Guest guest Posted April 6, 2007 Report Share Posted April 6, 2007 hon, thats awful about your sisters,, they just do not understand....we have a letter to those who do not have hepc, Ill try to find it and send it to you honey,, and you can always bring them here and we can try to educate them as well!Aleshia <aleshiagolden@...> wrote: My thoughts and prayers are wrapped around you. Hang in there your my inspiration. Maybe try pampering your self all day.Sister AleshiaPS Both my sisters think i am just trying to be the constant focus and over acting to the family with my illness and they never contact me.Its hurts alot so can you be my sister it would help us both.> I dont speak with my little sister anymore cause she says I like being sick so I can relate to alot of what you are going through with your friend > dealing with appoinments "medical" chores/feeling like a science experiment> > > When I say that it is a fight to get my records, I mean that nothing > gets done in Baltimore/ Washingtin metropolitan area unless one > talks face to face with a human!> I am so exhausted that when I went to the hospital to fill out the > release, it felt like a struggle just to get in the dang building, > then we are running all over here and there, getting MRI films for > s Hopkins second opinion, billing mess ups and then my hands are > so tingly I can barely fill out the forms! Ewwwwwww bad day that day.> honestly:> Faxes ALWAYS get lost. Messages, well they get put off until the end > of the work day and by then you cant get the meds you so critically > need immediately.> I feel like I live my life for "blood draws" and taking medications. > I hate this, I want to be normal so bad.> boo hoo> my friend said that I whine too much. This is a nasty treatment. Do > not even know how anyone can go through high doses of this > interferon for other disorders. Then again I hate the Riba, I can > feel it when I take them. I stopped during my mothers death for a > week taking just the Peg, I felt a lot better that is for sure. But > my doc says, I MUST stay on both. I think they are pushing me to > finish up with the full treatment 48 weeks on the full dose to "see > how it turns out." > Does anyone else feel like a scince experiment???> mel> > > > > > Take the ordinary things of life, and make them your own. Do the impossible with a smile > > > > ----------------------------------------------------------------> Don't be flakey. Get for Mobile and > always stay connected to friends. > > > > > Hugs from ME> > > > ------------------------------------------------------------------> Bored stiff? Loosen up...> Download and play hundreds of games for free on Games.>Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2007 Report Share Posted April 6, 2007 liz,, you will be in my prayers honey,, I hope it all turns out ok,,, elizabethnv1 <elizabethnv1@...> wrote: For the last several days I have been having chest pain , no problem ...well last night I almost called 911( pain hit new all time high and even had some nausea) . Instead the paramedic in me decided to wait till this morning and see a doc . My ekg strongly suggests that I have an enlarged atrium , and we both know that the treatment for that if the patient is symptomatic is a transplant . This is why I havent been online much over the last 3 days . Anyway I had an echo done today they also did my carotid arteries , next is another treadmill . I should get the results by next the 10th dealing with appoinments "medical" chores/feeling like a science experiment When I say that it is a fight to get my records, I mean that nothing gets done in Baltimore/ Washingtin metropolitan area unless one talks face to face with a human!I am so exhausted that when I went to the hospital to fill out the release, it felt like a struggle just to get in the dang building, then we are running all over here and there, getting MRI films for s Hopkins second opinion, billing mess ups and then my hands are so tingly I can barely fill out the forms! Ewwwwwww bad day that day.honestly:Faxes ALWAYS get lost. Messages, well they get put off until the end of the work day and by then you cant get the meds you so critically need immediately.I feel like I live my life for "blood draws" and taking medications. I hate this, I want to be normal so bad.boo hoomy friend said that I whine too much. This is a nasty treatment. Do not even know how anyone can go through high doses of this interferon for other disorders. Then again I hate the Riba, I can feel it when I take them. I stopped during my mothers death for a week taking just the Peg, I felt a lot better that is for sure. But my doc says, I MUST stay on both. I think they are pushing me to finish up with the full treatment 48 weeks on the full dose to "see how it turns out." Does anyone else feel like a scince experiment???mel Take the ordinary things of life, and make them your own. Do the impossible with a smile Don't be flakey. Get for Mobile and always stay connected to friends. Hugs from ME Bored stiff? Loosen up...Download and play hundreds of games for free on Games. Jackie Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2007 Report Share Posted April 6, 2007 Get some