Guest guest Posted August 16, 1999 Report Share Posted August 16, 1999 My computer was down for 3 weeks and it took a while to read the 650 e-mails I had waiting. I really missed this list and everyone's supportive advice. Last time I wrote Adam (nearly 5) was learning to ride his bike but his balance was awful. Well, it turns out he just need practice, practice, practice. He is now a successful little bike rider with an occasional tumble to the ground. He just loves it I am so happy he was able to learn to do this. The other children in the neighborhood are accepting him more and he is getting more comfortable signing to them (although they don't understand most of the signs). They will all learn over time. I have noticed though that when Adam tries to talk with the children he resorts to a very speedy form of babble with no real words. I know he knows the words for what he wants to say but just doesn't do it. Does anyone have suggestions on what to do to help him use words instead of babble? We also got more exciting news; we had been waiting for insurance approval for his cochlear implant and we have it!!!!!! We have to visit the surgeon 1 more time and the surgery will be in early October. My only apprehension with going ahead with this is the amount of travel it is 1000 miles round trip we will be traveling there every two weeks all winter long. I feel very guilty about this I hate to travel but I know this is the right move for Adam. Thanks all for listening (reading). I missed you all so much, Nikki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 1999 Report Share Posted August 17, 1999 Heidi, They said we would need to return every two weeks so they could monitor his mapping loudnesses and the different programs to ensure he is getting all that he can from his implant. How did it work with the three month intervals? Did he seem to do well enough with the initial programs? How often does everyone else return for mapping checks etc. These will also be two days of testing sound booth, and speech perception as well as mapping every time. I would love to hear more about everyone elses time schedule as far as appointments go. From everything I have read this seems to be the norm. I would love to only go every 3 months perhaps even once a month would be much better than every two weeks. Tell me more!!!! Take care, Nikki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 1999 Report Share Posted August 17, 1999 Nikki wrote: My only apprehension with going ahead with this is the amount of travel it is 1000 miles round trip we will be traveling there every two weeks all winter long. I feel very guilty about this I hate to travel but I know this is the right move for Adam. Why do you have to go back every 2 weeks? We live in Minnesota and our son was implanted in Iowa. Which is about 1000 miles round trip also. We went back a month after his surgery to have him " turned on " and then at 3 mo intervals for the next year. Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 1999 Report Share Posted August 17, 1999 Heidi, I think we are going to go with the Nucleus 24 also. He will also have 4 maps available to hime once he is finished. He will be having the surgery done in Ann Arbor MI at the University of Michigan Motts Childrens hospital. Maybe I could talk with the clinicians again to clarify why we need to be there every two weeks. I am glad to know every 3 months worked out well for you. Thank you, Nikki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 1999 Report Share Posted August 17, 1999 Nikki, Devon was implanted at the U of Iowa with the Nucleus 24. That was before it was FDA approved. His device has 4 programs so they programmed all 4 and then we worked our way up thru each one. That was how we were able to wait 3 months between visits. What kind of implant is your child going to receive? They also did the speech evals and sound booth testing and mapping done in one day. It has worked out well for us. Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 1999 Report Share Posted August 17, 1999 My daughter was " turned on " June 25 and we went back every week for a month now I'm going every other week and they feel after this next visit we can go every three months. I believe it is really a matter of how well the audiologist can guage the tolerance of your child and map them acvcordingly. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 1999 Report Share Posted August 17, 1999 Nikki, We go back every 2 to 3 weeks. She was hooked up July 6th, and we have been back 3 times. Our fourth is this Friday. I'm hoping after Friday we can go less often, however we will go as many times as they want. I wouldn't know what to do if I wasn't in the van!:-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 1999 Report Share Posted August 17, 1999 In a message dated 8/17/99 11:01:10 PM Eastern Daylight Time, listenup@... writes: << fterwards his audiologist/therapist confided in me that she was amazed he did so well. She actually said, " He's not supposed to be discriminating open set sentences yet. " Hugs, Kay >> Kay, That is wonderful news. Eleanor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 1999 Report Share Posted August 17, 1999 > How > often does everyone else return for mapping checks etc. My son's first few maps were every week. Then a couple at 2 week intervals, then 1 at 4 weeks, and from now on it will be only if the audiologist or I think he needs it. She also does his auditory/speech therapy so she's in a pretty unique position to be able to tell when he needs re-mapping. Speaking of which, he did great during an open sentence test she gave him on Monday. He did have a little trouble, but it was with the task, not comprehending her sentences. She would give him a sentence like, " The fingers on the hand were long. " and he had to give back a sentence with the same meaning using an antonym, " The fingers on the hand were not short. " (he kept thinking the sentence he had to give had to be the opposite of what she said, but once he caught on, he had no problem). Even though he was a bit confused about the task, his responses showed that he clearly discriminated the sentence. Afterwards his audiologist/therapist confided in me that she was amazed he did so well. She actually said, " He's not supposed to be discriminating open set sentences yet. " Hugs, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 1999 Report Share Posted August 17, 1999 In a message dated 8/17/99 9:01:55 PM Pacific Daylight Time, LadyJane50@... writes: << fterwards his audiologist/therapist confided in me that she was amazed he did so well. She actually said, " He's not supposed to be discriminating open set sentences yet. >> Kay, Thats great! Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 1999 Report Share Posted August 19, 1999 >Even though he was a bit >confused about the task, his responses showed that he clearly discriminated >the sentence. Afterwards his audiologist/therapist confided in me that she >was amazed he did so well. She actually said, " He's not supposed to be >discriminating open set sentences yet. " Kay, This is wonderful. Thanks for sharing. Barb Quote Link to comment Share on other sites More sharing options...
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