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Welcome Back Deb!!! Glad to have you with us!!

*warm smile*

aka Annie from Sioux City, Iowa

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  • 2 months later...

Hi, Maggie, my name is Sally --- Welcome. I'm glad that you found this

site. This is a very friendly bunch. Sorry you were unable to find your

ALS/PLS meeting, perhaps you can contact them by phone and arrange to meet

someone who knows the way and follow them.

I am 40 y/o single mom of two boys. Ben is 14 and is 11. I was

diagnosed last Sept. 2000 with PLS. Good luck to you.

hello

> My name is Maggie and I've just tonight found this list.

> I think it almost prophetic that it was tonight. I was to attend my

> first ALS/PLS support meeting tonight. We got lost and never did

> find the meeting, so I came home a bit sad. I came online and

> started surfing and found my way here. :)

> I am 53 y/o and was first diagnosed with PLS 3 years ago.

> I am married and have 2 children, 18 & 22.

> I am hoping that I'll be able to contribute here as well as learn and

> meet many knew friends who are traveling this same path.

> thanks

> maggie

>

>

>

>

>

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  • 2 weeks later...

Dear Maggie & Friends,

All of us, my wife, my son & me are fine. The quake hit almost all towns

near Baroda where we live. But Baroda itself was not hit! Ahmedabad which is

affected, as you all would have seen in the News, is only 60 miles North of

Baroda.

On Friday morning at 8.40 we felt the floor shaking for just 10 seconds.

Nothing else happened. Phone Electricity water all are in tact-not affected.

But as a precaution I have been avoiding my computer room. That's why I

didn't send any mail. Sorry for that.

I have been sitting and sleeping near my main entrance door so in case of

after shock I can 'RUSH!' out of my house. I stay on theground floor of my

single storied house.

Thanks to all for your concern. I will write in detail later.

Jagan.

hello

Dear Jagun,

I hope you are ok after the earthquake. My thoughts are with you and I've

been very worried and concerned for you and your loved ones.

I know that communications may be disrupted where you are and I pray that

is all that is wrong.

Love and best wishes,

your friend with PLS

maggie

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So happy to hear you and your family are OK. kathy

cjagan@... wrote:

> Dear Maggie & Friends,

> All of us, my wife, my son & me are fine. The quake hit almost all towns

> near Baroda where we live. But Baroda itself was not hit! Ahmedabad which is

> affected, as you all would have seen in the News, is only 60 miles North of

> Baroda.

>

> On Friday morning at 8.40 we felt the floor shaking for just 10 seconds.

> Nothing else happened. Phone Electricity water all are in tact-not affected.

> But as a precaution I have been avoiding my computer room. That's why I

> didn't send any mail. Sorry for that.

> I have been sitting and sleeping near my main entrance door so in case of

> after shock I can 'RUSH!' out of my house. I stay on theground floor of my

> single storied house.

>

> Thanks to all for your concern. I will write in detail later.

> Jagan.

>

> hello

>

> Dear Jagun,

> I hope you are ok after the earthquake. My thoughts are with you and I've

> been very worried and concerned for you and your loved ones.

>

> I know that communications may be disrupted where you are and I pray that

> is all that is wrong.

>

> Love and best wishes,

>

> your friend with PLS

>

> maggie

>

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We all mourn for the many tragedies that the recent earthquakes have

caused in your country. I was happy to hear that you and your family

were spared harm. It is difficult for me to even visualize the horror

of such a large set of quakes. My most severe experience was the Loma

Prieta quake that occurred in my area over a decade ago. It was as

nothing when compared to yours. My best to you, yours and your fellow

countryman.

Levy

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  • 3 weeks later...

Hello, My name is Anne . I just joined the PLS Friends group and the News Group. I can't tell you how wonderful it is to be in touch will people who have the same disease. I was diagnosed with PLS at the Mayo clinic in Oct of 1999. I had been having symptoms for about five years prior, however no one was able to give me a diagnosis. I live in Syracuse, N.Y with my husband and have three grown children and three grandchildren. The grandchildren ( ages 1,2,5) keep me going and bring me so much joy. They love ridding my scooter with me and we go everywhere we are able. Prior to being sick I worked for 33 years as a nurse in the perioperative area of our local hospitals. It was so hard to finally have to give in to the disease and quit work. My fatigue was so overwhelming and it became so difficut to walk. It is a pleasure reading the e-mail from everyone. I too, have many of the same problems and struggle for answers. Roy, I hope your surgery went well. I thought of you today. I will keep in touch. Love Anne Get your FREE download of MSN Explorer at http://explorer.msn.com

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Hi Anne:

Welcome to the group. I too was diagnosed at the Mayo Clinic in September of 1999. Sorry you have

to have PLS, but you have come to the right place for friendship, information, and support. This is a good bunch of people.

