Guest guest Posted November 5, 2006 Report Share Posted November 5, 2006 Anyone try this? >At 12:14 PM 11/5/2006, you wrote: >Hello, ma'am. My name is and I came across an entry of yours in a >fansite for Clay Aiken. The message you posted was regarding a friend of >yours who was diagnosed with MS. I posted some information that may be >able to help her: >My aunt was diagnosed with MS about 2 years ago. As far as I know there is >no cure. She is currently on a medicine called Rebif, which is suppose to >delay the symptoms of MS. Your friend may want to check into this. It's a >shot that you give yourself 3 times a week. Almost like taking insulin. >It's not as bad as it sounds - I am completely phobic of needles and I've >had to give her the shot a few times. If you want more information on how >Rebif helps or how to go about getting it you can check out their website >at <http://www.rebif.com/>www.rebif.com. She can also join something >called " MS Lifelines " where you can discuss any problems with live help. I >know they've helped my aunt a lot, and hopefully they'll do the same >for your friend. I hope this helps. I'll keep her in my prayers. > >Sam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 Hi, I've been on Rebif for almost 6 years would love to share. Dawn...........dawnparker18@... > >Hello, ma'am. My name is and I came across an entry of yours in a > >fansite for Clay Aiken. The message you posted was regarding a friend of > >yours who was diagnosed with MS. I posted some information that may be > >able to help her: > >My aunt was diagnosed with MS about 2 years ago. As far as I know there is > >no cure. She is currently on a medicine called Rebif, which is suppose to > >delay the symptoms of MS. Your friend may want to check into this. It's a > >shot that you give yourself 3 times a week. Almost like taking insulin. > >It's not as bad as it sounds - I am completely phobic of needles and I've > >had to give her the shot a few times. If you want more information on how > >Rebif helps or how to go about getting it you can check out their website > >at <http://www.rebif.com/>www.rebif.com. She can also join something > >called " MS Lifelines " where you can discuss any problems with live help. I > >know they've helped my aunt a lot, and hopefully they'll do the same > >for your friend. I hope this helps. I'll keep her in my prayers. > > > >Sam > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 Hi , Are you asking if anyone has tried Rebif? My neuro strongly encouraged me to start Rebif as soon as I was diagnosed with MS. Rebif is an immune altering drug that has a ton of unpleasant side effects. Flu like symptoms, pain, redness and possible infection at the injection site, and depression. On another MS forum, that that has several members on Rebif, so many of them have complained about the side effects, or shared their unpleasant experiences, including a couple who had an injection side turn black with infection, and necrosis. The coon MS treatment drugs are very expensive, and NONE of them offer a cure for MS, they are only designed to " slow down " the progression of the disease. I decided that Rebif, or any of the CRAB drugs were not for me, I refused to take any of the common drugs that are used to treat MS. I joined this group because MS CURED is for people who are looking for natural alternative treaments, and remedies for MS. We don't just want a drug will that only slow down the progress of MS, and leave in it's wake a myriad of unpleasant, and even dangerous side effects. We are searching for the actual cause of MS, which will lead us to the actual CURE for MS. Cara > >Hello, ma'am. My name is and I came across an entry of yours in a > >fansite for Clay Aiken. The message you posted was regarding a friend of > >yours who was diagnosed with MS. I posted some information that may be > >able to help her: > >My aunt was diagnosed with MS about 2 years ago. As far as I know there is > >no cure. She is currently on a medicine called Rebif, which is suppose to > >delay the symptoms of MS. Your friend may want to check into this. It's a > >shot that you give yourself 3 times a week. Almost like taking insulin. > >It's not as bad as it sounds - I am completely phobic of needles and I've > >had to give her the shot a few times. If you want more information on how > >Rebif helps or how to go about getting it you can check out their website > >at <http://www.rebif.com/>www.rebif.com. She can also join something > >called " MS Lifelines " where you can discuss any problems with live help. I > >know they've helped my aunt a lot, and hopefully they'll do the same > >for your friend. I hope this helps. I'll keep her in my prayers. > > > >Sam > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 Hi , I agree with Cara %100. I was on Rebif for a year and I stopped taking it. I wouldn't go back. I am now drug free and looking for a cure. > > >Hello, ma'am. My name is and I came across an entry of > yours in a > > >fansite for Clay Aiken. The message you posted was regarding a > friend of > > >yours who was diagnosed with MS. I posted some information that > may be > > >able to help her: > > >My aunt was diagnosed with MS about 2 years ago. As far as I know > there is > > >no cure. She is currently on a medicine called Rebif, which is > suppose to > > >delay the symptoms of MS. Your friend may want to check into > this. It's a > > >shot that you give yourself 3 times a week. Almost like taking > insulin. > > >It's not as bad as it sounds - I am completely phobic of needles > and I've > > >had to give her the shot a few times. If you want more > information on how > > >Rebif helps or how to go about getting it you can check out their > website > > >at <http://www.rebif.com/>www.rebif.com. She can also join > something > > >called " MS Lifelines " where you can discuss any problems with > live help. I > > >know they've helped my aunt a lot, and hopefully they'll do > the same > > >for your friend. I hope this helps. I'll keep her in my prayers. > > > > > >Sam > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 > > Hi , > I agree with Cara %100. I was on Rebif for a year and I stopped > taking it. I wouldn't go back. I am now drug free and looking for a > cure. This matches my experience also. I was on Rebif for about 8 months and quit because 1) I got waaay worse (tho I think that would have happened anyway) 2) I was tired of feeling even krappier 3x a week -Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 hello I am looking for the best place for treatment I live IN CT NEar NYC and theres not much going on here MY wife parlised and the DRs are doing not much . I ben taking care of her for 20 years and it has staRTED TO TAKE ME DOWN . WITH NO HOPE SO IN ANYONE KNOWS A PLACE IN THE STATES LET ME kNOw LOOKING TO Calf she has famaly there Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 Dear Colleen, Welcome to the group! Here is a site that has good advice for you: http://tinyurl.com/grpm9 With best wishes, Dudley Delany http://profiles.yahoo.com/dudley_delany Quote Link to comment Share on other sites More sharing options...
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