Guest guest Posted June 22, 1999 Report Share Posted June 22, 1999 In a message dated 6/22/99 2:14:33 PM Pacific Daylight Time, MapaME@... writes: << Hayley also has a reverse loss, does that mean low frequency? >> , What is thiss? Never heard of it. Low frequency loss means the loss is predominantly at the lower frequencies only. I.E. My daughter has a 30-35 DB loss at the low frequencies, almost normal at mid and perfectly normal at high. Terry (Low frequencies begin at the left side of the audiogram and as you move to the right on the graph, the frequency is beoming higher) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 1999 Report Share Posted June 22, 1999 In a message dated 6/22/99 9:50:42 PM Eastern Daylight Time, Theathdi@... writes: << This is very odd-I cant imagine the reason....My daughter has sinus problems but never tested her for allergies Terry >> Hi Terry! I was Medline tonight reading some aritcles. An article I read about fluctuating hearing loss also mentions allergies and other things. But I thought this is definitely area to look at too. I also found out if nay one is interested in why my daughter was tested for Collagen Type II is becuase the inner ear is mostly made up of this type of protein. They were looking for the antibody level for Collagen type II. I don't know if anybody else wonder why a particluar test for Collagen was ordered. you definitely learn something new everyday. Take Care Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 1999 Report Share Posted June 22, 1999 In a message dated 6/22/99 7:03:38 PM Pacific Daylight Time, LCorc16@... writes: << ou definitely learn something new everyday. Take Care Lori >> keep me posted! Thanks Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 1999 Report Share Posted June 22, 1999 Lori, I will send out the info to you tomorrow. is a difficult child to get a handle on. It seems sometimes as if she uses her hearing loss to her benefit. I think it comes and goes and therefore she feels a need to control everything around her. My husband has something similar that he wont really talk about but he did tell me that its pressure and its hard to describe. He thinks it is an allergy. I have also noticed that she aquires language in chunks probably when her hearing is more clear. Does your daughter have a problem with hearing florescent lights buzz? How is her speech? Sheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 1999 Report Share Posted June 22, 1999 Hi, I think they were testing for an autoimmune problem. Was it a blood test? Who did it? Sheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 1999 Report Share Posted June 22, 1999 >From: SDunnstern@... > >I do think it is very odd that a lot of us have girls >with low frequency mild losses. I think we should put our heads together and >see if we can help each other. > The odd thing is that the audiogram showed a loss but not the brain >stem. Can anyone comment on this? Any of the girls have allergies? I think > fluctuates depending on a lot of things. Sheri, I'm not aware of my daughter having allergies; are there specific ones you think might be relevant? Also, she was only tested twice, about a week apart, so I don't know if it's fluctuating; it will be interesting (!) to note over time. Someone suggested we also do an ABR on her (the first two tests were evoked response) to get a more complete picture; I'm curious if others have done this on children with this kind of loss, and what it revealed. Thanks, Stefanie >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 1999 Report Share Posted June 22, 1999 In a message dated 6/22/99 8:07:47 PM Pacific Daylight Time, scaruso3@... writes: << Someone suggested we also do an ABR on her (the first two tests were evoked response) to get a more complete picture; I'm curious if others have done this on children with this kind of loss, and what it revealed. Thanks, Stefanie >> I've never heard of it (an ABR) being done on an older child so I think I'll have to pass on that one (my daughter is almost 10) Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 1999 Report Share Posted June 23, 1999 In a message dated 6/22/99 11:44:27 PM Eastern Daylight Time, SDunnstern@... writes: << Does your daughter have a problem with hearing florescent lights buzz? How is her speech? >> That's what we thought she was hearing and realized we went away and it didn't matter. she had the buzzing while we were away and now we have had it in the car. Her speech and language is the same it's done in chunks. That's why sign has been a god send. she has continued to learn language but the definitely the speech is off. When she is on target her speech can be fantastic but other times it drops. Take care Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 1999 Report Share Posted June 23, 1999 In a message dated 6/22/99 11:44:39 PM Eastern Daylight Time, SDunnstern@... writes: << Hi, I think they were testing for an autoimmune problem. Was it a blood test? Who did it? Sheri >> For Audrey they did a sensory-neuroimmunolgy tests. These test for hearing loss and 7 tests were completed. Her antibody level was high for Collagen Type II which is a protein found to comprise mostly the inner ear. Their take is her body is killing the protein that is suppose to be present in the middle ear. I'll let you know more if you want. we will meet again in a couple of weeks. lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 1999 Report Share Posted June 23, 1999 In a message dated 6/23/99 4:34:17 PM Eastern Daylight Time, LCorc16@... writes: << << Hi, I think they were testing for an autoimmune problem. Was it a blood test? Who did it? Sheri >> For Audrey they did a sensory-neuroimmunolgy tests. These test for hearing loss and 7 tests were completed. Her antibody level was high for Collagen Type II which is a protein found to comprise mostly the inner ear. Their take is her body is killing the protein that is suppose to be present in the middle ear. I'll let you know more if you want. we will meet again in a couple of weeks. lori >> I am sorry when I reread it I meant the inner ear not the middle ear sorry for the miscommunication. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 1999 Report Share Posted June 23, 1999 Lori, I am sorry to ask you all these questions but i think I am confused. How old is your daughter and does she have a low frequency loss? What testing has she had done and how did it turn out? I just read something about mouth breathing and sinus, tonsils, Adonis problems. Can cause language problems. What about balance? Does she drink a lot of fluids? It sounds like our daughters are having some of the same symptoms and we should try to figure this out. Sheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 1999 Report Share Posted June 23, 1999 Lori, I would like to know more. Your daughters age and her hearing loss and why they are doing all these tests and why I can't get any answers for my daughter? Sheri Quote Link to comment Share on other sites More sharing options...
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