Guest guest Posted January 3, 2000 Report Share Posted January 3, 2000 I have found that a tip called Tornado tip makes my cain much more stable it is acually a heavy duty crutch tip it is thicker and larger in diamiter than a standard cain tip also an added benifit is if you drop your cain you can retreive it by stepping on the end of the tip it raises it almost to hip level without the need to bend down for it.You can order such a tip thru any medical supply store. Jerry Falling > From: mingoeja@... > > From: ED AMES > > Sue-Ellen--I saw your message about falling,which I have done plenty of > in the last 8 years, and it reminded me of the fact that I have a spare > rolling walker that needs a good home.I have 2 others,one for upstairs > and one for down. These are the best things since beer and they have been > a life saver for me.They have baskets,trays, and seats with brakes that > lock and you can carry anything around the house. Best of all,it gives > you stability without taking you off your feet. > > This is a Guardian,PT.Pro-300, model 7777A.It's not new but it's in decent > shape. It's just sitting here--if you're interested, I'll box it up and > ship it to you. It folds up and is light weight so that wouldn't be a > problem. > > I some times use two canes and I found ones that fold into 4 small > sections and snap into full size with a flick of the wrist. They have a > bungie cord inside that makes them work.You can take them anywhere in a > small bag.I get them from Dr. Leornards " el-cheapo " medical equipment > catalogue. > > If you're interested, let me know--falling can be hazardous to your > health! I've got a rotator-cuff that'll never be the same! > Hang on---Ed > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2000 Report Share Posted January 4, 2000 Sue-Ellen, Take Ed up on this offer. I hate to think of you falling again. I had several falls in a row this summer, and as a consequence, had to sell my two-story house. I was worth it, though, to keep the bones intact! My doctor pointed out to me that falls are my worst enemy..it is harder for us to " bounce back. " Take care, Jo Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2000 Report Share Posted January 5, 2000 Laurel, how awful! I too have found out how hard getting up can be- when I fell in Sept. I rolled partway down our down sloping front yard and found I had to roll the rest of the way down so I could pull myself up at the mailbox- If I'd been five it would have been great fun! Any tips from anyone on how to get up when out in an open space (carrying that cordless phone is looking better and better) Lavon At 05:43 PM 01/05/2000 -0600, you wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2000 Report Share Posted January 5, 2000 [This message is not in displayable format] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2000 Report Share Posted January 6, 2000 When I had that problem of falling(notice I said HAD), my husband installed grab bar in the tub, and I got a chair (at a medical supply store), and I started taking showers. When stuff happens, you got to stop and think " how can I avoid this happening again " . Rita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2000 Report Share Posted January 6, 2000 Rita, I did the same thing when I started falling. My husband put a removable grab bar on the side of the tub (We are renting, after having to sell our two-story house this summer), a chair, and a non slip mat, to use with my handheld shower. I love it. I feel very safe now. Like Lavon, we have a very slanted yard, and that is my next project! Jo Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2000 Report Share Posted January 6, 2000 i can't get up by myself anymore so i have lifeline. i push a button on a thing i wear around my neck and they call someone when i fall to help me up. mingoeja@... wrote: > > From: Ed Ames > > I have taken a few minor falls in the last few months--mainly kind of > slow motion falls and I haven't hurt myself but getting up is a trip! The > only thing that saves me is the fact that I work out in an exercise chair > several times a week to keep up my upper body strength. I have to get face > down, push myself up onto my hands and knees(that's where the upper body > stregth pays off) and pull myself up on something.Sometimes it is very > hard. > I rolled my scooter,with me in it!,on a slope in my back yard last year. > Getting out of that one wasn't easy--I'm very careful where I go now! > The cell phone is a very good idea--I carry one alot now,but keeping up > body helps with balance and reduces spasticity,at least for me. I know that > for some folks exercise is detrimental and makes them weak but even just > stretching helps keep the muscles limber.Maintaining strength is the only > thing that saves me. > the walker is still the best answer but it still requires concentrtion. > > Good luck and Good Balance to all!