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Re: Digest Number 23

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--- deHaun wrote:

Congratulations! So many of us have made sacrifices in our careers or lives to

provide for our special needs children. I finally achieved a longtime career

goal that was set back significantly because of the changes I had to make for

our kids. Your pay cut will be temporary. It will all work out for the best.

--- end of quote ---

Thanks for your nice words - and congratulations to you too! It feels so good

to have made the right decision all the way around. The thing that I'm still

amazed about is how stunned the folks at my office were - even after me telling

them all along that I wasn't comfortable driving that distance 3 or 4 times a

week.... Maybe this will wake them up and realize that people are a sum of

their lives (home, work, etc.) and not just their work life. There's no doubt

in my mind that I was the right person skill-wise to travel to the southern

region; but my home life made it not right.

On another note, my family and I will be at e School July 22-23. Our older

son is being evaluated by the e School those days (bless the school that he

attends - they realize they are not qualified to evaluate him). do you

know what is involved in this eval? I understand it's pretty much soup to nuts?

Are we allowed to be there or do we find something else to do?!

Thanks

Barbara

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>me " Does he have a cochlear implant in both ears? " ARGH!!! That women

>better not touch him!

Wow! Kay, here's a comment for " that's outrageous. "

> The public school says that the SLP is just for articulation and that he

>should get 20 minutes twice a week. That the HI teacher does all the

audition

>and language work.

SLP, stands for speech and LANGUAGE pathologist.

My nine year old HoH daughter gets four 30 minute sessions of speech with

the SLP per week and has for years. Her TOD works on artic and language

too. So should the speech path.

It is difficult to separate who is doing what. So many things can be

combined. If everything is working right and all the specialists are

cooperating the child is working on a combination of things at all times.

For example, if the OT, occupational therapist, is working with my daughter

on a fine motor activity she is also combining a language activity with her

therapy. In therapy with the SLP they may combine cutting, a fine motor

activity, with a language exercise.

How much time with the SLP should Jake get? What are his needs? Time

should be based upon his needs.

In school systems I have been in there is a rating system. The more severe

the speech language problem is the more time the child is eligible for. The

school doesn't offer the maximum time but can go up to that amount of time

per week. I wish I could remember what this is called. I'm glad to hear

the teacher is in your corner.

Barb

>I got a phone called that they don't want to put it up right away, because

they

>are expensive and she is just an infant.

They are expensive? What has this to do with anything? Will it be less

expensive when she is three? It's not like it will wear out and she will

need another one when she is older. Seems to me once they put up the sign

the expense is over no matter how old she is.

I have never seen one of these signs vandalized. I would also ask what is

the average life span of a sign. How often are stop signs or speed limit

signs replaced due to fading?

When I lived in Washington and requested the sign, a person from the county

came out and he and I discussed the best placement for the sign. They put

it up with no paperwork on my part. Here in VA, it was a little more

difficult but not much. I had to sign a request and provide a paper

signed by a professional that she had a hearing loss. It could be signed by

her TOD, SLP, audiologist or ENT. It only took about 3 weeks from the

initial telephone call to installation of the sign.

I was told that when she turns 14 they will take the sign down.

Barb

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>>me " Does he have a cochlear implant in both ears? " ARGH!!! That women

>>better not touch him!

>

>Wow! Kay, here's a comment for " that's outrageous. "

Actually there are a few folks out there with bilateral implants (at this

point they're all adults), so it's not quite as outrageous as it seems. One

of them is the executive director of the Bolesta Center in Florida, Ellen

Rhoades (Clarion and Nucleus).

http://www.bolesta.com/director.html

>> The public school says that the SLP is just for articulation and that he

>>should get 20 minutes twice a week. That the HI teacher does all the

>audition

>>and language work.

>

>SLP, stands for speech and LANGUAGE pathologist.

>

>My nine year old HoH daughter gets four 30 minute sessions of speech with

>the SLP per week and has for years. Her TOD works on artic and language

>too. So should the speech path.

I was working on a reply to this subject earlier this morning, but ran out

of time. My personal oppinion is that articulation and audition should both

be worked on at the same time, not separated with 2 different providers.

When worked on together, the child can learn to monitor his own speech. If

worked on separately, it's more difficult to teach a child to use what he

hears as a model for his own speech, and to listen to what his speech sounds

like and correct it if necessary. My personal oppinion also is that a

Itinerant TOD is not the best qualified person to work on auditory skills,

unless they have had extensive training in that area. The American

Speech-Language-Hearing Association (ASHA) has a document called " Definition

of and Competencies for Aural Rehabilitation " that outlines the training

they feel is necessary to be qualified to work on Aural Rehabilitation. One

of the tasks I was going to accomplish today was to type up my copy of this

document for anyone who needs it. While I was browsing their site this

morning for something else, I ran across the document in Adobe Acrobat

format. I'll give you the link for a direct download.

http://www.asha.org/references/iv101.pdf

If you don't have the Adobe Acrobat on your computer, you can download the

Free Adobe Acrobat Viewer from here:

http://www.adobe.com/prodindex/acrobat/readstep.html

Kay

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>Kay, do you know Ellen Rhoades from the Bolesta Clinic?

Not personally, but I've corresponded with her a bit by e-mail. She first

contacted me to include a link to the Bolesta Clinic on my web site (I had

the site listed, but didn't have a link to their web site). We corresponded

back and forth for quite a bit. I enjoyed " cyber-chatting " with her. I think

she would be a fascinating person to sit down and talk with about a number

of subjects (including using 2 different implants - but this is one area she

won't talk about due to possible problems with the devices' manufacturers).

I do have an invitation from her that any time I'm in the area to drop in

and meet her and see the clinic in action. You can bet that the next time my

travels take me to that area, I will.

Kay

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At 05:36 AM 5/17/99 -0400, Barbara T. Mellert wrote:

>On another note, my family and I will be at e School July 22-23. Our

older son is being evaluated by the e School those days (bless the

school that he attends - they realize they are not qualified to evaluate

him). do you know what is involved in this eval? I understand it's

pretty much soup to nuts? Are we allowed to be there or do we find

something else to do?!

How old is he?

Who will he be seeing?

Is this part of a VIP program or is he of school age?

Is this part of an independent eval?

Who at e is coordinating?

What kind of testing will be done?

You can email me off the list if you feel more comfortable that way.

Chris

<< Christofer deHahn.................Manager, EDA Systems and Test >>

<< Quantum Corporation...........Shrewsbury, Massachusetts, USA >>

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  • 2 weeks later...
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Good grief! Sounds like they are being unreasonable in my opinion. I agree

with asking for the sign to be up when she takes her first step. I don't know

how the best way is to fight this however. Maybe ask them how they would feel

if it were their daughter who couldn't hear cars beeping. And I would expect

the sign to be replaced when it gets old or vandalized!

In a message dated 5/17/99 4:43:19 AM Eastern Daylight Time,

Listen-Uponelist writes:

>

> << They said call me when she is 3 or 4, because the signs are expense, and

> when you really need it, it will be all faded, or vandalized by the other

> children in the neighborhood. I said, I really don't care about the

> expense, I

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