Guest guest Posted May 27, 2001 Report Share Posted May 27, 2001 Enclosed is a letter I sent to the FDA regarding the drug 4- aminopyridine. If you are taking this drug, please write A similar letter. Check website http://members.aol.com/pilgrim936/ Food and Drug Administration Advisors Consultants and Staff Attn. Jane Executive Secretary Internal compounding Steering Committee 5630 Fishers Lane- Room 1093, HFD-21 Rockville, MD 20857 5/27/2001 Subject: " DOCKET NUMBER 98N-0182 " 4- aminopyridine Dear Jane Please make sure 4-aminopyridine will still be able to be made by pharmacies, and prescribed and used in the USA I have Primary Lateral Sclerosis (PLS), the motor neurons that control my muscles are progressively dying, my legs are spastic, I have been in a wheelchair for the last 5 years. The drug , 4-aminopyridine , reduces my spasms. When I stopped taking it for a short test, my spasms got worse. I have had no side effects. It is prescribed by DR P Weiner, Head of the Neurology Dept. at USC School of Medicine. I have been taking 4AP for nearly 7 years (10mg caps , 3/day) Please approve this drug so it will be covered by my insurance, Tricare Senior Pharmacy Program. Thank for your consideration. Vane E Suter 1818 Alpha Ave. South Pasadena CA 91030-4217 fax vsuter@... Quote Link to comment Share on other sites More sharing options...
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