Re: So sick of stares - To Kim

[Guest guest]

Hello Kim... I can identify with what you're feeling. Ignacio was

banded 2 weeks ago and, as far as I know, he is the only banded baby

in Puerto Rico at present time. Treatment is not available in our

area so it is really an unknown condition to my neighbors and

friends.

I have gone out with Ignacio and I receive the stares. I was sort

of accustomed to the stares since I have twin boys so everyone find

it extremely annoying. Maybe the difference is that, by nature,

puertorricans are really curious and every time I go out I get the

stares and the fifty questions. The most difficult part is when

people don't understand why I banded Ignacio and respond to my

explanation that they believe it would have rounded up on its own

because they know someone that rounded up... Its fustrating.

I believe that we have to put a protective armor and let every

stare, every comment... just slide through. You have to remember

the main reason why you banded your son... for his own good, and

that should be enough to get you through this tough times. If not,

just think taht times really flies and just when you get accustomed

to all this it will come to an end and your son will have the round

head we are all hoping for.

Don't give up and always remeber that there are people that are in a

worse situation than us.

Annie

Mom to twins, Ignacio (DOC 12/2/03) and

San , PR

--- In Plagiocephaly , " kasaint_2 " <kasaint_2@y...>

wrote:

> Hello all -

> I am sure all of you that have had your little ones in a helmet

have

> went through this, and somehow managed. The first time I took

Jaxson

> out with his helmet, Dec. 6th (3 days after he got it) I had a bad

> experience with someone asking me if it was to stop him from

banging

> his head. I explained it to her, nicely, but all along my eyes

> welling up.

>

> After that day, I told his PT about it and she said it really

needs

> to be known, more public, what a helmet is for. She suggested I

call

> the newspapers, news channels, etc. I emailed them all, haven't

heard

> anything yet (just did this on Thursday). I want more people

around

> my area to know about it.

>

> Well, I wanted so badly to just be done with the helmet this

> weekend. First, I was in Wal-Mart picking up stocking stuffers and

> decided to check out their sticker department. I had noticed all

> along people just kind of looking at Jax, but a little glance was

> ok.. I was ok with it. In the stickers, this woman stopped right

next

> to my cart, STARING at Jax. She didn't say anything. I said

nothing.

> Yet. She walked away, turned around, and CAME BACK to stare MORE.

She

> stood there looking at him like he was a side show at the fair or

> something. I asked her in not so nice of a tone what she was

staring

> at and just ASK already. She said nothing and walked away. I was

sooo

> mad.

>

> To top it all off, I went Christmas shopping at the mall

yesterday

> along with Jaxson. All kinds of people just stared at him like he

was

> a freak. I wanted to pretend it was because he's so darn cute, but

> after the 15th, 20th time of hearing the comments after they

walked

> by, I couldn't take it any longer.

>

> I want to take it off and keep it off him. I don't want to go out

in

> public this way again with people commenting, but never asking. I

> feel so stupid because I'm crying right now typing this. Bawling

> actually. It has only been 12 days in this helmet and I am now

> emotionally, a mess. I dread going out in public. Jax's dad tells

me

> to ignore it, but how can I? I can tell if someone is staring and

> it's just not right, not polite.

> More needs to be done to have this out there, to have more

> information out there. Any suggestions or help, BESIDES locking me

up

> in an institution...

>

>

> Kim

> mom to Kaela (age 9) and Jaxson 5 months w/plagio/tort CranioCap

> 12/3/03