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*SaNdY*

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Hey Sandy, I would also like that newspaper pic of Shanna to put on a board

I am making up for the Retreat for next year. I would appreciate it hon.

Everyone always asks about Shann, I want to know how YOU are doing? Thanks

Love LORI

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*sAnDy*

Hi~o:) how be u?! i hope u are doing well?!:)hope ur weekend is off

to a good start..!? here is okies..im home alone right now..my fam is

all off to socer tournys..in like 3 diff spots..lol...so, we are

kinda busy today..so, enjoying the peace, away from the 5 other

people in my fam:) nice n quiet for a change, YEA!! hehe(well, if u

dont count de dog barking in de background...)neways, still got dat

idea on my mind..just kinda been sitting der..i was tinking..ive

noticed sumtin..bout rosie..she just has this thing, wit kids..she

just seems to take to them real well...i dunno, most peole do.but she

seems to easier tham maybe oprah or some of the other talk show people

(in my opnion, and dat is just mine;)) i dunno, maybe if u got some

of de younger rsd kids to write to rosie, it might kinda smack her in

de face..and kinda wake her up to the fact tat people out der r

hurting..and den get her to notice tat more people r suffering, i

dunno, just tinking, might work, might not..lol, i dont know if dat

made ne sense at all to , i hope it did...sorry if i didnt, lemmi

know if it didnt, ill try again, sorry, im like half asleep, and

dopped up on meds(blame mom on dat one, she wants me to go out wit my

friends in a bit so, she dopped me up on em) so..lil outta it...but

wanted to tell u dat, before i forgot...so..i tink dat is all i gotta

say for now..lemmi know if i made ne sense at all..hope u are doing

well..luv ya lotz, sending moon beams, jelli beans, hugs n kissies

too, ur way, ttu soon, luv ya

*, a.k.a. ~Jewlz~*

> > > >~*Sandy*~

> > > > lol, hehe, that is a cute idea, but, sorry to keep

interruptin,

> > > >but, just curious..lil lost again, what ru talkin bout..wit the

> > > >stations n stuff, sending em what? sorry, im trying to keep

> > > >up..lol..i tink i know what u r talkin bout, and if im right,

i got

> > > >an idea..not sure if it will work...but, i need to know if im

right

> > > >or not first(if tat makes ne sense to u?!) brain is still not

> > > >processing here, sorry lol..so..gotta hang wit me here..sending

> >moon

> > > >beams, jelli beans, hugs n kissies ur ways..luv ya'll...lotz n

> > > >lotz..:)

> > > >**

> > > > ___

> > > > .' '.__

> > > > ( o {__)

> > > > \ ._.'

> > > > /\ ) (

> > > > | ``' " '` \

> > > > \ {`'- }

> > > >

> > > > '. '-._ /

> > > > ``^^`^`^`^^`^^^``^`^``^``^^^

> > > >

> > > >

> > > >

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Hi ,

Makes good sense to me. You are right. Rosie has a soft spot for

kids.

When Shanna (my 12 year old neighbor) gets out of the hospital next week I

will ask her to write to Rosie one on one. We have a newspaper article

with Shanna's picture that was written about her last year. We will send

that also.

You never know when something good is just around the corner.

love, Sandy

P.S. Have a good time with your friends tonight. Don't forget to wink at

the moonbeams.

At 05:12 PM 10/13/2001 +0000, you wrote:

