Re: Thanks , and they canceled the IV Steroids

[Guest guest]

Hi Marge,

The issues that you have sound like alot (I use to have sessions

of IV predisone). I was diagnosed in 2003, but based on hind site I

would say that it began in my 20's (40 now).

I can understand the difficulty walking issue. I started using a

cane in 2004 and now I will probably need a walker, but I still feel

like fighting this sickness. I have made some pretty serious changes

in my diet and that is the first places to start. I had my mercury

fillings removed about a year ago(another step). I try to keep

hydrated as much as possible (at least 6 cups per day). I also eat

high fiber cereals with flax seeds (It took a while, but I really

enjoy it now).

The toughest part is say no to medication. I believe GOD made

this body to heal itself if we give it the right (truly

natural/organic) foods.

I hope that helps.

>

>

> Hi :

> Thank you for writing. I have been dealing with MS symptoms for

years on

> my own, as the doctors in my area refused to acknowledge that I

could have

> MS.

[Guest guest]

Hi Marge,

The issues that you have sound like alot (I use to have sessions

of IV predisone). I was diagnosed in 2003, but based on hind site I

would say that it began in my 20's (40 now).

I can understand the difficulty walking issue. I started using a

cane in 2004 and now I will probably need a walker, but I still feel

like fighting this sickness. I have made some pretty serious changes

in my diet and that is the first places to start. I had my mercury

fillings removed about a year ago(another step). I try to keep

hydrated as much as possible (at least 6 cups per day). I also eat

high fiber cereals with flax seeds (It took a while, but I really

enjoy it now).

The toughest part is say no to medication. I believe GOD made

this body to heal itself if we give it the right (truly

natural/organic) foods.

I hope that helps.

>

>

> Hi :

> Thank you for writing. I have been dealing with MS symptoms for

years on

> my own, as the doctors in my area refused to acknowledge that I

could have

> MS.

[Guest guest]

> >

> >

> > Hi :

> > Thank you for writing. I have been dealing with MS symptoms

for

> years on

> > my own, as the doctors in my area refused to acknowledge that I

> could have

> > MS.

>

HEY DAWN HERE THE DR GAVE S M TO STRAIGHTEN OUT MY VISION

SINCE IM SEEING DOUBLE EVEN THOUGH I LOOK STRAIGHT AHEAD WHAT DO ANY

OF YA SUGGEST TO TAKE TO HELP WITH THIS

[Guest guest]

HI are you taking any supplements? My sister has the same story as

you...

She walks at least a few miles a day now......The steriods in 2004 put her in

a bad place but she overcame and is doing awesome!!!

dawn_rdmb wrote:

> >

> >

> > Hi :

> > Thank you for writing. I have been dealing with MS symptoms

for

> years on

> > my own, as the doctors in my area refused to acknowledge that I

> could have

> > MS.

>

HEY DAWN HERE THE DR GAVE S M TO STRAIGHTEN OUT MY VISION

SINCE IM SEEING DOUBLE EVEN THOUGH I LOOK STRAIGHT AHEAD WHAT DO ANY

OF YA SUGGEST TO TAKE TO HELP WITH THIS

" The Doctor of the Future will give no medicine, but will interest his

patients in the Care of the Human frame, in diet, and in the cause and

prevention of disease. " - Edison

http://www.reliv.com/us/snapshot/index.html

[Guest guest]

Hi ,

I tried glyconutients (3 weeks - mannatech), but because of the

cost I won't be able to continue(SSDI income). Other than that, a

whole food suppliment calleed juice plus and as many organic foods as

possible ( about 70% of my intake ).

I am glad to hear that your sister is doing well. I use to jog a

mile a day, and with patience and persiverance, those days will come

again.

Any suggestions on suppliments?

> > >

> > >

> > > Hi :

> > > Thank you for writing. I have been dealing with MS symptoms

> for

> > years on

> > > my own, as the doctors in my area refused to acknowledge that I

> > could have

> > > MS.