rest sweetie , and laugh at yourself for flooding the bathroom and bedroom . It's a good emotion Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2007 Report Share Posted April 6, 2007 I know but I try not to burden the people I love the most lol dealing with appoinments "medical" chores/feeling like a science experiment When I say that it is a fight to get my records, I mean that nothing gets done in Baltimore/ Washingtin metropolitan area unless one talks face to face with a human!I am so exhausted that when I went to the hospital to fill out the release, it felt like a struggle just to get in the dang building, then we are running all over here and there, getting MRI films for s Hopkins second opinion, billing mess ups and then my hands are so tingly I can barely fill out the forms! Ewwwwwww bad day that day.honestly:Faxes ALWAYS get lost. Messages, well they get put off until the end of the work day and by then you cant get the meds you so critically need immediately.I feel like I live my life for "blood draws" and taking medications. I hate this, I want to be normal so bad.boo hoomy friend said that I whine too much. This is a nasty treatment. Do not even know how anyone can go through high doses of this interferon for other disorders. Then again I hate the Riba, I can feel it when I take them. I stopped during my mothers death for a week taking just the Peg, I felt a lot better that is for sure. But my doc says, I MUST stay on both. I think they are pushing me to finish up with the full treatment 48 weeks on the full dose to "see how it turns out." Does anyone else feel like a scince experiment???mel Take the ordinary things of life, and make them your own. Do the impossible with a smile Don't be flakey. Get for Mobile and always stay connected to friends. Hugs from ME Bored stiff? Loosen up...Download and play hundreds of games for free on Games. Hugs from ME Sucker-punch spam with award-winning protection.Try the free Beta. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2007 Report Share Posted April 6, 2007 I think this is all just a scare and it will turn out to be nothing lol dealing with appoinments "medical" chores/feeling like a science experiment When I say that it is a fight to get my records, I mean that nothing gets done in Baltimore/ Washingtin metropolitan area unless one talks face to face with a human!I am so exhausted that when I went to the hospital to fill out the release, it felt like a struggle just to get in the dang building, then we are running all over here and there, getting MRI films for s Hopkins second opinion, billing mess ups and then my hands are so tingly I can barely fill out the forms! Ewwwwwww bad day that day.honestly:Faxes ALWAYS get lost. Messages, well they get put off until the end of the work day and by then you cant get the meds you so critically need immediately.I feel like I live my life for "blood draws" and taking medications. I hate this, I want to be normal so bad.boo hoomy friend said that I whine too much. This is a nasty treatment. Do not even know how anyone can go through high doses of this interferon for other disorders. Then again I hate the Riba, I can feel it when I take them. I stopped during my mothers death for a week taking just the Peg, I felt a lot better that is for sure. But my doc says, I MUST stay on both. I think they are pushing me to finish up with the full treatment 48 weeks on the full dose to "see how it turns out." Does anyone else feel like a scince experiment???mel Take the ordinary things of life, and make them your own. Do the impossible with a smile Don't be flakey. Get for Mobile and always stay connected to friends. Hugs from ME Bored stiff? Loosen up...Download and play hundreds of games for free on Games. Jackie Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2007 Report Share Posted April 6, 2007 Jackie, thank you so much, I would love any ideas you have about my sisters.I am so lucky to have you all.Wow i am so happy i decided to stop being so scared about misspelling or saying the wrong thing!You all are so supportive, really wished i did it along time ago.In my field accounting you have to make sure everything is proofed and corrected , in balance before others see it.To be honest with you the check book is a challenge now.lol ...................I know its funny lol. [Hepatitis_C_ Central] dealing with appoinments "medical" chores/feeling like a science experiment> > > When I say that it is a fight to get my records, I mean that nothing > gets done in Baltimore/ Washingtin metropolitan area unless one > talks face to face with a human!> I am so exhausted that when I went to the hospital to fill out the > release, it felt like a struggle just to get in the dang building, > then we are running all over here and there, getting MRI films for > s Hopkins second opinion, billing mess ups and then my hands are > so tingly I can barely fill out the forms! Ewwwwwww bad day that day.> honestly:> Faxes ALWAYS get lost. Messages, well they get put off until the end > of the work day and by then you cant get the meds you so critically > need immediately.> I feel like I live my life for "blood draws" and taking medications. > I hate this, I want to be normal so bad.