Recovery Time

[Guest guest]

Everyone progresses differently, and perceives pain differently. Stick

w/ the program, and you will be out on the golf course soon. Are you

still doing your exercises? Getting any out patient P.T.? Where is

your pain? What is your doc saying about it?

Marilyn

hipless413 wrote:

> I am at week 12 in my recovery and feel I should be feeling much

> better than I do. Am I too anxious or does it really take this long?

> I have friends who were playing golf after 2 months. I have alot of

> pain when standing from a sitting position. Any thoughts?

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi,

At almost nine months, I'm still in pain. I'm still taking Tylenol 1 for pain. It seems after I do my exercises, I'm in more pain and have trouble walking without a limp. I recently started working and by the end of the day, I can hardly walk without being in pain. I keep asking, when will it end. I called my OS office but they are on vacation for the next two weeks. He did say in June when I last saw him that it would take me another three to four months of recovery. I have no strength. I feel like a totally different person than I used to be. I had so much energy, out dancing every Friday and Saturday nights for hours at a time. I'm 47, I shouldn't feel this way. I find that I don't smile as much as I used to. I'm always thinking about the pain in my hip and leg and swollen feet and I feel I have to watch how I move. Sometimes when I'm walking, my operated leg feels as though it's going to give

on me. It almost feels like I have a rod down my whole leg starting at my hip that keeps my leg stiff and it keeps me from walking "normally". Is anyone experiencing this? At this point, I'm disappointed in the outcome of my surgery.

Thanks,

CarmelMarilyn <mwelton@...> wrote:

Everyone progresses differently, and perceives pain differently. Stick w/ the program, and you will be out on the golf course soon. Are you still doing your exercises? Getting any out patient P.T.? Where is your pain? What is your doc saying about it? Marilynhipless413 wrote:> I am at week 12 in my recovery and feel I should be feeling much> better than I do. Am I too anxious or does it really take this long? > I have friends who were playing golf after 2 months. I have alot of> pain when standing from a sitting position. Any thoughts?>>>>>>>>>

[Guest guest]

Carmel: One thing I know for sure is that chronic pain will change who you are and make you smile a lot less. I think it would be a good idea to talk to your primary care doctor since your OS is out of town and see if he/she can offer any suggestions about what you're going through.

SaraCarmel Santos <pureenergy7@...> wrote:

Hi,

At almost nine months, I'm still in pain. I'm still taking Tylenol 1 for pain. It seems after I do my exercises, I'm in more pain and have trouble walking without a limp. I recently started working and by the end of the day, I can hardly walk without being in pain. I keep asking, when will it end. I called my OS office but they are on vacation for the next two weeks. He did say in June when I last saw him that it would take me another three to four months of recovery. I have no strength. I feel like a totally different person than I used to be. I had so much energy, out dancing every Friday and Saturday nights for hours at a time. I'm 47, I shouldn't feel this way. I find that I don't smile as much as I used to. I'm always thinking about the pain in my hip and leg and swollen feet and I feel I have to watch how I move. Sometimes when I'm walking, my operated leg feels as though it's going to give

on me. It almost feels like I have a rod down my whole leg starting at my hip that keeps my leg stiff and it keeps me from walking "normally". Is anyone experiencing this? At this point, I'm disappointed in the outcome of my surgery.

Thanks,

CarmelMarilyn <mwelton@...> wrote:

Everyone progresses differently, and perceives pain differently. Stick w/ the program, and you will be out on the golf course soon. Are you still doing your exercises? Getting any out patient P.T.? Where is your pain? What is your doc saying about it? Marilynhipless413 wrote:> I am at week 12 in my recovery and feel I should be feeling much> better than I do. Am I too anxious or does it really take this long? > I have friends who were playing golf after 2 months. I have alot of> pain when standing from a sitting position. Any thoughts?>>>>>>>>>

[Guest guest]

I should be feeling much better than I do. Am I too anxious or does it really take this long? I have friends who were playing golf after 2 months. >>> Well sweetie your friends body won't be apart of your recovery. That's an individual thing and it happens at YOUR OWN RATE not anothers. Give yourself some time to heal... hopefully you'll know pain free and just how great a new hip can be~ but don't get discouraged. So things don't go "as planned" not much in life does.... just roll with the bunches and make the most of it.

[Guest guest]

Does your doc know you are doing pool exercise? He may want you to take

it easy until the acetabulum grows into the pelvic (reverse order)

Marilyn

hipless413 wrote:

> -Doc said my hip is not growing into the prosthesis. Leg stem fine

> but hip socket not. Gave me Fosamax to stimulate bone growth and

> told me to come back in 3 months. (Have I been kicked to the curb)

> If it doesn't improve, may hve to go in and put a screw in it. I

> have alot of pain in the groin area, especially when I stand from a

> sitting position. He also told me to stop P.T. after 15 sessions and

> start massage therapy. I am afraid to do anything at this point.