I am quite mildly affected as yet, with my 2 biggest problems being the fatigue, as you mentioned, and balance. I work part-time in an Oncology Unit of our Medical Center. Take care, stick around, and God bless.

Laurel

Hello

Hello,

My name is Anne . I just joined the PLS Friends group and the News Group. I can't tell you how wonderful it is to be in touch will people who have the same disease.

I was diagnosed with PLS at the Mayo clinic in Oct of 1999. I had been having symptoms for about five years prior, however no one was able to give me a diagnosis.

I live in Syracuse, N.Y with my husband and have three grown children and three grandchildren. The grandchildren ( ages 1,2,5) keep me going and bring me so much joy. They love ridding my scooter with me and we go everywhere we are able.

Prior to being sick I worked for 33 years as a nurse in the perioperative area of our local hospitals. It was so hard to finally have to give in to the disease and quit work. My fatigue was so overwhelming and it became so difficut to walk.

Get your FREE download of MSN Explorer at http://explorer.msn.com

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WELCOME MARY ANN,

MY NAME IS BONNIE. MY HUSBAND DONALD (DON) IS OUR PLSer. HE DOES NOT USE THE COMPUTER SO I HAVE TO

EITHER DRAG HIM OVER TO READ OR PRINT THINGS OFF FOR HIM TO READ. HE WAS DIAGNOSED IN OCT OF 2000.

HE HAD TO RETIRE 6 MONTHS EARLY AND JUST HAD HIS 65TH BIRTHDAY IN JANUARY. HE WAS PUT ON DISABILITY

AS SOON AS HE WAS DIAGNOSED.

WE HAVE JUST CHANGED HIS DOCTOR. THE FIRST ONE DIAGNOSED HIM AND FROM WHAT WE HAVE BEEN TOLD HERE ON THE FRIENDS GROUP WE WERE LUCKY THAT IT ONLY TOOK A YEAR. THE NEW DOCTOR WILL BE CONFIRMING HIS DIAGNOSES. THIS ONE IS AT LEAST TREATING HIM THAT IS MORE THAN THE FIRST ONE DID. SO WE ARE STARTING OVER.

WE ARE PLANNING ON A PLS CONNECTION TO BE HELD IN OHIO ON JULY 13TH.

THIS IS OPEN TO ANYONE INTERESTED. THE ONLY THING I WOULD LIKE TO KNOW IS INCLUDED IN A FORM THAT I DEVELOPED SO THAT I CAN FIGURE WHAT WE ARE GOING TO NEED. I HAVE SOME NEW DEVELOPMENTS AND WILL BE ANNOUNCING THEM SOON. I WILL ALSO INCLUDE THE FORM SO THAT THE NEW PEOPLE WILL HAVE IT.

HOPE YOU CAN MAKE IT.

DON & BONNIE

Hello

Hello,

My name is Anne . I just joined the PLS Friends group and the News Group. I can't tell you how wonderful it is to be in touch will people who have the same disease.

I was diagnosed with PLS at the Mayo clinic in Oct of 1999. I had been having symptoms for about five years prior, however no one was able to give me a diagnosis.

I live in Syracuse, N.Y with my husband and have three grown children and three grandchildren. The grandchildren ( ages 1,2,5) keep me going and bring me so much joy. They love ridding my scooter with me and we go everywhere we are able.

Prior to being sick I worked for 33 years as a nurse in the perioperative area of our local hospitals. It was so hard to finally have to give in to the disease and quit work. My fatigue was so overwhelming and it became so difficut to walk.

It is a pleasure reading the e-mail from everyone. I too, have many of the same problems and struggle for answers.

Roy, I hope your surgery went well. I thought of you today.

I will keep in touch.

Love

Anne

Get your FREE download of MSN Explorer at http://explorer.msn.com

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