Thanks to the Group!

[Guest guest]

Hi there,

I am having some difficulty replying to specific posts but I will

sort that out. Thank you to all who have sent me warm welcomes!

Val I will be thinking of you as you wait for news on next steps and

treatment. I hope you have the love and support of family and

friends and that you never feel alone through uncertain times.

A little about me...

I am a single mom to two wonderful children and a border colie. My

kids are Jenna 14 ( and sooo 14) and who is 10 (and has

Tourettes Syndrome).

I work for an out patient mental health clinic and love my work. I

am missing normal life a great deal and yern to return to the hussle

and busstle. This MS flare took me down hard and fast.

My initial symptoms occured in Oct 2005 when I had numbness in the

last three fingers of both hands. The doctor ruled out carpal

tunnel and tendonitis. I just adapted and went about the business

of life. Then the last week of August 2006 I woke in the night with

a terrible tingling in my left leg and foot. In the morning I

noticed that the sensation was reduced ( altered?). Gradually my

right foot also went numb and remained so. My doctor thought

perhaps this was due to a back problem and referred me to a Neuro

who also dismissed my concerns.

On November 19, 2006 I started having difficulty with my left hand

(dominant). I couldn't maintain my grasp and dropped everything I

picked up. Again I went to my doctor who said perhaps a pinched

nerve in my neck was the cause. My left leg remained numb, both

feet and now my left hand. I was frightened and over the next two

days I lost more and more mobility. I could not will my left hand

to move at all. I called the Neuroligist and was admitted to

hospital. Three tumours were identified. After a biopsy I was

diagnosed with Tumefactive MS. Apparently this is a very rare

presentation. They are unsure how to proceed with treatment or if

the presence of these dense tumours has any implications in terms of

prognosis.

I am waiting for assessment at a specialty clinic where I am hopeful

that they will be able to make treatment recommendations.

I am trying to take one day at a time and I am most greatful for

family and friends.

I promise to keep future posts to a minimum!

Best wished to all in 2007!

Kim

[Guest guest]

Kim, post as much as you want or need to. That's what we're here for!! I dog sat 2 border collies. Hobbes was my buddy! They are such smart dogs. I will research your type of MS. Never heard of it. Good luck with all of it! But please post if you need any shoulders to cry on. x0x0x0x Shirley Kim Latour wrote: Hi there,I am having some difficulty replying to specific posts but I will sort that out. Thank you to all who have sent me warm welcomes!Val I will be thinking of you as you wait for news on next steps and treatment. I hope you have the love and support of family and friends and that you never feel alone through uncertain times.A little about me...I am a single mom to two wonderful children and a border colie. My kids are Jenna 14 ( and sooo 14) and who is 10 (and has Tourettes Syndrome). I work for an out patient mental health clinic and love my work. I am missing normal life a great deal and yern to return to the hussle and busstle. This MS flare took me down hard and fast.My initial symptoms occured in Oct 2005 when I had numbness in

the last three fingers of both hands. The doctor ruled out carpal tunnel and tendonitis. I just adapted and went about the business of life. Then the last week of August 2006 I woke in the night with a terrible tingling in my left leg and foot. In the morning I noticed that the sensation was reduced ( altered?). Gradually my right foot also went numb and remained so. My doctor thought perhaps this was due to a back problem and referred me to a Neuro who also dismissed my concerns.On November 19, 2006 I started having difficulty with my left hand (dominant). I couldn't maintain my grasp and dropped everything I picked up. Again I went to my doctor who said perhaps a pinched nerve in my neck was the cause. My left leg remained numb, both feet and now my left hand. I was frightened and over the next two days I lost more and more mobility. I could not will my left hand to move at all. I called the Neuroligist and

was admitted to hospital. Three tumours were identified. After a biopsy I was diagnosed with Tumefactive MS. Apparently this is a very rare presentation. They are unsure how to proceed with treatment or if the presence of these dense tumours has any implications in terms of prognosis.I am waiting for assessment at a specialty clinic where I am hopeful that they will be able to make treatment recommendations.I am trying to take one day at a time and I am most greatful for family and friends.I promise to keep future posts to a minimum!Best wished to all in 2007!Kim