Re: So sick of stares & ready to quit - Deb

[Guest guest]

Deb-

I had to comment about Aidan's helmet - I LOVE IT!!! He is

absolutely adorable in and out of it! I wish we could've painted

Jaxson's but they said no paint. Stickers are what we did and if I

ever get the chance, I will put some in the photo section!

Kim

--- In Plagiocephaly , " Deborah Choi " <dchoi@s...>

wrote:

> Kim - I am sorry you are feeling so down about the helmet. First

off remember that Jaxson most likely has no idea that any of this is

happening. The most important part is him and his feelings and I

would think he doesn't really know that people are staring. When I

see people staring I say in a really loud voice " oh look Aidan, that

woman thinks you are beautiful and she can't stop looking at you! "

Usually makes them embarrassed enough to look away. That said..

>

> Is Jax's band decorated? I am not sure if you saw the picture of

Aidan's, but his decoration is pretty elablorate. I get tons of

people that come up to me and ask me about it. I really like it when

people ask me about the helmet and what it is for. The most common

comment I get is " oh poor thing, did he hurt his head? " . I think that

one is pretty funny - do they think the helmet is holding in his

brain or something?? Either way, I have found that with the helmet

decorated people will look - but then feel comfortable to come over

and ask. I have no problem with them asking, people should know. And

a very common answer I get it " oh my son/daughter/sibling had that, I

wish they had those when we were younger! "

>

> The few rude stares I have gotten I have said something to the

people. My mom told me to ignore it but I didn't feel like it. Maybe

people don't know about plagio but they darn well should know about

common decency!!

>

> I hope it gets easier for you!

>

> Deb w/ Aidan C.

>

> So sick of stares & ready to quit - little long

>

>

> Hello all -

> I am sure all of you that have had your little ones in a helmet

have

> went through this, and somehow managed. The first time I took

Jaxson

> out with his helmet, Dec. 6th (3 days after he got it) I had a

bad

> experience with someone asking me if it was to stop him from

banging

> his head. I explained it to her, nicely, but all along my eyes

> welling up.

>

> After that day, I told his PT about it and she said it really

needs

> to be known, more public, what a helmet is for. She suggested I

call

> the newspapers, news channels, etc. I emailed them all, haven't

heard

> anything yet (just did this on Thursday). I want more people

around

> my area to know about it.

>

> Well, I wanted so badly to just be done with the helmet this

> weekend. First, I was in Wal-Mart picking up stocking stuffers

and

> decided to check out their sticker department. I had noticed all

> along people just kind of looking at Jax, but a little glance was

> ok.. I was ok with it. In the stickers, this woman stopped right

next

> to my cart, STARING at Jax. She didn't say anything. I said

nothing.

> Yet. She walked away, turned around, and CAME BACK to stare MORE.

She

> stood there looking at him like he was a side show at the fair or

> something. I asked her in not so nice of a tone what she was

staring

> at and just ASK already. She said nothing and walked away. I was

sooo

> mad.

>

> To top it all off, I went Christmas shopping at the mall

yesterday

> along with Jaxson. All kinds of people just stared at him like he

was

> a freak. I wanted to pretend it was because he's so darn cute,

but

> after the 15th, 20th time of hearing the comments after they

walked

> by, I couldn't take it any longer.

>

> I want to take it off and keep it off him. I don't want to go out

in

> public this way again with people commenting, but never asking. I

> feel so stupid because I'm crying right now typing this. Bawling

> actually. It has only been 12 days in this helmet and I am now

> emotionally, a mess. I dread going out in public. Jax's dad tells

me

> to ignore it, but how can I? I can tell if someone is staring and

> it's just not right, not polite.

> More needs to be done to have this out there, to have more

> information out there. Any suggestions or help, BESIDES locking

me up

> in an institution...

>

>

> Kim

> mom to Kaela (age 9) and Jaxson 5 months w/plagio/tort CranioCap

> 12/3/03

>

>

>

[Guest guest]

thank you! I also love the helmet. It made it easier for me to deal with having it on him. Not like he seems to even notice.

Deb

So sick of stares & ready to quit - little long> > > Hello all - > I am sure all of you that have had your little ones in a helmet have > went through this, and somehow managed. The first time I took Jaxson > out with his helmet, Dec. 6th (3 days after he got it) I had a bad > experience with someone asking me if it was to stop him from banging > his head. I explained it to her, nicely, but all along my eyes > welling up. > > After that day, I told his PT about it and she said it really needs > to be known, more public, what a helmet is for. She suggested I call > the newspapers, news channels, etc. I emailed them all, haven't heard > anything yet (just did this on Thursday). I want more people around > my area to know about it. > > Well, I wanted so badly to just be done with the helmet this > weekend. First, I was in Wal-Mart picking up stocking stuffers and > decided to check out their sticker department. I had noticed all > along people just kind of looking at Jax, but a little glance was > ok.. I was ok with it. In the stickers, this woman stopped right next > to my cart, STARING at Jax. She didn't say anything. I said nothing. > Yet. She walked away, turned around, and CAME BACK to stare MORE. She > stood there looking at him like he was a side show at the fair or > something. I asked her in not so nice of a tone what she was staring > at and just ASK already. She said nothing and walked away. I was sooo > mad. > > To top it all off, I went Christmas shopping at the mall yesterday > along with Jaxson. All kinds of people just stared at him like he was > a freak. I wanted to pretend it was because he's so darn cute, but > after the 15th, 20th time of hearing the comments after they walked > by, I couldn't take it any longer. > > I want to take it off and keep it off him. I don't want to go out in > public this way again with people commenting, but never asking. I > feel so stupid because I'm crying right now typing this. Bawling > actually. It has only been 12 days in this helmet and I am now > emotionally, a mess. I dread going out in public. Jax's dad tells me > to ignore it, but how can I? I can tell if someone is staring and > it's just not right, not polite. > More needs to be done to have this out there, to have more > information out there. Any suggestions or help, BESIDES locking me up > in an institution... > > > Kim> mom to Kaela (age 9) and Jaxson 5 months w/plagio/tort CranioCap > 12/3/03> > >