> >

> HEY DAWN HERE THE DR GAVE S M TO STRAIGHTEN OUT MY VISION

> SINCE IM SEEING DOUBLE EVEN THOUGH I LOOK STRAIGHT AHEAD WHAT DO

ANY

> OF YA SUGGEST TO TAKE TO HELP WITH THIS

>

>

>

>

>

>

> " The Doctor of the Future will give no medicine, but will

interest his patients in the Care of the Human frame, in diet, and in

the cause and prevention of disease. " - Edison

> http://www.reliv.com/us/snapshot/index.html

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi , I have some suggestions for supplements. Omega 3 (fish, flaxseed oil

or both), sublingual methyl B-12, minerals (liquid minerals have worked better

for me, Himalayan sea salt is good too, for minerals and electrolytes) and

digestive and systemic enzymes. You seem to be doing well, but let's try to

keep you walking! I call my MS " RMS " for remitting MS. calls it " running

miles soon " . With a little work, we can get there!

hansoan1 wrote:

Hi ,

I tried glyconutients (3 weeks - mannatech), but because of the

cost I won't be able to continue(SSDI income). Other than that, a

whole food suppliment calleed juice plus and as many organic foods as

possible ( about 70% of my intake ).

I am glad to hear that your sister is doing well. I use to jog a

mile a day, and with patience and persiverance, those days will come

again.

Any suggestions on suppliments?

---------------------------------

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

[Guest guest]

Thank you . I currently try to get daily wild salmon intake

and flaxseeds. I was thinking about B12 but, was not sure. Do you

know where I can get liquid B12.

> Hi ,

> I tried glyconutients (3 weeks - mannatech), but because of the

> cost I won't be able to continue(SSDI income). Other than that, a

> whole food suppliment calleed juice plus and as many organic foods

as

> possible ( about 70% of my intake ).

>

> I am glad to hear that your sister is doing well. I use to jog a

> mile a day, and with patience and persiverance, those days will

come

> again.

>

> Any suggestions on suppliments?

>

>

>

>

>

> ---------------------------------

> How low will we go? Check out Yahoo! Messenger's low PC-to-Phone

call rates.

>

>

[Guest guest]

Thank you . I currently try to get daily wild salmon intake

and flaxseeds. I was thinking about B12 but, was not sure. Do you

know where I can get liquid B12.

> Hi ,

> I tried glyconutients (3 weeks - mannatech), but because of the

> cost I won't be able to continue(SSDI income). Other than that, a

> whole food suppliment calleed juice plus and as many organic foods

as

> possible ( about 70% of my intake ).

>

> I am glad to hear that your sister is doing well. I use to jog a

> mile a day, and with patience and persiverance, those days will

come

> again.

>

> Any suggestions on suppliments?

>

>

>

>

>

> ---------------------------------

> How low will we go? Check out Yahoo! Messenger's low PC-to-Phone

call rates.

>

>

[Guest guest]

Hi ,

If it's any help, this site features a less expensive glyconutrient

supplement:

http://tinyurl.com/fj559

All the best,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

[Guest guest]

Hi ,

If it's any help, this site features a less expensive glyconutrient

supplement:

http://tinyurl.com/fj559

All the best,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

[Guest guest]

Thank you Dudley.

>

>

> Hi ,

>

> If it's any help, this site features a less expensive glyconutrient

> supplement:

>

> http://tinyurl.com/fj559

>

> All the best,

>

> Dudley Delany

>

>

> http://profiles.yahoo.com/dudley_delany

>

[Guest guest]

Thank you Dudley.

>

>

> Hi ,

>

> If it's any help, this site features a less expensive glyconutrient

> supplement:

>

> http://tinyurl.com/fj559

>

> All the best,

>

> Dudley Delany

>

>

> http://profiles.yahoo.com/dudley_delany

>

[Guest guest]

I love this group because of all the help and support which is

offered to people. However I just have to give a little warning here

because I read quite often of people complaining that glyconutrients

are expensive. That is why quite a few companies are then found on

the web stating that they can supply the 8 essential sugars at a

cheaper price. This is in fact violating Mannatech's patent and most

of the products that are tested DO NOT have in them what they say

they do. It may be inexpensive but you may be wasting your money

anyway.

mscured , DudleyDelany@... wrote:

>

>

> Hi ,

>

> If it's any help, this site features a less expensive glyconutrient

> supplement:

>

> http://tinyurl.com/fj559

>

> All the best,

>

> Dudley Delany

>

>

> http://profiles.yahoo.com/dudley_delany

>

[Guest guest]

I love this group because of all the help and support which is

offered to people. However I just have to give a little warning here

because I read quite often of people complaining that glyconutrients

are expensive. That is why quite a few companies are then found on

the web stating that they can supply the 8 essential sugars at a

cheaper price. This is in fact violating Mannatech's patent and most

of the products that are tested DO NOT have in them what they say

they do. It may be inexpensive but you may be wasting your money

anyway.

mscured , DudleyDelany@... wrote:

>

>

> Hi ,

>

> If it's any help, this site features a less expensive glyconutrient

> supplement:

>

> http://tinyurl.com/fj559

>

> All the best,

>

> Dudley Delany

>

>

> http://profiles.yahoo.com/dudley_delany

>

[Guest guest]

I went to the site and the cost is 2x as much as 60 capsules of

Mannatech's Glyconutrient Capsules. In addition, Nutratose does not have

what they claim to have and is being sued right now and most likely will

be shut down. I prefer reputable companies with integrity to buy my

supplements from.

