Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 Welcome, Enid. I have emailed you my story in private so as not to bore some of the group. Hope you get as much information and help as I have gotten from this group! Sorry you are here, but it is good that you have come here with your questions about your disease. Laurel New Friend > Hi Friends, > > I'm new to this list and would like to introduce myself. My name is Enid > Graf and I have just been dxed with PLS. > > My symptoms so far are slow and slurred speech, weakness in the muscles, > mostly on the right side, and some trouble swallowing. I am interested in > other people's symptoms at onset and how the symptoms progressed. > > I look forward to chatting with you all. > > Speak to you soon, > Enid > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 Hi Enid, I also have sent you my story directly to you. Welcome and tell us more about you, where you live etc.. Rita Luv & Hugs! ************************************* Some people succeed in spite of their handicap. Others succeed because of them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 grafenid@... Welcome Enid, I sent my symptom info straight to you because others in the group have already heard from me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2001 Report Share Posted May 26, 2001 Welcome to our group, Enid. I will post my story to you directly as others have been doing. I'd like to add for the new people, and as a reminder for the people who have been around for quite a while, that one of the people in our group, Thomson, started a website quite a long time ago, that you might want to visit. The website is http://www.geocities.com/mdmfoo/pls.html. Click on PLSers Data, and you can see the progression of the people who have included their data. You might want to add your data too. I find it interesting to compare and some people have listed things that I hadn't thought about. Have a safe Memorial Day weekend to all. Gentner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2001 Report Share Posted May 31, 2001 Hi Enid, Welcome to our group. I have a website that has a page for PLSers to send in data. You might want to look it up. Here is the address: http://www.geocities.com/mdmfoo/Data.html There are 14 PLSers that have submitted thier data to date. I'd love to get more. Thomson --- enid graf wrote: > Hi Friends, > > I'm new to this list and would like to introduce > myself. My name is Enid > Graf and I have just been dxed with PLS. > > My symptoms so far are slow and slurred speech, > weakness in the muscles, > mostly on the right side, and some trouble > swallowing. I am interested in > other people's symptoms at onset and how the > symptoms progressed. > > I look forward to chatting with you all. > > Speak to you soon, > Enid > > _________________________________________________________________ > Get your FREE download of MSN Explorer at > http://explorer.msn.com > > ===== Thomson, Solana Beach, CA www.geocities.com/mdmfoo/pls.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2001 Report Share Posted June 2, 2001 Hi group: I have just signed up for your friends group and wanted to introduce myself. My name is and my husband has been diagnosed with PLS. I am looking for any information about this disease, but also just for some other people who are dealing with this. My husband has had symptoms for about the last 5 years; the progression is slow but steady. He uses a 3 wheel walker in the house and a wheel-chair to manuever at work. His weakness is getting worse and some mornings he has a difficult time getting out of bed and is having more and more difficulty getting dressed. As each stage of the disease presents itself, we try to come up with solutions to make life easier. He cannot tolerate Baclefen as it causes too much weakness in his legs. He is having good luck with quinine for the cramping and pain. He takes vitamins and potassium, which also seem to help. I have recently suggested that he take CoQ10, but he has not given me feedback as to whether it is helping. Like I said, any information is welcome, but I just also need to know that we aren't the only ones dealing with this. Each progression is difficult for both of us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2001 Report Share Posted June 2, 2001 Hi Welcome to the group: I have sent my story a long directly to you, as to not to repeat myself. If I can be of any further help, please do not hesitate to contact me anytime. Rita Luv & Hugs! ************************************* Some people succeed in spite of their handicap. Others succeed because of them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2001 Report Share Posted June 2, 2001 Welcome ljmack: I am sorry that you and your husband have to belong to this group, but you have definately come to the right place. This is where I learned 90% of my information, and have gotten the most help and support. Stick around, share more of your story, and ask, ask, and ask all the questions you want. I am 53, female, and was diagnosed in Sept. 1999. I am quite mildly affected in only my legs. I walk slowly most of the time, with spasticity and weakness the biggest leg problems. My balance is not very good either, but I still work 4 days a week, do all my own housework, yardwork, and exercise as much as I can. Fatigue is also one of my biggest symptoms, and I have just begun to take the CoQ10, and I think it is helping. Take care and welcome. God bless you both. Laurel New friend > Hi group: > I have just signed up for your friends group and wanted to introduce > myself. My name is and my husband has been diagnosed with PLS. > I am looking for any information about this disease, but also just > for some other people who are dealing with this. My husband has had > symptoms for about the last 5 years; the progression is slow but > steady. He uses a 3 wheel walker in the house and a wheel-chair to > manuever at work. His weakness is getting worse and some mornings he > has a difficult time getting out of bed and is having more and more > difficulty getting dressed. As each stage of the disease presents > itself, we try to come up with solutions to make life easier. He > cannot tolerate Baclefen as it causes too much weakness in his legs. > He is having good luck with quinine for the cramping and pain. He > takes vitamins and potassium, which also seem to help. I have > recently suggested that he take CoQ10, but he has not given me > feedback as to whether it is helping. Like I said, any information > is welcome, but I just also need to know that we aren't the only ones > dealing with this. Each progression is difficult for both of us. > > > > > Quote Link to comment Share on other sites More sharing options...
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