Re: Welcome to Listen-Up@onelist.com

[Guest guest]

Hi Lee,

This is Tahna... I have a 5 year old daughter Nellie.. She had her implant

surgery in Feb,99 and hooked up in March 99. We went back to the audiologist in

May and Nellie has made tremendous progress... Don't wait on the CI thing, it

was

a decision that I shed many tears over but it will be our " miracle " to help

Nellie hear better...... Tahna

Gralau2@... wrote:

> From: Gralau2@...

>

> Hi! My name is Lee. I have a 8 month old daughter who is profoundly hearing

> impaired. We found out when she was 5 months old. At the moment we have her

> wearing a FM (auditory trainor) and attending speech classes. I would love to

> hear from other parents who are in a similar situation. We are looking into

> cochlear implants and would like any advice parents could give us.

>

> Thank you!

>

> Lee

>

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> We would like to remind you to show respect for all communication choices.

[Guest guest]

> possible in Utah.. Is

> anybody from Utah????

Well, not that you mention it, Dave and I are originally from Utah, but we

haven't lived there since before JD was born. I am a bit upset with the Utah

Schools for the Deaf though because they have yet to pay me the $370 they

owe me from the first of April! They are the only ones who have ever given

me trouble.

Kay

[Guest guest]

Great...... Why do they owe you money Kay?? Have you had a chance to

investigate their programs??? How long ago did you live there? I was hoping

this would be a

good oportunity for Nellie??? Sorry about all the questions, especially about

the Money. Never mind that one....... Tahna

Dave & Kay wrote:

>

>

> > possible in Utah.. Is

> > anybody from Utah????

>

> Well, not that you mention it, Dave and I are originally from Utah, but we

> haven't lived there since before JD was born. I am a bit upset with the Utah

> Schools for the Deaf though because they have yet to pay me the $370 they

> owe me from the first of April! They are the only ones who have ever given

> me trouble.

>

> Kay

>

> ---------------------------

[Guest guest]

> Great...... Why do they owe you money Kay??

They ordered a copy of my program.

> Have you had a chance to investigate their programs???

No I haven't. Whenever we've been back home we've had too many other things

to do than to run to the Granite School District to check it out (they

donate the space for the school for the deaf in Salt Lake).

> How long ago did you live there?

The hubby and I were both born there. When I was pregnant with JD (he's

almost 13 now) he went from Air Force Reserves to Active Duty.

> I was hoping this would be a

> good oportunity for Nellie???

I wish I had more info I could give you. All I can really say is that there

is no AV therapists there, but the SLP's at Primary Children's are supposed

to be very good. But, not having ever met them or seen them in action, one

person's idea of very good could be quite different from mine (and yours).

Also, a few years ago, AVI held their conference at Snowbird, Utah so I

would hope there were some local therapists there who attended and have

learned to apply the principles.

I can tell you that while we were there, the public education really sucked.

My baby brother got within 2 weeks of graduating high school when he dropped

out, and he could barely read - I mean he read only enough to understand

road signs. He has since taught himself how to read, gotten his GED, and

taken some classes at Westminster. Almost all of both of our families still

lives there.

That's about all I can give you on that though. Sorry it wasn't more.

Kay

[Guest guest]

Thanks Kay,

It doesn't sound real good... I'll make sure I do some checking before a

final decision is made.... Tahna

Dave & Kay wrote:

>

>

> > Great...... Why do they owe you money Kay??

>

> They ordered a copy of my program.

>

> > Have you had a chance to investigate their programs???

>

> No I haven't. Whenever we've been back home we've had too many other things

> to do than to run to the Granite School District to check it out (they

> donate the space for the school for the deaf in Salt Lake).

>

> > How long ago did you live there?

>

> The hubby and I were both born there. When I was pregnant with JD (he's

> almost 13 now) he went from Air Force Reserves to Active Duty.

>

> > I was hoping this would be a

> > good oportunity for Nellie???

>

> I wish I had more info I could give you. All I can really say is that there

> is no AV therapists there, but the SLP's at Primary Children's are supposed

> to be very good. But, not having ever met them or seen them in action, one

> person's idea of very good could be quite different from mine (and yours).

> Also, a few years ago, AVI held their conference at Snowbird, Utah so I

> would hope there were some local therapists there who attended and have

> learned to apply the principles.

>

> I can tell you that while we were there, the public education really sucked.

> My baby brother got within 2 weeks of graduating high school when he dropped

> out, and he could barely read - I mean he read only enough to understand

> road signs. He has since taught himself how to read, gotten his GED, and

> taken some classes at Westminster. Almost all of both of our families still

> lives there.

