Guest guest Posted July 15, 1999 Report Share Posted July 15, 1999 Welcome to the list, ! I have two boys who are 7 and 4-1/2 - both are hard of hearing and both are aided. Neither at this point would be considered implant candidates (I believe my younger son, based on his hearing loss, would be but he's gotten great gains from his hearing aids). I'm sure we will learn much from you. How old are your boys? Welcome! Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 1999 Report Share Posted July 15, 1999 Hi Phyllis - welcome to the list! My boys are both hard of hearing - my older son is in the moderate to severe category at 60 db; my little son is 90 db so is severe to profound. Both are aided and have done very, very well socially and academically. We have very good friends who have a daughter, Hannah, with a mild loss and she IS aided. Why did your audiologist say to not aid her? I understand unilateral losses are in some ways the most difficult kind of hearing loss to handle - are you in an area that you could get a second opinion? Our hearing loss is x-linked recessive, meaning that the boys in the family show up with hearing loss; the girls are carriers (yes, sometimes I do have GUILT!). My brother has a moderate, unilateral loss (unaided), my mother's brother and a nephew also have moderate sensorineural, bilateral losses. Genetics studies want us! We had always considered the hearing losses somewhat anecdotal since there always seemed to be explanations for why they occurred (in my uncle's case, i.e., our family owned lumber mills and he didn't use hearing protection back then....). But with the advent of both my boys - well, it's not really that coincidental anymore.... Good luck to you - my older son got his hearing aids when he was 3-1/2 (more GUILT!), he is doing extremely well linguistically (actually, too well). Okay, I have to tell you a story. Last week, we were getting ice cream. Tom got his, took one lick and the ice cream immediately fell off the cone. He was upset, of course, I told him that probably they hadn't put the ice cream on well. So he marched up to the window where the teenaged girl was processing the rest of our ice cream and said " My ice cream fell off - my mom said that it's because you didn't put it on right " ! So yes, he's doing well linguistically AND confidence wise as well! Sorry for the ramblings.... Have a good one today! Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 1999 Report Share Posted July 15, 1999 --- Tahna wrote: Hi, I did not see any reason for apologies.....That's what we are all her for, SUPPORT........ Tahna --- end of quote --- Me either - nothing that said offended me at all... Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 1999 Report Share Posted July 15, 1999 --- You wrote: > I would love to see a copy of that letter as well, since my insurance > company (and former employer) turned down my first appeal. I can't believe > they don't think it's their job to help my son hear and learn speech and > language, when they'll help someone see better by subsidizing eyeglasses. --- end of quote --- I sent a copy of the letter our pediatrician wrote to Kay - she will be uploading it to our favorite website soon! Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 1999 Report Share Posted July 16, 1999 Barbara (and Kay): thank you! I'll be looking for it! Stefanie >I sent a copy of the letter our pediatrician wrote to Kay - she will be >uploading it to our favorite website soon! > >Barbara > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 1999 Report Share Posted July 16, 1999 > Barbara (and Kay): thank you! I'll be looking for it! Oops, and here's where you find I'm human....I posted to the wrong group yesterday that I got the letter up: http://members.tripod.com/listenup/haidfund.htm Let me know if it looks OK to you Barbara or if you want anything about it changed. And thanks again for allowing me to put it up. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 1999 Report Share Posted July 17, 1999 > Hello, My name is Gilmore and I am a mother of three children. Twin boys that are four years old and a baby girl who is 16 months old. My husband is deaf and has a cochlear implant. My twins also have implants they were hooked up at age two and are doing wonderful now. My daughter will be getting her implant in september. I would love to hear from anyone else who has gone through the implant process. As well as other parents of deaf children.I am greatful I found this list! Welcome to all of the new people. I am so happy this list is growing. All of our different situations and experiences really serve to help us help each other. This next topic isn't strictly " on topic " but I figure someone here may be able to help me. Does anyone know anything about marriages between deaf and hearing people? Over the last few months I have become friends with a deaf man. I met him through my sign teacher who is also deaf. He would like to move this relationship to another level, I am not ready to do this now, but it got me to thinking about the challanges that would be posed in a relationship such as this. Sometimes communication is difficult because he signs ASL. I sign pigeon although it leans more toward English without the endings. I'm learning to read ASL. I talk as I sign because Petya is mostly oral. Amazingly enough the communication difficulties haven't posed major problems for us because we just keep at it until we both make sure the other understands. This is better communication than I ever had with my hearing husband. How do you communicate in the dark or while driving? I have learned already it is difficult for me to sign and walk or eat at the same time. Will I be accepted by his friends, will I be responsible for his communication when he is with my friends? If I break things off at this point we will be able to remain friends and I cherish his friendship as do my children. If anyone can talk with me further on this I would appreciate hearing from them privately, so as not to be off topic on this list. Or if you know of another list devoted to this topic I would like to know about it. Thanks Barb life. AJ has been oxygen deprived many times in her life from in utero, to turning blue from nursing (aspirating), after several surgeries-she goes into broncial spasms and stops....We feel this has more to do with her hearing loss at this point than family history. She was also in Gentamyacin in the NICU. I heard that newborns on Gent. are automatically tested because of the known risks with it. Does anyone know if this is true. The " myacin " antibiotics are known to be oto-toxic. We believe that this is part of the reason for my daughter's hearing loss. Barb > We are a family with 6 children. Our youngest,5 yrs old, has > mild-moderate hearing loss. We are adopting him from a foreign country, he > is not home yet( maybe Aug?) We homeschool. My husband, I and our older > children sign PSE. We are looking at cueing as a possibility for our son > since he is oral now. He has hearing aids but did not tolerate them. > We are looking forward to the exchange of ideas and learning from your > experiences. We welcome suggestions, cautions and encouragement. > Thank you, > Kathy G. Adopting from where? My daughter is adopted from Bulgaria just before her fourth birthday. We didn't know she had a hearing loss until she was almost five. We have a few other adoptive families on this list as well. I have two kids both adopted. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 1999 Report Share Posted July 18, 1999 > This next topic isn't strictly " on topic " but I figure someone here may be > able to help me. Does anyone know anything about marriages between deaf and > hearing people? There is a newsgroup: alt.relationships.deaf-hearing news:alt.relationships.deaf-hearing Hugs, Kay Quote Link to comment Share on other sites More sharing options...
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