> Don't know if I am doing more damage. Have been getting in the pool

> where I can get better range of motion. I am sooo frustrated.

>

> -- In Joint Replacement , Marilyn <mwelton@s...>

> wrote:

> > Everyone progresses differently, and perceives pain differently.

> Stick

> > w/ the program, and you will be out on the golf course soon. Are

> you

> > still doing your exercises? Getting any out patient P.T.? Where

> is

> > your pain? What is your doc saying about it?

> > Marilyn

> >

> > hipless413 wrote:

> >

> > > I am at week 12 in my recovery and feel I should be feeling much

> > > better than I do. Am I too anxious or does it really take this

> long?

> > > I have friends who were playing golf after 2 months. I have alot

> of

> > > pain when standing from a sitting position. Any thoughts?

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

My llmd said that in his experience it takes roughly half the time you've been

infected to get well. So if he's right, you can expect to recover in about 2.5

years.

I'm not sure if this is accurate, just one llmd's opinion.

-------------- Original message --------------

> was wondering how long it really takes to somewhat recover from lyme

> disease....if i come up lyme positive i have been infected for 5 years

> without treatment. any thoughts?

>

>

> chad

>

>

>

>

>

>

>

>

>

> Lyme Disease News continually updated from thousands of sources around the

net:

> http://www.topix.net/health/lyme-disease

>

> Questions and/or comments can be directed to the list owner at

> -Owner

>

[Guest guest]

That all depends on what you are doing to recover. I chose to fight back

with alternatives and it took 8 months to regain normal functions and

another 4 months to regain strength. I have talked with some who have never

recovered because they are just in cycle of drugs, while not supporting the

body at all.Husband and I had it for about 7 years before doing anything

about it.

-- [ ] recovery time

was wondering how long it really takes to somewhat recover from lyme

disease....if i come up lyme positive i have been infected for 5 years

without treatment. any thoughts?

chad

[Guest guest]

Wow, I hope that's not right, I've been sick 19 years!!

Kathy

> My llmd said that in his experience it takes roughly half the time

you've been infected to get well. So if he's right, you can expect

to recover in about 2.5 years.

> I'm not sure if this is accurate, just one llmd's opinion.

>

> -------------- Original message --------------

>

> > was wondering how long it really takes to somewhat recover from

lyme

> > disease....if i come up lyme positive i have been infected for 5

years

> > without treatment. any thoughts?

> >

> >

> > chad

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > Lyme Disease News continually updated from thousands of sources

around the net:

> > http://www.topix.net/health/lyme-disease

> >

> > Questions and/or comments can be directed to the list owner at

> > -Owner@Y...

> >

[Guest guest]

> was wondering how long it really takes to somewhat recover from lyme

> disease....if i come up lyme positive i have been infected for 5

years

> without treatment. any thoughts?

>

>

> chad

[Guest guest]

I want to encourage the recent explant ladies to be patient with

yourselves. It took months or years to develop all the worst of your

symptoms and the horrible fatigue.

was explanted on 5/25/06 by Dr. Kolb. For the first week she

kept saying it was like she " just woke up " . She was so out of her

mind for months with brain lesions, encephalitis (brain swelling) and

painful skin that looked red, swollen and crusted with rash. We are

told that encephalitis always leaves permanent brain injury, but we

are hoping her long term damage will be minimal. Her tests showed

seizure-type activity and that may have been her brain never resting.

Between Sept. 2005 and July 2006 needed assistance with

everything from showering, washing her hair or even tying her shoes.

She was incapable of typing even a simple email. She has so much

memory loss during that time that I think it might be a blessing.

After spending thousands of dollars on supplements that didn't seem to

make much difference, the things that accelerated her recovery were:

crushed raw garlic (1 to 3 cloves a day);

lemon water with sea salt;

organic plain yogurt;

B-12 sublingual spray; and,

Solaray Multidophilus capsules.

We also ate a low carb diet and excluded most wheat products and

artificial sweeteners. followed the fibromyalgia treatment

protocol by taking Mucinex from Aug. to Dec. 2006, and eliminated

salicylate-containing products for skin and hair. It also took quite

a lot of time for the anesthesia to clear from her brain. An

anesthesiologist had warned us about that prior to surgery.

She is greatly improved now, although she also has short term memory

problems and personality changes. If simple things like these have

helped get better, they might be worth a try for some of you. I

think the biggest obstacle is everyone's immune system reacts differently.