> boo hoo> my friend said that I whine too much. This is a nasty treatment. Do > not even know how anyone can go through high doses of this > interferon for other disorders. Then again I hate the Riba, I can > feel it when I take them. I stopped during my mothers death for a > week taking just the Peg, I felt a lot better that is for sure. But > my doc says, I MUST stay on both. I think they are pushing me to > finish up with the full treatment 48 weeks on the full dose to "see > how it turns out." > Does anyone else feel like a scince experiment?? ?> mel> > > > > > Take the ordinary things of life, and make them your own. Do the impossible with a smile > > > > ------------ --------- --------- --------- --------- --------- -------> Don't be flakey. Get for Mobile and > always stay connected to friends. > > > > > Hugs from ME> > > > ------------ --------- --------- --------- --------- --------- ---------> Bored stiff? Loosen up...> Download and play hundreds of games for free on Games.>Jackie Finding fabulous fares is fun.Let FareChase search your favorite travel sites to find flight and hotel bargains. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2007 Report Share Posted April 6, 2007 Thank you so much, lol Re: Re: Sisters Get some rest sweetie , and laugh at yourself for flooding the bathroom and bedroom . It's a good emotion Get your own web address. Have a HUGE year through Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2007 Report Share Posted April 6, 2007 Can you please send it to me, too, most of my family doesn't get it, either.. Sheena Jackie on <redjaxjm@...> wrote: hon, thats awful about your sisters,, they just do not understand....we have a letter to those who do not have hepc, Ill try to find it and send it to you honey,, and you can always bring them here and we can try to educate them as well!Aleshia <aleshiagolden > wrote: My thoughts and prayers are wrapped around you. Hang in there your my inspiration. Maybe try pampering your self all day.Sister AleshiaPS Both my sisters think i am just trying to be the constant focus and over acting to the family with my illness and they never contact me.Its hurts alot so can you be my sister it would help us both.> I dont speak with my little sister anymore cause she says I like being sick so I can relate to alot of what you are going through with your friend > dealing with appoinments "medical" chores/feeling like a science experiment> > > When I say that it is a fight to get my records, I mean that nothing > gets done in Baltimore/ Washingtin metropolitan area unless one > talks face to face with a human!> I am so exhausted that when I went to the hospital to fill out the > release, it felt like a struggle just to get in the dang building, > then we are running all over here and there, getting MRI films for > s Hopkins second opinion, billing mess ups and then my hands are > so tingly I can barely fill out the forms! Ewwwwwww bad day that day.> honestly:> Faxes ALWAYS get lost. Messages, well they get put off until the end > of the work day and by then you cant get the meds you so critically > need immediately.> I feel like I live my life for "blood draws" and taking medications. > I hate this, I want to be normal so bad.> boo hoo> my friend said that I whine too much. This is a nasty treatment. Do > not even know how anyone can go through high doses of this > interferon for other disorders. Then again I hate the Riba, I can > feel it when I take them. I stopped during my mothers death for a > week taking just the Peg, I felt a lot better that is for sure. But > my doc says, I MUST stay on both. I think they are pushing me to > finish up with the full treatment 48 weeks on the full dose to "see > how it turns out." > Does anyone else feel like a scince experiment???> mel> > > > > > Take the ordinary things of life, and make them your own. Do the impossible with a smile > > > > ----------------------------------------------------------------> Don't be flakey. Get for Mobile and > always stay connected to friends. > > > > > Hugs from ME> > > > ------------------------------------------------------------------> Bored stiff? Loosen up...> Download and play hundreds of games for free on Games.>Jackie Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Travel to find your fit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2007 Report Share Posted April 6, 2007 Praying that it's not near as as bad as it sounds, Liz! elizabethnv1 <elizabethnv1@...