--Ed > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2000 Report Share Posted January 6, 2000 Jo Ann: I know exactly what you mean. It's called using common sense. Sometimes a simple thing like shoes makes all the difference in the world. This is a life changing disease, and you gotta run with it and do what works to maintain a way of living. I had to sell 2 homes and now live in a handicapped apartment, and love it. Good for you! My feelings are (here I go again), with the proper precautions, there is no reason to fall, unless we are careless! Rita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2000 Report Share Posted January 6, 2000 Jagan,exercise is the best thing you can do for yourself,especially the arms,because when you fall you have the strength to pull yourself up,also you are less apt to injure your arms or shoulders.I've taken some bad falls, and because I exercise frequently on the nautilius machines, I think is the reason I don't have any problems with my arms or shoulders.Exercise as much as you can.Doctors know nothing about what is good, or bad, for you they are guessing,we know more about this disease than they do,and that is a fact,my neurologist agrees with me on that score! Good luck,. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2000 Report Share Posted January 6, 2000 Falling is something I have a lot of experience in. Being as how I can still get up by myself, sometimes I can manage to fall in the exact same place twice! I have learned several things about crashing to the ground that may be of some benefit to others. First of all I think that having a cellphone or lifeline type of device is fantastic. You might want to add a siren or other noisemaker (like is advertised for women to carry to ward off molesters) because sometimes I know I find it difficult to make any noise, and making noise can be useful when you desire to be located. Another thing I have learned (through rather bitter experience) is not to try to " save " myself when I start to fall. If I start falling, I go ahead and fall. I once pulled a bookcase over on myself trying to keep from falling. It takes a little practice (it is pretty intuitive to try to reach out and try to grab something). It isn't always the best choice, but on the whole I have found it better to just go ahead and fall over than to try to make a graceful save. I just don't have that kind of gracefulness anymore (some would say I never did). In an earlier life, I learned to make a parachute landing fall, and use sort of a modification of that. I just sort of crumple up into a fetal position, with my arms around my head, and try to aim for an open area. Galen Hekhuis, NpD, JFR, GWA ghekhuis@... When the going gets tough...goodbye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2000 Report Share Posted January 6, 2000 Hi Laurel, You have company. Yesterday I fell in the bath. Slow motion fall! Hearing the thud - my wife rushed to help. I found I could turn, and raise myself without her help. But I had to hold on to a tap, as usual. No injury. i fell down last August, at that time my son helped me to get up. I couldn't myself get up. I have been doing stretching and bending since last August. This has put some power and some flexibility in my body. That is why yesterday I could turn, sit, go up on my knees, and pull me up. I keep a log of the time I exercised everyday. It motivates me. The Neurologist checked me in 91 for 20 minutes, wrote out a 3 page report - eliminating other diseases, and concluding I had PLS. He did this on my very first visit, at a time when I had not even developed all the symptoms.( I could speak well and didn't have a pool of saliva in my mouth-91) I respect him. At that time he had told me not to exercise, particularly the hands. His words are ring in my mind when I exercise. That could a reason for my not exercising so long. Now I have decided to give it a try. love jagan jagan Laurel Aasland wrote: Lockwood Family wrote: > Laurel, how awful! I too have found out how hard getting up can be- when I > fell in Sept. I rolled partway down our down sloping front yard and found I > had to roll the rest of the way down so I could pull myself up at the > mailbox- If I'd been five it would have been great fun! Any tips from > anyone on how to get up when out in an open space (carrying that cordless > phone is looking better and better) Lavon > At 05:43 PM 01/05/2000 -0600, you wrote: > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2000 Report Share Posted January 6, 2000 I also had the lifeline for years, and it really made me feel safe, if anything happened, never had to use it. Gave it up when I moved to my handicapped apartment. I almost forgot about lifeline, it's great for people who " FALL AND CAN " T GET UP " Rita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2000 Report Share Posted January 6, 2000 i agree with taking proper precautions but some times my legs 'freeze up' when i'm in the middle of a transfer or whatever and that is when i fall. my doctor says there is no way of knowing when that will happens and it does happen to some people with pls as well as other disabilities. Rita DiClemente wrote: > > Jo Ann: > > I know exactly what you mean. It's called using common sense. > Sometimes a simple thing like shoes makes all the difference in the > world. This is a life changing disease, and you gotta run with it and > do what works to maintain a way of living. I had to sell 2 homes and > now live in a