Hugs to all.

[Guest guest]

It is so heartening to continue to hear how is improving, and not without the help of you, , who should be canonized!

I am happy for you both. It is so tragic, what happens to us, especially the young ones who are poised at the beginning of their adult lives.

I am curious, has noticed any difference after stopping the Mucinex?

Amazing, that young woman like can have such extreme symptoms and yet implants are still legal.

Best wishes for continual imporovements in health~

Bindi

Recovery Time

I want to encourage the recent explant ladies to be patient withyourselves. It took months or years to develop all the worst of yoursymptoms and the horrible fatigue. was explanted on 5/25/06 by Dr. Kolb. For the first week shekept saying it was like she "just woke up". She was so out of hermind for months with brain lesions, encephalitis (brain swelling) andpainful skin that looked red, swollen and crusted with rash. We aretold that encephalitis always leaves permanent brain injury, but weare hoping her long term damage will be minimal. Her tests showedseizure-type activity and that may have been her brain never resting.Between Sept. 2005 and July 2006 needed assistance witheverything from showering, washing her hair or even tying her shoes. She was incapable of typing even a simple email. She has so muchmemory loss during that time that I think it might be a blessing.After spending thousands of dollars on supplements that didn't seem tomake much difference, the things that accelerated her recovery were:crushed raw garlic (1 to 3 cloves a day);lemon water with sea salt;organic plain yogurt; B-12 sublingual spray; and,Solaray Multidophilus capsules.We also ate a low carb diet and excluded most wheat products andartificial sweeteners. followed the fibromyalgia treatmentprotocol by taking Mucinex from Aug. to Dec. 2006, and eliminatedsalicylate-containing products for skin and hair. It also took quitea lot of time for the anesthesia to clear from her brain. Ananesthesiologist had warned us about that prior to surgery.She is greatly improved now, although she also has short term memoryproblems and personality changes. If simple things like these havehelped get better, they might be worth a try for some of you. Ithink the biggest obstacle is everyone's immune system reacts differently.Hugs to all.

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.432 / Virus Database: 268.16.13/632 - Release Date: 1/16/2007 4:36 PM

[Guest guest]

hasn't noticed any difference or set backs since stopping the

Mucinex. It's only been two weeks though. She is still salicylate

free so maybe that has some effect???

I wouldn't have been able to care for her alone if she had gotten any

worse. I can't imagine the strength it takes for those of you with

families to take care of.

>

> It is so heartening to continue to hear how is improving, and

not without the help of you, , who should be canonized!

> I am happy for you both. It is so tragic, what happens to us,

especially the young ones who are poised at the beginning of their

adult lives.

>

> I am curious, has noticed any difference after stopping the

Mucinex?

>

> Amazing, that young woman like can have such extreme symptoms

and yet implants are still legal.

>

> Best wishes for continual imporovements in health~

> Bindi

>

[Guest guest]

,

I'm thrilled to hear that continues to recover. I can't imagine how you got through caring for her for so long. It's doubtful that she would be here now if it hadn't been YOU taking care of her. Even nursing homes don't give that kind of loving care.

Have you filed a MedWatch report for ? You can file a report for every diagnosis.

What do 's doctors say now that is doing so much better?

My daughter worked with head injuries for some time . . . Recovery can continue for years if the patient continues to receive mental stimulation . . . they know that the brain develops new brain cells throughout ones life . . Our job is to train them.

God Bless,

Rogene

[Guest guest]

Thank you, Rogene. I have read that the brain will repair itself and

even try to work around damaged areas. That is certainly my strongest

hope for .

I had assistance from my son who quit a job he was sick of anyway. My

long time boyfriend filled in occasionally when I absolutely had to

be at work or had medical appointments for myself. I have a

supervisor who allowed me to telecommute a lot of the time.

and I have been discussing which doctor to see for some

follow-up. Our choices are:

neuro #1: " it's not MS but there's no medical evidence that implants

cause illness " . #1 also lied to me about the number and location of

the brain lesions, but did keep calling to follow up on .

neuro #2: " it's a good time to have MS because there's great medicine

available. You have to take seizure meds if your eeg shows seizure

activity " . (The seizure meds just about killed .)

neuro #3: " needs a referral to a psychiatrist for behavior

modification meds " .

internist PCP: after staring at photos of the mold-filled implants,

flatly stated, " we need to rule out MS " .

There isn't one of them that I think I could control myself around.

LOL. is opting to return to neuro #1 because she has more

resources at a large university medical center and the largest

quantity of MRI's and test results.