>*sAnDy*

> Hi~o:) how be u?! i hope u are doing well?!:)hope ur weekend is off

>to a good start..!? here is okies..im home alone right now..my fam is

>all off to socer tournys..in like 3 diff spots..lol...so, we are

>kinda busy today..so, enjoying the peace, away from the 5 other

>people in my fam:) nice n quiet for a change, YEA!! hehe(well, if u

>dont count de dog barking in de background...)neways, still got dat

>idea on my mind..just kinda been sitting der..i was tinking..ive

>noticed sumtin..bout rosie..she just has this thing, wit kids..she

>just seems to take to them real well...i dunno, most peole do.but she

>seems to easier tham maybe oprah or some of the other talk show people

>(in my opnion, and dat is just mine;)) i dunno, maybe if u got some

>of de younger rsd kids to write to rosie, it might kinda smack her in

>de face..and kinda wake her up to the fact tat people out der r

>hurting..and den get her to notice tat more people r suffering, i

>dunno, just tinking, might work, might not..lol, i dont know if dat

>made ne sense at all to , i hope it did...sorry if i didnt, lemmi

>know if it didnt, ill try again, sorry, im like half asleep, and

>dopped up on meds(blame mom on dat one, she wants me to go out wit my

>friends in a bit so, she dopped me up on em) so..lil outta it...but

>wanted to tell u dat, before i forgot...so..i tink dat is all i gotta

>say for now..lemmi know if i made ne sense at all..hope u are doing

>well..luv ya lotz, sending moon beams, jelli beans, hugs n kissies

>too, ur way, ttu soon, luv ya

>*, a.k.a. ~Jewlz~*

>

>

>

>

>

>

> > > > >~*Sandy*~

> > > > > lol, hehe, that is a cute idea, but, sorry to keep

>interruptin,

> > > > >but, just curious..lil lost again, what ru talkin bout..wit the

> > > > >stations n stuff, sending em what? sorry, im trying to keep

> > > > >up..lol..i tink i know what u r talkin bout, and if im right,

>i got

> > > > >an idea..not sure if it will work...but, i need to know if im

>right

> > > > >or not first(if tat makes ne sense to u?!) brain is still not

> > > > >processing here, sorry lol..so..gotta hang wit me here..sending

> > >moon

> > > > >beams, jelli beans, hugs n kissies ur ways..luv ya'll...lotz n

> > > > >lotz..:)

> > > > >**

> > > > > ___

> > > > > .' '.__

> > > > > ( o {__)

> > > > > \ ._.'

> > > > > /\ ) (

> > > > > | ``' " '` \

> > > > > \ {`'- }

> > > > >

> > > > > '. '-._ /

> > > > > ``^^`^`^`^^`^^^``^`^``^``^^^

> > > > >

> > > > >

> > > > >

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~*SaNdY*~

Ive been meaning to ask u..is shanna in ne rsd groups? fur kids?

cause im 15, and im in a couple kids groups..like de rsdhopeteens

groups, and it is a great group, and ive found great friends in dat

group..is she in it? is she in ne groups at all?! if she needs neone

to talk to, im always here, just lemmi know, my email addy is

babyangel0037@..., she can email me netime, if she needs/wants to

chat, let her know im here for her netime:) jsut wanted to letcha know

(to let her know, if ya want) luv ya, hope u are well:)mooon beams

**

> > > > > >~*Sandy*~

> > > > > > lol, hehe, that is a cute idea, but, sorry to keep

> >interruptin,

> > > > > >but, just curious..lil lost again, what ru talkin

bout..wit the

> > > > > >stations n stuff, sending em what? sorry, im trying to keep

> > > > > >up..lol..i tink i know what u r talkin bout, and if im

right,

> >i got

> > > > > >an idea..not sure if it will work...but, i need to know if

im

> >right

> > > > > >or not first(if tat makes ne sense to u?!) brain is still

not

> > > > > >processing here, sorry lol..so..gotta hang wit me

here..sending

> > > >moon

> > > > > >beams, jelli beans, hugs n kissies ur ways..luv

ya'll...lotz n

> > > > > >lotz..:)

> > > > > >**

> > > > > > ___

> > > > > > .' '.__

> > > > > > ( o {__)

> > > > > > \ ._.'

> > > > > > /\ ) (

> > > > > > | ``' " '` \

> > > > > > \ {`'- }

> > > > > >

> > > > > > '. '-._ /

> > > > > > ``^^`^`^`^^`^^^``^`^``^``^^^

> > > > > >

> > > > > >

> > > > > >

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,

Shanna is not connected to the Internet. That is why I am on for

them.

Several people are snail mailing letters to her. She loves to get mail but

her pain is at such a high level I don't think she can write them back

much. She is very

serious about her schoolwork and reading. That is the only thing that gets

her away from the pain sometimes. She has had this going on four years

now, I have only known about this for one year. Took two years to diagnose

her.

If it weren't for the American Society for RSD/CRPS her family and

Shanna would be completely devistated. The angels on this group have

turned their life around and have given them love and hope. I am very

grateful.

love, Sandy Rimland

At 08:50 PM 10/13/2001 +0000, you wrote:

>~*SaNdY*~

> Ive been meaning to ask u..is shanna in ne rsd groups? fur kids?