handicapped apartment, and love it. > Good for you! > > My feelings are (here I go again), with the proper precautions, there is > no reason to fall, unless we are careless! > > Rita > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2000 Report Share Posted January 6, 2000 i also live in an accessible apartment but but sometimes no matter how many precautions i take - bars, roll in shower, hospital bed, etc. there always seems to be something new that shows up now and then. like i mentioned before when my legs 'freeze up' there is no way for me to know when this is going to happen. i also had no way of knowing that my scooter was going to tip over on the day that it did. i also hate that commercial, rita. next time come up with one of your own. you do a better job. Rita DiClemente wrote: > > I also had the lifeline for years, and it really made me feel safe, if > anything happened, never had to use it. Gave it up when I moved to my > handicapped apartment. > > I almost forgot about lifeline, it's great for people who " FALL AND > CAN " T GET UP " > > Rita > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2000 Report Share Posted January 6, 2000 I haven't fallen since I started taking baclofen. But before that all of a sudden I'd just go down with no warning. My legs are getting worse recently, they are feeling like they did before the baclofen, so I don't know if I need to up the med or what. Since I've been sick lately (flu, bronchitis and liver problems) I am taking a wait and see attitude. I do think I need to start using a walker though. I don't know why I have put it off so long but somehow I keep thinking I'm doing ok without one. Problem is the " doing ok " only works until you take a bad fall. I guess it is really " dumb " thinking on my part. The idea of going with the fall is what my accupuncturist was trying to tell me. That way you don't hurt yourself as much. And remember to protect your head if at all possible! ____________________________________________________________________ Get your own FREE, personal Netscape WebMail account today at http://webmail.netscape.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2000 Report Share Posted January 7, 2000 My dads legs freeze up too. Usually if something frightens him. He usually freezes for a few seconds then just falls down to the ground. Sonya Re: Falling > i also live in an accessible apartment but but sometimes no matter how > many precautions i take - bars, roll in shower, hospital bed, etc. there > always seems to be something new that shows up now and then. like i > mentioned before when my legs 'freeze up' there is no way for me to know > when this is going to happen. i also had no way of knowing that my > scooter was going to tip over on the day that it did. i also hate that > commercial, rita. next time come up with one of your own. you do a > better job. > > Rita DiClemente wrote: > > > > I also had the lifeline for years, and it really made me feel safe, if > > anything happened, never had to use it. Gave it up when I moved to my > > handicapped apartment. > > > > I almost forgot about lifeline, it's great for people who " FALL AND > > CAN " T GET UP " > > > > Rita > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2000 Report Share Posted January 7, 2000 Yes, I have had the freeze up, too.....usually when walking in cold weather. It is very frightening, and the fear makes my legs freeze up even more. Good thing I live in Texas. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2000 Report Share Posted January 7, 2000 I recently began a water aerobics class aimed at people with arthritis. The workout is very gentle and I have better balance in the water. I am hoping it will also help with the weight gain that I have experienced in the last year, since I also was advised not to exercise when my doctors thought I had ALS. I'm hoping to work back up to the treadmill soon. It has seemed to help with muscle cramping, as well as my level of fatigue. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2000 Report Share Posted January 7, 2000 I feel exactly the same way about a walker, and I realize that I should get over it and at least try one. Even if I don't use it much, I'm sure it will become more useful later. Jo Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2000 Report Share Posted January 7, 2000 thank you for telling me that. sometimes i feel like i imagine all this stuff. i will have to try to pay more attention to how i'm feeling when the 'freeze' happens. maybe if i can i could prevent some of the falls that happen.................kathleen Sonya wrote: > > My dads legs freeze up too. Usually if something frightens him. He usually > freezes for a few seconds then just falls down to the ground. Sonya > > Re: Falling > > > i also live in an accessible apartment but but sometimes no matter how > > many precautions i take - bars, roll in shower, hospital bed, etc. there > > always seems to be something new that shows up now and then. like i > > mentioned before when my legs 'freeze up' there is no way for me to know > > when this is going to happen. i also had no way of knowing that my > > scooter was going to tip over on the day that it did. i also hate that > > commercial, rita. next time come up with one of your own. you do a > > better job. > > > > Rita DiClemente wrote: > > > > > > I also had the lifeline for years, and it really made me feel safe, if > > > anything happened, never had to use it. Gave it up when I moved to my > > > handicapped apartment. > > > > > > I almost forgot about lifeline, it's great for people who " FALL AND > > > CAN " T GET UP " > > > > > > Rita > > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2000 Report Share Posted January 7, 2000 JoAnn,for the muscle cramps take 6-8oz of quinine water, or tonic,that should ease the cramps.Take at bedtime for best results. Good luck, . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2000 Report Share Posted January 17, 2000 GaLen had some good advice on falling. I had some physical therapy and the PT told me the first thing to do after falling (if you are not hurt) is to just lay still for a while and let the muscles relax - they will be very tight after trying to prevent the fall. Then as you try to get up - rest again at each convenient stopping point. Roy s Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2000 Report Share Posted January 21, 2000 Excellent advice. The lay still time also allows you to inventory body parts gently to see if something is injured. I do not allow others who try to be helpful to immediately pull me up until I know that I have not broken or damaged something. Sometimes help can do more damage. Emmett " Roy A. s " wrote: > > > GaLen had some good advice on falling. I had some physical therapy and the > PT told me the first thing to do after falling (if you are not hurt) is to > just lay still for a while and let the muscles relax - they will be very > tight after trying to prevent the fall. Then as you try to get up - rest > again at each convenient stopping point. > > Roy s > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2000 Report Share Posted January 29, 2000 Hi all, I want to add something about falls and not quite recovering from them. Each time I have fallen, it has shaken my confidence in my ability to walk or just get around. Last year, Jan. 19, I fell on my front step and landed with full impact on the left side of my face, the temple to be specific. I had started slipping on the ice and my legs stiffened, which they do when I get startled, and I went down stiff as a board. The impact did not knock me out, but it certainly made me wonder how I was going to get up with my legs still up on the step (about 9 inches) and my lower body on the sidewalk. I knew I was bleeding because I could see the blood dripping. I was finally able to get my legs off the step, or porch, and got to a kneeling position. From there I was able to get to the door and yell for help. When my son came, he immediately went to his mother, who came and took one look at me and said simply, " You're going to ER. " I didn't think it was very serious, but I spent the night in the hospital and had plastic surgery to repair the damage to my face. The pictures I saw later made me a little ill. I had broken through to the skull and had a laceration around my left eye about 3-4 inches long. There were small ones under the eye. There was also nerve damage to my left optic nerve. I now have a new " blind spot " where most of us only have one. This one does affect my vision at times, expecially when I am tired. There were also small hairline fractures on the cheekbone. My point is this: I could have been severely affected by this fall. It should have taken a lot out of me. Somehow, it made me stronger. I had been walking well without my walker for several weeks before that, although I did still carry it. I still carry it sometimes, but can walk around the house and the office area at work without it, unless I am tired, sick, or stiff. Helen, my wife, said I left a lot of blood on the sidewalk. Any head injury will do that because it is such a vascular area. Anyway, I believe God interevened and kept me from serious injury and I have accepted this and changed my thought to " I can handle falls now without being drained too much. I will not let it do that to me. " Take it for what you will, but before that fall, I could tell that every fall was taking something away from me. I was allowing it too. Now I'm not. I also have not had more than two falls since. Both were stress related and I didn't have one hand on a stable surface. I thank God that both falls were on soft surfaces. The last one I had was about a month ago and could have been disastrous if I had gone anywhere but where I did. I did not hit anything on the way down except the newly carpeted floor. I did just lie there for about 10 minutes, taking inventory of my body and letting my body relax. Anyway, that is my current connection and interaction with falls. Take them in stride and know that they will happen. Just don't let the fear control you.One last thing, the plastic surgery covered the scar very well, thank you. It was the second plastic surgery I had had in that area due to a fall. Best to you all, Mike Gray. Quote Link to comment Share on other sites More sharing options...
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