I haven't filed a MedWatch report for yet. has an

attorney representing her and so I am hesitant to rock any more boats

for the time being. Don't the MedWatch reports go to the FDA? I have

NO FAITH in the FDA doing the right thing.

>

> ,

>

> I'm thrilled to hear that continues to recover. I can't

imagine how you got through caring for her for so long. It's doubtful

that she would be here now if it hadn't been YOU taking care of her.

Even nursing homes don't give that kind of loving care.

>

> Have you filed a MedWatch report for ? You can file a report

for every diagnosis.

>

> What do 's doctors say now that is doing so much better?

>

> My daughter worked with head injuries for some time . . . Recovery

can continue for years if the patient continues to receive mental

stimulation . . . they know that the brain develops new brain cells

throughout ones life . . Our job is to train them.

>

> God Bless,

>

> Rogene

>

[Guest guest]

,

You definitely got the runaround with the medical system, didn't you? Your doctor options don't sound too great, but I have faith that you will figure your way around it all.

The Medwatch report is important to file, because it documents that you have had problems with the implants. Even if they do nothing, it is an FDA record. If every woman who has had problems with implants would file a report, the numbers would be so large that the FDA would have no choice but to acknowledge the problem. I would think that your lawyer would want you to do it, too, as it shows your willingness to try every avenue for help(and to no avail). But I'd ask him/her.

I know that Molly, who has a law practice now, is doing work for women with breast implant cases. I haven't seen her emails for here a number of months, but I know she's still around. She was diagnosed with MS, lupus, and other diseases, and is now doing great. There is hope for , too!

Bindi

Re: Recovery Time

Thank you, Rogene. I have read that the brain will repair itself andeven try to work around damaged areas. That is certainly my strongesthope for .I had assistance from my son who quit a job he was sick of anyway. Mylong time boyfriend filled in occasionally when I absolutely had tobe at work or had medical appointments for myself. I have asupervisor who allowed me to telecommute a lot of the time. and I have been discussing which doctor to see for somefollow-up. Our choices are:neuro #1: "it's not MS but there's no medical evidence that implantscause illness". #1 also lied to me about the number and location ofthe brain lesions, but did keep calling to follow up on .neuro #2: "it's a good time to have MS because there's great medicineavailable. You have to take seizure meds if your eeg shows seizureactivity". (The seizure meds just about killed .)neuro #3: " needs a referral to a psychiatrist for behaviormodification meds".internist PCP: after staring at photos of the mold-filled implants,flatly stated, "we need to rule out MS".There isn't one of them that I think I could control myself around.LOL. is opting to return to neuro #1 because she has moreresources at a large university medical center and the largestquantity of MRI's and test results.I haven't filed a MedWatch report for yet. has anattorney representing her and so I am hesitant to rock any more boatsfor the time being. Don't the MedWatch reports go to the FDA? I haveNO FAITH in the FDA doing the right thing.>> ,> > I'm thrilled to hear that continues to recover. I can'timagine how you got through caring for her for so long. It's doubtfulthat she would be here now if it hadn't been YOU taking care of her.Even nursing homes don't give that kind of loving care. > > Have you filed a MedWatch report for ? You can file a reportfor every diagnosis. > > What do 's doctors say now that is doing so much better?> > My daughter worked with head injuries for some time . . . Recoverycan continue for years if the patient continues to receive mentalstimulation . . . they know that the brain develops new brain cellsthroughout ones life . . Our job is to train them.> > God Bless,> > Rogene>

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.432 / Virus Database: 268.17.0/639 - Release Date: 1/18/2007 6:47 PM

[Guest guest]

Rogene -

Where do you get the Ionic foot bath from?

[Guest guest]

,

It's very important that you file a MedWatch return. . . Cases like 's are ones that can move the FDA to action. . . . Or put the people responsible for inaction on the hot seat.

As for 's care, I really don't know. If you can find a doctor who actually contributes to her getting better, I'd go for it. If all they can do is spit out garbage in the face of the truth and dispense drugs, she's probably better off without them. I don't believe many conventional doctors know much about nutrition - the basis for health.

The body has incredible healing powers. . . Given what it needs to heal itself.

Have you considered an ionic foot bath to pull toxins out of her system?

