We finally met another CHARGE family

[Guest guest]

Dee Dee,

Thanks so much for stopping by our home today. It was so nice to

finally meet another CHARGE family. It was also good for my husband

to see first hand your little guy -- who by the way is so precious.

It finally made him understand that in the CHARGE world we are

moving at an appropriate pace. He also realized just how lucky we

are that Jillyan was not as sick as so many of the other children.

It is amazing what our children can endure.

Again, thanks for the visit and all of the information -- it was

invaluable. I hope your family had fun at the Renaissance Festival

and best of luck with the doctor appt. this week -- I hope all goes

well.

Huggins

Mom to Jillyan & Hailey & wife to Robin

[Guest guest]

,

We also enjoyed meeting the four of you. It was very encouraging to see

Jillian so healthy and rolling around so freely. I loved watching Hailey

being such a great big sister too. She obviously loves her little sister.

Blake has just stunned me over the years with her love for her brother

and her lack of jealousy despite all of the time and attention he needs. It

seems Hailey has that gift too.

We throughly enjoyed meeting you and hope to keep in touch. Let me know

about the hearing test.

Deedee