>cause im 15, and im in a couple kids groups..like de rsdhopeteens

>groups, and it is a great group, and ive found great friends in dat

>group..is she in it? is she in ne groups at all?! if she needs neone

>to talk to, im always here, just lemmi know, my email addy is

>babyangel0037@..., she can email me netime, if she needs/wants to

>chat, let her know im here for her netime:) jsut wanted to letcha know

>(to let her know, if ya want) luv ya, hope u are well:)mooon beams

>**

>

>

> > > > > > >~*Sandy*~

> > > > > > > lol, hehe, that is a cute idea, but, sorry to keep

> > >interruptin,

> > > > > > >but, just curious..lil lost again, what ru talkin

>bout..wit the

> > > > > > >stations n stuff, sending em what? sorry, im trying to keep

> > > > > > >up..lol..i tink i know what u r talkin bout, and if im

>right,

> > >i got

> > > > > > >an idea..not sure if it will work...but, i need to know if

>im

> > >right

> > > > > > >or not first(if tat makes ne sense to u?!) brain is still

>not

> > > > > > >processing here, sorry lol..so..gotta hang wit me

>here..sending

> > > > >moon

> > > > > > >beams, jelli beans, hugs n kissies ur ways..luv

>ya'll...lotz n

> > > > > > >lotz..:)

> > > > > > >**

> > > > > > > ___

> > > > > > > .' '.__

> > > > > > > ( o {__)

> > > > > > > \ ._.'

> > > > > > > /\ ) (

> > > > > > > | ``' " '` \

> > > > > > > \ {`'- }

> > > > > > >

> > > > > > > '. '-._ /

> > > > > > > ``^^`^`^`^^`^^^``^`^``^``^^^

> > > > > > >

> > > > > > >

> > > > > > >

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Hi Lori,

I'll try to dig one up for you. (the article with picture) I know

I have it.

How am I doing? I'm always hyper when Shanna is in the

hospital. There is so little I can do for that child who is always sad and

in pain. It breaks my heart.

That is why I write a lot.

A thought --- has anybody on the group ever tried Qigong for their

RSD? A guy named Ken Cohen wrote a book on it. It is a medical exercise

they do in China. It's done here too. Very slight movements, nothing

strenuous.

Completely non-invasive. Said to shrink brain tumors, cysts, balance the

body so it can heal itself. Supposed to really work for chronic

illnesses. Has anybody had experience with it?

love, Sandy Rimland

At 03:31 PM 10/13/2001 -0400, you wrote:

>Hey Sandy, I would also like that newspaper pic of Shanna to put on a board

>I am making up for the Retreat for next year. I would appreciate it hon.

>Everyone always asks about Shann, I want to know how YOU are doing? Thanks

>

>Love LORI

>

>

>

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Sandy

Shanna is SOOOOOOOOO lucky to have a neighbor and friend like you. At her age, with this disease, I know that it is probably hard to keep friends. I wish that there were alot more people out in the world like you.

Tonia Conyers

tonia197426@...

Get your FREE download of MSN Explorer at http://explorer.msn.com

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~*SaNdY*~

Well, if shanna ever needs a buddy, either through snail mail, or

through email..like, i could email a letter to u, and u could print

it out and give it to her(it would be faster tat way..and easier for

me, cause i cant write well nemore) i would be more than happy to do

tat..just lemmi know..i would luv to..:)cause i know wot it is like

to be a youngin and have rsd..ive been there, and am still

there..so..i know kinda wot she is going through..and i know some

people her age, tat got rsd, so, if she needs a buddy her age, to

smail mail, lemmi know, i tink i can hook her up..or try to at

least...just lemmi know, and ill see wot i can do..moon beams n jelli

beans

**

> > > > > > > >~*Sandy*~

> > > > > > > > lol, hehe, that is a cute idea, but, sorry to keep

> > > >interruptin,

> > > > > > > >but, just curious..lil lost again, what ru talkin

> >bout..wit the

> > > > > > > >stations n stuff, sending em what? sorry, im trying to

keep

> > > > > > > >up..lol..i tink i know what u r talkin bout, and if im

> >right,

> > > >i got

> > > > > > > >an idea..not sure if it will work...but, i need to

know if

> >im

> > > >right

> > > > > > > >or not first(if tat makes ne sense to u?!) brain is

still

> >not

> > > > > > > >processing here, sorry lol..so..gotta hang wit me

> >here..sending

> > > > > >moon

> > > > > > > >beams, jelli beans, hugs n kissies ur ways..luv

> >ya'll...lotz n

> > > > > > > >lotz..:)

> > > > > > > >**

> > > > > > > > ___

> > > > > > > > .' '.__

> > > > > > > > ( o {__)

> > > > > > > > \ ._.'

> > > > > > > > /\ ) (

> > > > > > > > | ``' " '` \

> > > > > > > > \ {`'- }

> > > > > > > >

> > > > > > > > '. '-._ /

> > > > > > > > ``^^`^`^`^^`^^^``^`^``^``^^^

> > > > > > > >

> > > > > > > >

> > > > > > > >

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