

historical period is the middle ages although i wouldn't want to have

lived at that time. right now i reading a series (there are 20 books) of

midieval whodunits by ellis peters called brother cadfael. a friend gave

me The Encyclopedia of the Middle Ages for christmas and i just love it.

as i'm sure others will say, i will too, you just have to go day by day.

i, like everyone else i know, have good days and bad days. i will keep

you in my prayers. take care, kathleen

anne arsenault wrote:

>

>

>

> my name is wynn jones. i am a 69 year old male with symptoms for the past 4

> years mostly in my legs,weakening and balance problems. i use a cane and

> sometimes a walker. i will be taking a drug called bacloven i am not sure of

> the spelling. i would be interesd to hear from other people with the same

> disease,duration of symptoms and if there is anything i should be doing.

> sincerely yours,wynn jones

> ______________________________________________________

> Get Your Private, Free Email at http://www.hotmail.com

>

> ---------------------------

[Guest guest]

Hi anne, There are a number of us " newbies " here. Joann was diagnosed

in April and I was diagnosed in December- how did you come to arrive in our

corner of reality? Lavon

At 09:23 PM 01/08/2000 GMT, you wrote:

> From: " " <>

>

>

> ______________________________________________________

> Get Your Private, Free Email at http://www.hotmail.com

>

>

>

>Please click above to support our sponsor

>

>

[Guest guest]

hi lockwood family,

actually it's not maryanne that has pls but my father. he does not have a

computer so he is going through me. his name is wynn jones and he was

diagnosed on fri.jan.7 2000. maryanne just went on the internet to try and

find out more about this disease and found your website. i am just starting

baclofen today. i would like to here from other people about their

treatment.

xas.net>

yours sincerely,>Reply-To:

PLS-FRIENDSonelist

>To: PLS-FRIENDSonelist Wynn (maryanne)

>Subject: Re: just diagnosed with pls

>Date: Sat, 08 Jan 2000 18:11:19 -0600

>

>Hi anne, There are a number of us " newbies " here. Joann was diagnosed

>in April and I was diagnosed in December- how did you come to arrive in our

>corner of reality? Lavon

>

>At 09:23 PM 01/08/2000 GMT, you wrote:

> > From: " " <>

> >

> >

> > ______________________________________________________

> > Get Your Private, Free Email at http://www.hotmail.com

> >

> >

> >

> >Please click above to support our sponsor

> >

> >

>

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com

[Guest guest]

Laurel,why don't you join us we'd love to have you!By the way where do you

live?

.

[Guest guest]

Hi Wynn and anne:

I too am new to PLS. I was diagnosed in

September of 1999. I found this group, and also 's web site that

first weekend. It has been the best source of information I've found, and

also the very best for support. We're all dealing with the same stuff, in

varying degrees, and sure can help each other out.

I wish I lived closer to take part in the study, but a commute from Iowa

would be out of the question. I'd also love to meet with the group that

Rita is setting up. Take care Wynn, hang in there, and try to keep your

chin up. Love to all, Laurel

Re: just diagnosed with pls

> >Date: Sat, 08 Jan 2000 18:11:19 -0600

> >

> >Hi anne, There are a number of us " newbies " here. Joann was

diagnosed

> >in April and I was diagnosed in December- how did you come to arrive in

our

> >corner of reality? Lavon

> >

> >At 09:23 PM 01/08/2000 GMT, you wrote:

> > > From: " " <>

> > >

> > >

> > > ______________________________________________________

> > > Get Your Private, Free Email at http://www.hotmail.com

> > >

> > >

> > >

> > >Please click above to support our sponsor

> > >

> > >

> >

>

> ______________________________________________________

> Get Your Private, Free Email at http://www.hotmail.com

>

>

> ---------------------------

[Guest guest]

Laurel:

Hop on a plane and join us, plenty of time, and room for more.

Rita

[Guest guest]

has anyone solved the problem of sliding down to almost a prone position in

your power chair?? don burge

[Guest guest]

Gosh, Rita, I would just love to. But, I don't think work would let me off

just now. I can be with you in spirit if that's ok. Blessings to all, and

safe traveling. Love, Laurel

Re: just diagnosed with pls

> From: ritadfromhollis@... (Rita DiClemente)

>

> Laurel:

>

> Hop on a plane and join us, plenty of time, and room for more.

>

> Rita

>

>

>

>

>

> ---------------------------

[Guest guest]

I'm in Iowa, . Would love to be part of the gathering, but a little

difficult at this time. Have

a really great time!!

laurel

Re: just diagnosed with pls

> From: C828@...

>

> Laurel,why don't you join us we'd love to have you!By the way where do you

> live?

> .

>

> ---------------------------

[Guest guest]

Don:

Are you talking about your electric lift chair? if so, I have had 2 and

they are upholstered not vinal or leather. If your chair is vinal, they

have cover's for them.

Rita

[Guest guest]

rita,

i have an invacare power chair with a 'jay' seat. i meant because of

spasticity my torso won't bend enough causing the problem. thanks for your

response! don