Re: Our son just diagnosed

November 30, 1999

" kathleen deveny " wrote:

> To all you moms and dads out there...

> Our son Colin (2 and a half years old) was just diagnosed this

> Wednesday, Nov. 24 with Arnold Chiari 1 Malformation. After an MRI at

> Children's Memorial Hospital in Chicago the head of neurosurgery

called

> that same day giving us the diagnosis as well as telling us about a

Dr.

> Menezes in Iowa City, Iowa. If there is anyone who has had this

> experience with a child of their own or an experience like this

> themselves please reachout and share some thoughts....

> We are really scared about this whole entire thing!!!!!!

>

Hi Kathleen,

I just had surgery for Chiari I, laminectomy c-1 & 2 with Dr Menezes in

July and highly recommend him. He was very good and listened and

explained everything. Don't feel like any question is stupid and write

a list of questions before hand so you don't forget while your there.

There is a list of questions on the site you can print off. I can't

imagine what your going thru with a child, I am 39 yrs old but I am

sure there are people here that you can talk to that have a child that

has gone thru this. If you have any questions for me just email me back

and I will help you all that I can...tina albrecht

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