> wrote: For the last several days I have been having chest pain , no problem ...well last night I almost called 911( pain hit new all time high and even had some nausea) . Instead the paramedic in me decided to wait till this morning and see a doc . My ekg strongly suggests that I have an enlarged atrium , and we both know that the treatment for that if the patient is symptomatic is a transplant . This is why I havent been online much over the last 3 days . Anyway I had an echo done today they also did my carotid arteries , next is another treadmill . I should get the results by next the 10th dealing with appoinments "medical" chores/feeling like a science experiment When I say that it is a fight to get my records, I mean that nothing gets done in Baltimore/ Washingtin metropolitan area unless one talks face to face with a human!I am so exhausted that when I went to the hospital to fill out the release, it felt like a struggle just to get in the dang building, then we are running all over here and there, getting MRI films for s Hopkins second opinion, billing mess ups and then my hands are so tingly I can barely fill out the forms! Ewwwwwww bad day that day.honestly:Faxes ALWAYS get lost. Messages, well they get put off until the end of the work day and by then you cant get the meds you so critically need immediately.I feel like I live my life for "blood draws" and taking medications. I hate this, I want to be normal so bad.boo hoomy friend said that I whine too much. This is a nasty treatment. Do not even know how anyone can go through high doses of this interferon for other disorders. Then again I hate the Riba, I can feel it when I take them. I stopped during my mothers death for a week taking just the Peg, I felt a lot better that is for sure. But my doc says, I MUST stay on both. I think they are pushing me to finish up with the full treatment 48 weeks on the full dose to "see how it turns out." Does anyone else feel like a scince experiment???mel Take the ordinary things of life, and make them your own. Do the impossible with a smile Don't be flakey. Get for Mobile and always stay connected to friends. Hugs from ME Bored stiff? Loosen up...Download and play hundreds of games for free on Games. Jackie Food fight? Enjoy some healthy debatein the Answers Food Drink Q&A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2007 Report Share Posted April 6, 2007 I dont think it is , I feel much better today.. dealing with appoinments "medical" chores/feeling like a science experiment When I say that it is a fight to get my records, I mean that nothing gets done in Baltimore/ Washingtin metropolitan area unless one talks face to face with a human!I am so exhausted that when I went to the hospital to fill out the release, it felt like a struggle just to get in the dang building, then we are running all over here and there, getting MRI films for s Hopkins second opinion, billing mess ups and then my hands are so tingly I can barely fill out the forms! Ewwwwwww bad day that day.honestly:Faxes ALWAYS get lost. Messages, well they get put off until the end of the work day and by then you cant get the meds you so critically need immediately.I feel like I live my life for "blood draws" and taking medications. I hate this, I want to be normal so bad.boo hoomy friend said that I whine too much. This is a nasty treatment. Do not even know how anyone can go through high doses of this interferon for other disorders. Then again I hate the Riba, I can feel it when I take them. I stopped during my mothers death for a week taking just the Peg, I felt a lot better that is for sure. But my doc says, I MUST stay on both. I think they are pushing me to finish up with the full treatment 48 weeks on the full dose to "see how it turns out." Does anyone else feel like a scince experiment???mel Take the ordinary things of life, and make them your own. Do the impossible with a smile Don't be flakey. Get for Mobile and always stay connected to friends. Hugs from ME Bored stiff? Loosen up...Download and play hundreds of games for free on Games. Jackie Food fight? Enjoy some healthy debatein the Answers Food Drink Q & A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2007 Report Share Posted April 6, 2007 Im trying to find it, and when I do, Ill send it to you tooSheena <mom4possums2002@...> wrote: Can you please send it to me, too, most of my family doesn't get it, either.. Sheena Jackie on <redjaxjm > wrote: hon, thats awful about your sisters,, they just do not understand....we have a letter to those who do not have hepc, Ill try to find it and send it to you honey,, and you can always bring them here and we can try to educate them as well!Aleshia <aleshiagolden > wrote: My thoughts and prayers are wrapped around you. Hang in there your my inspiration. Maybe try pampering your self all day.Sister AleshiaPS Both my sisters think i am just trying to be the constant focus and over acting to the family with my illness and they never contact me.Its hurts alot so can you be my sister it would help us both.> I dont speak with my little sister anymore cause she says I like being sick so I can relate to alot of what you are going through with your friend > dealing with appoinments "medical" chores/feeling like a science experiment> > > When I say that it is a fight to get my records, I mean that nothing > gets done in Baltimore/ Washingtin metropolitan area unless one > talks face to face with a human!> I am so exhausted that when I went to the hospital to fill out the > release, it felt like a struggle just to get in the dang building, > then we are running all over here and there, getting MRI films for > s Hopkins second opinion, billing mess ups and then my hands are > so tingly I can barely fill out the forms! Ewwwwwww bad day that day.> honestly:> Faxes ALWAYS get lost. Messages, well they get put off until the end > of the work day and by then you cant get the meds you so critically > need immediately.