DudleyDelany@... wrote:

>Hi ,

>

>If it's any help, this site features a less expensive glyconutrient

>supplement:

>

>http://tinyurl.com/fj559

>

>All the best,

>

>Dudley Delany

>

>

>http://profiles.yahoo.com/dudley_delany

>

>

>

>

>

[Guest guest]

Hi Raj. I've never had optic neuritis, but I do have lesions on my spine that

affect my mobility. I take 6-9 cod liver oil gel-caps per day and add several

tablespoons of flax oil to my blended salads or salad dressing daily. I also

eat nuts and seeds. I can walk with a walker some where I used to be totally

immobile. I don't think my improvement is due entirely to the EFAs, but I can

tell you that they have helped. Fatty acids keep the inflammation down and coat

the nerves so that toxic metals won't attach. I don't eat meat and I'm not

trying to balance the omega 3's and 6's. I suppose the amount of EFA's that

would help you would depend on your diet. 1 tbs. doesn't sound like much. I

would increase my intake (and have recently) were I you. It won't hurt and

could actually help. I may not even be taking enough.

I'm sorry about your vision. That has to be frightening.

Rajesh Bhojwani wrote:

Hi ,

When you say large doses can you please be more

specific. I had optic neuritis in my left eye in oct

2003. I became 98% blind in my left eye and all I

could see from that eye looked like clouds of smoke.

The opthalomogist that I went to see got me admitted

into a hospital right away and put me on a high dose

IV Steriods to treat it. This lasted 2 days and then

followed by oral steroids to taper down for 1 week.

Well within days after all that I regained some vision

but it never really came back to what it used to be.

Today I can see from my left eye, but I cannot read or

focus on any detail. Things are not in High

Definition. Glasses don't help as this is a problem at

the nerve level.

I am currently taking 1 table spoon of EFA's daily.

They are with all the Omega types and other oils also.

Is that enough or should I increase it further?

I have been doing this for 1 month, but noticed no

change in vision. Pleae advise if a change of dosage

is required.

Regards

Raj

---------------------------------

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates

starting at 1¢/min.

[Guest guest]

Hi ,

Thanks for your email.

What about the Toxicity of the Cod Liver Oil...???

Won't taking a higher dosage mean injesting more

toxins that are present in the oil?

Please comment?

Regards

Raj

--- Pugh wrote:

> Hi Raj. I've never had optic neuritis, but I do

> have lesions on my spine that affect my mobility. I

> take 6-9 cod liver oil gel-caps per day and add

> several tablespoons of flax oil to my blended salads

> or salad dressing daily. I also eat nuts and seeds.

> I can walk with a walker some where I used to be

> totally immobile. I don't think my improvement is

> due entirely to the EFAs, but I can tell you that

> they have helped. Fatty acids keep the inflammation

> down and coat the nerves so that toxic metals won't

> attach. I don't eat meat and I'm not trying to

> balance the omega 3's and 6's. I suppose the amount

> of EFA's that would help you would depend on your

> diet. 1 tbs. doesn't sound like much. I would

> increase my intake (and have recently) were I you.

> It won't hurt and could actually help. I may not

> even be taking enough.

>

> I'm sorry about your vision. That has to be

> frightening.

>

>

>

> Rajesh Bhojwani wrote:

> Hi ,

>

> When you say large doses can you please be more

> specific. I had optic neuritis in my left eye in oct

> 2003. I became 98% blind in my left eye and all I

> could see from that eye looked like clouds of smoke.

>

> The opthalomogist that I went to see got me admitted

> into a hospital right away and put me on a high dose

> IV Steriods to treat it. This lasted 2 days and then

> followed by oral steroids to taper down for 1 week.

>

> Well within days after all that I regained some

> vision

> but it never really came back to what it used to be.

>

> Today I can see from my left eye, but I cannot read

> or

> focus on any detail. Things are not in High

> Definition. Glasses don't help as this is a problem

> at

> the nerve level.

>

> I am currently taking 1 table spoon of EFA's daily.

> They are with all the Omega types and other oils

> also.

> Is that enough or should I increase it further?