Rogene

Re: Recovery Time

Thank you, Rogene. I have read that the brain will repair itself andeven try to work around damaged areas. That is certainly my strongesthope for .I had assistance from my son who quit a job he was sick of anyway. Mylong time boyfriend filled in occasionally when I absolutely had tobe at work or had medical appointments for myself. I have asupervisor who allowed me to telecommute a lot of the time. and I have been discussing which doctor to see for somefollow-up. Our choices are:neuro #1: "it's not MS but there's no medical evidence that implantscause illness". #1 also lied to me about the number and location ofthe brain lesions, but did keep calling to follow up on .neuro #2: "it's a good time to have MS because there's great medicineavailable. You have to take seizure meds if your eeg shows seizureactivity". (The seizure meds just about killed .)neuro #3: " needs a referral

to a psychiatrist for behaviormodification meds".internist PCP: after staring at photos of the mold-filled implants,flatly stated, "we need to rule out MS".There isn't one of them that I think I could control myself around.LOL. is opting to return to neuro #1 because she has moreresources at a large university medical center and the largestquantity of MRI's and test results.I haven't filed a MedWatch report for yet. has anattorney representing her and so I am hesitant to rock any more boatsfor the time being. Don't the MedWatch reports go to the FDA? I haveNO FAITH in the FDA doing the right thing.>> ,> > I'm thrilled to hear that continues to recover. I can'timagine how you got

through caring for her for so long. It's doubtfulthat she would be here now if it hadn't been YOU taking care of her.Even nursing homes don't give that kind of loving care. > > Have you filed a MedWatch report for ? You can file a reportfor every diagnosis. > > What do 's doctors say now that is doing so much better?> > My daughter worked with head injuries for some time . . . Recoverycan continue for years if the patient continues to receive mentalstimulation . . . they know that the brain develops new brain cellsthroughout ones life . . Our job is to train them.> > God Bless,> > Rogene>

[Guest guest]

You can find several different types of ionic foot baths on ebay . . . you could probably find them with a web search - but the prices on ebay are pretty good. Keep in mind that the :"professional" models used in detox centers are considerably more expensive - but the less expensive should be fine for home use.

[Guest guest]

,

Your care for your daughter is so heartwarming...you are a great mom.

Thanks for giving us this wonderful update. I have great hopes that your daughter is going to continue healing and get better and better. The short term memory problems might hang on the longest, but I think they can get much better in time.

Thanks for keeping us updated on her progress. I know it had to be heartbreaking for you to watch your daughter go through this. Please always speak up about this travesty to those who will listen to you, and even to those who won't! We can't stay silent, can we? We can't let this happen to any more of our daughters! I appreciate your voice on this group immensely.

Patty

Recovery Time

I want to encourage the recent explant ladies to be patient withyourselves. It took months or years to develop all the worst of yoursymptoms and the horrible fatigue. was explanted on 5/25/06 by Dr. Kolb. For the first week shekept saying it was like she "just woke up". She was so out of hermind for months with brain lesions, encephalitis (brain swelling) andpainful skin that looked red, swollen and crusted with rash. We aretold that encephalitis always leaves permanent brain injury, but weare hoping her long term damage will be minimal. Her tests showedseizure-type activity and that may have been her brain never resting.Between Sept. 2005 and July 2006 needed assistance witheverything from showering, washing her hair or even tying her shoes. She was incapable of typing even a simple email. She has so muchmemory loss during that time that I think it might be a blessing.After spending thousands of

dollars on supplements that didn't seem tomake much difference, the things that accelerated her recovery were:crushed raw garlic (1 to 3 cloves a day);lemon water with sea salt;organic plain yogurt; B-12 sublingual spray; and,Solaray Multidophilus capsules.We also ate a low carb diet and excluded most wheat products andartificial sweeteners. followed the fibromyalgia treatmentprotocol by taking Mucinex from Aug. to Dec. 2006, and eliminatedsalicylate-containi ng products for skin and hair. It also took quitea lot of time for the anesthesia to clear from her brain. Ananesthesiologist had warned us about that prior to surgery.She is greatly improved now, although she also has short term memoryproblems and personality changes. If simple things like these havehelped get better, they might be worth a try for some of you. Ithink the biggest obstacle is everyone's immune system reacts

differently.Hugs to all.

Check out the all-new beta - Fire up a more powerful email and get things done faster.

[Guest guest]

,

I would think it depends on your age and physical health. I had a L2-

T11 spinal fusion on May 7, 2007. I was back driving and walking

without a can within about six weeks. I am still recovering I can

walk ok but I still have some trouble handling stairs. Please feel

free to email me I will answer any questions you may have.

Jim

>

> I mentioned this in a previous post, but it may have gotten lost in

my

> ramblings.

>

> For those who have had a laminectomy performed, can you please give

me

> an idea how long I should have to expect to recover at home before

> going back to work?

>

> My doctor suggested 4 to 6 weeks. Is this about right?

>

> I know every person is different, but I just want to get a general

idea.

>

> Thanks in advance.

>

>

>