> I feel like I live my life for "blood draws" and taking medications. > I hate this, I want to be normal so bad.> boo hoo> my friend said that I whine too much. This is a nasty treatment. Do > not even know how anyone can go through high doses of this > interferon for other disorders. Then again I hate the Riba, I can > feel it when I take them. I stopped during my mothers death for a > week taking just the Peg, I felt a lot better that is for sure. But > my doc says, I MUST stay on both. I think they are pushing me to > finish up with the full treatment 48 weeks on the full dose to "see > how it turns out." > Does anyone else feel like a scince experiment???> mel> > > > > > Take the ordinary things of life, and make them your own. Do the impossible with a smile > > > > ----------------------------------------------------------------> Don't be flakey. Get for Mobile and > always stay connected to friends. > > > > > Hugs from ME> > > > ------------------------------------------------------------------> Bored stiff? Loosen up...> Download and play hundreds of games for free on Games.>Jackie Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Travel to find your fit. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2007 Report Share Posted April 6, 2007 well whatever it turns out to be, we will all be here for ya!elizabethnv1 <elizabethnv1@...> wrote: I think this is all just a scare and it will turn out to be nothing lol dealing with appoinments "medical" chores/feeling like a science experiment When I say that it is a fight to get my records, I mean that nothing gets done in Baltimore/ Washingtin metropolitan area unless one talks face to face with a human!I am so exhausted that when I went to the hospital to fill out the release, it felt like a struggle just to get in the dang building, then we are running all over here and there, getting MRI films for s Hopkins second opinion, billing mess ups and then my hands are so tingly I can barely fill out the forms! Ewwwwwww bad day that day.honestly:Faxes ALWAYS get lost. Messages, well they get put off until the end of the work day and by then you cant get the meds you so critically need immediately.I feel like I live my life for "blood draws" and taking medications. I hate this, I want to be normal so bad.boo hoomy friend said that I whine too much. This is a nasty treatment. Do not even know how anyone can go through high doses of this interferon for other disorders. Then again I hate the Riba, I can feel it when I take them. I stopped during my mothers death for a week taking just the Peg, I felt a lot better that is for sure. But my doc says, I MUST stay on both. I think they are pushing me to finish up with the full treatment 48 weeks on the full dose to "see how it turns out." Does anyone else feel like a scince experiment???mel Take the ordinary things of life, and make them your own. Do the impossible with a smile Don't be flakey. Get for Mobile and always stay connected to friends. Hugs from ME Bored stiff? Loosen up...Download and play hundreds of games for free on Games. Jackie Jackie Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2007 Report Share Posted April 6, 2007 its no burden Liz,, we are family!elizabethnv1 <elizabethnv1@...> wrote: I know but I try not to burden the people I love the most lol dealing with appoinments "medical" chores/feeling like a science experiment When I say that it is a fight to get my records, I mean that nothing gets done in Baltimore/ Washingtin metropolitan area unless one talks face to face with a human!I am so exhausted that when I went to the hospital to fill out the release, it felt like a struggle just to get in the dang building, then we are running all over here and there, getting MRI films for s Hopkins second opinion, billing mess ups and then my hands are so tingly I can barely fill out the forms! Ewwwwwww bad day that day.honestly:Faxes ALWAYS get lost. Messages, well they get put off until the end of the work day and by then you cant get the meds you so critically need immediately.I feel like I live my life for "blood draws" and taking medications. I hate this, I want to be normal so bad.boo hoomy friend said that I whine too much. This is a nasty treatment. Do not even know how anyone can go through high doses of this interferon for other disorders. Then again I hate the Riba, I can feel it when I take them. I stopped during my mothers death for a week taking just the Peg, I felt a lot better that is for sure. But my doc says, I MUST stay on both. I think they are pushing me to finish up with the full treatment 48 weeks on the full dose to "see how it turns out." Does anyone else feel like a scince experiment???mel Take the ordinary things of life, and make them your own. Do the impossible with a smile Don't be flakey. Get for Mobile and always stay connected to friends. Hugs from ME Bored stiff? Loosen up...Download and play hundreds of games for free on Games. Hugs from ME Sucker-punch spam with award-winning protection.Try the free Beta. Jackie Jackie Quote Link to comment Share on other sites More sharing options...
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