>

> That's about all I can give you on that though. Sorry it wasn't more.

>

> Kay

>

> ---------------------------

[Guest guest]

Hi everyone, I'm new to this list so here is my introduction ~ kind of a

revised letter that I already sent to Kay. :-)

My name is and I am a 28 year old mother of three children. My

middle child, my only girl, will be 3 years old in September. She has

suffered from chronic ear infections with fluid behind her ears for over 2

years and just had her second set of ear tubes put in and her adenoids

removed. She also has calcium deposits on the bones of her middle ear

(tympanosclerosis?).

I have no definate diagnosis that she has a hearing loss because

everytime we've tried to do the hearing tests we discovered that her ears had

fluid behind them yet again. The preliminary results of her hearing tests

showed that she hears at 40-50db in the lower frequencies and the rest are

about 20db. I was told that's what conductive hearing loss would look like

on an audiogram. I also heard that conductive hearing loss is usually

reversible or temporary.

She has had many typanograms done and they always show a flat line so I

guess her eardrum isn't vibrating like it should. Maybe if the fluid is gone

that will improve, but even when we thought her ears were clear we don't get

a curve. She is obviously speech delayed although she speaks in full

sentences, her words are not clear and I am the only one who can understand

what she is saying....sometimes I can't even understand her.

I'll find out more about her hearing and speech in late September when

the University clinic opens back up after their summer break. Looking

forward to sharing with you all!

[Guest guest]

> I also heard that conductive hearing loss is usually

> reversible or temporary.

Also, how well one responds to hearing aids is different with a conductive

loss than a sensorineural loss. I've got an excellent page on that:

http://members.tripod.com/listenup/with-aid.htm

Kay

[Guest guest]

Welcome

Terry

[Guest guest]

Welcome Eleanor! My name is Jana and I have a 14 yr old son who is

autistic/hearing impaired.

His hearing loss was not dx'd until 4 yrs and the autism not until 6

yrs, so I understand getting a late start on things, but it is something

not to be discouraged about - you go with what you know, when you know

it. I could really relate to you saying that you are " in the process "

of learning to sign. We have been signing with Matt for over 8 yrs and

I am still " in the process " ! I don't have any ideas about the pain that

's experiencing, except to say keep looking until you find

someone who can help. Hopefully someone else on the list might have a

suggestion for you. I'm sure you'll find over time that there's a

wealth of knowledge and support to be found here.

Glad to have you here,

Jana

[Guest guest]

In a message dated 8/14/99 6:11:54 PM Pacific Daylight Time,

accounts@... writes:

<< he education here is not great for deaf kids. My son is in a total

communication class with seven kids: four preschoolers, one fourth grader

and two fifth graders. The state has no standards for interpreters in the

schools, so when the kids go to mainstream situations, the aide who

accompanies them can (and often does) have lousy sign language skills, and

no interpreter skills. We work hard at home too, so my son (4-1/2) is doing

well, fortunately. Not sure what the future will be like. We may have to

relocate in a few years. >>

I would imagine it to be really difficult to teach preschoolers, fourth and

fifth graders all in one class. Even if you had " teacher of the year " , I

cant imagine it being very effective. I'm sorry to hear there are no

qualified interpreters there. If the cost of living werent so high there,

I'd consider moving back there-its a beautiful place!

Terry

[Guest guest]

Hi Terry,

The education here is not great for deaf kids. My son is in a total

communication class with seven kids: four preschoolers, one fourth grader

and two fifth graders. The state has no standards for interpreters in the

schools, so when the kids go to mainstream situations, the aide who

accompanies them can (and often does) have lousy sign language skills, and

no interpreter skills. We work hard at home too, so my son (4-1/2) is doing

well, fortunately. Not sure what the future will be like. We may have to

relocate in a few years.

Dixie

(I've been on vacation--sorry it's taken my a while to respond!)

>From: Theathdi@...

>

>In a message dated 7/30/99 10:38:43 AM Pacific Daylight Time,

>accounts@... writes:

>

><< Hi Terry,

>

> We live on Hawaii, the Big Island, about 15 miles north of Hilo. Where were

> you? >>

>I lived on Oahu. I was stationed there while I was in the Navy. After

>discharge, I stayed there for one year. I lived in Wailua (Turtle Bay side)

> Is there a school for the deaf on the big island or do they have to go to

>Oahu? How do u feel the education is there?

>Terry

>

>---------------------------