>

> I have been doing this for 1 month, but noticed no

> change in vision. Pleae advise if a change of dosage

> is required.

>

> Regards

>

> Raj

>

>

>

> ---------------------------------

> Talk is cheap. Use Yahoo! Messenger to make

> PC-to-Phone calls. Great rates starting at 1¢/min.

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Raj,

You do have to watch out for toxins in cod liver oil. Make sure the

fish oil that you take is pharmaceutical grade, which means that all

the mercury has been removed. If it doesn't say pharmaceutical

grade on the bottle, ask someone who sells it, or makes it. I use

an omega supplement that is pharmaceutical grade that has fish oil,

flax oil, and borage oil. It has all the EFA's. If you eat eggs,

there are a few brands of eggs that have 100mg of omega 3, and some

that have up to 600mg of omega 3, and they have no risk of mercury

contamination. You can also get your omegas from flax oil, or a

combination of any of the above, like does.

Cara

> > Hi ,

> >

> > When you say large doses can you please be more

> > specific. I had optic neuritis in my left eye in oct

> > 2003. I became 98% blind in my left eye and all I

> > could see from that eye looked like clouds of smoke.

> >

> > The opthalomogist that I went to see got me admitted

> > into a hospital right away and put me on a high dose

> > IV Steriods to treat it. This lasted 2 days and then

> > followed by oral steroids to taper down for 1 week.

> >

> > Well within days after all that I regained some

> > vision

> > but it never really came back to what it used to be.

> >

> > Today I can see from my left eye, but I cannot read

> > or

> > focus on any detail. Things are not in High

> > Definition. Glasses don't help as this is a problem

> > at

> > the nerve level.

> >

> > I am currently taking 1 table spoon of EFA's daily.

> > They are with all the Omega types and other oils

> > also.

> > Is that enough or should I increase it further?

> >

> > I have been doing this for 1 month, but noticed no

> > change in vision. Pleae advise if a change of dosage

> > is required.

> >

> > Regards

> >

> > Raj

> >

> >

> >

> > ---------------------------------

> > Talk is cheap. Use Yahoo! Messenger to make

> > PC-to-Phone calls. Great rates starting at 1¢/min.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Thank you

I am very grateful you mentioned the 'Klinghardt method'which I just checked

out, as I am about to get my amalgam fillings replaced starting next week

and I was wondering what to do to prepare for it - you gave me the answer -

thank you!!

I have had my mercury level tested and apparently the range between 0 and 30

is considered 'normal' and I've got 5. I don't know what units.

One other thing:last time I complained about my eyes being really dry and

itchy - they are still a bit dry but manageably so now, however I found out

by chance that I am very allergic to my cosmetic moisteriser. My herbalist

mixes these lovely and soothing cremes and applying those was pure bliss for

my skin and for my eyes. I was amazed how the cream I used for many years

before suddenly had such an effect on my skin and specially that it affected

my eyes in such a way!! I bought myself a book for making some basic beauty

products yourself and I am sure I will enjoy experimenting with this very

much!!

All the best

Sandy

Re: Re: Thanks , and they canceled the IV Steroids

Hi Raj. The brand I use is Carlson's. It's tested for freshness, potency and

purity. Another safe brand is Nordic Naturals. Toxicity is a concern for

me as well. I have mercury and other metals in my body. I'm going through

detox right now. The Klinghardt method of neurotoxin detox is what I'm doing

and high levels of EFAs, minerals, protein and sulphur are recommended so

that mercury has something to bind with other than the proteins on nerves. I

also take liquid bentonite by Yerba Prima.

[Guest guest]

You're welcome Sandy. I don't think any amout of mercury should be acceptable!

Green_GroupMS has lots of info about non-toxic hair and skin-care products,

cosmetics and house cleaners. It's time we all eliminate as many toxins as we

can. http://health.groups.yahoo.com/group/Green_GroupMS/

Sandy Gordon wrote:

Thank you

I am very grateful you mentioned the 'Klinghardt method'which I just checked

out, as I am about to get my amalgam fillings replaced starting next week

and I was wondering what to do to prepare for it - you gave me the answer -

thank you!!

I have had my mercury level tested and apparently the range between 0 and 30

is considered 'normal' and I've got 5. I don't know what units.

---------------------------------

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates

starting at 1¢/min.

[Guest guest]

Hi ,

You were mentioning something about hair loss some time ago; I'm not an

expert, but if it helps I had a problem with this recently and I think it

could have been due to low iron levels. I have taken something like floradix

and it has helped greatly.

Best wishes

Sandy