Guest guest Posted December 9, 2001 Report Share Posted December 9, 2001 Hi All, I want to thank everyone who has replied to my post from last night, regarding my fist flush and my resultant questions. You have all been very helpful. Dale, thanks particularly for your in-depth reply. And Agnes, I appreciate your offer to help regarding the ia. I am assuming you feel that the leaf-like substances I found in the toilet bowl during the flush were parasites/flukes? Tom sent me some online photos of the snail fluke, and they were remarkably similar. However, the ones I found after the flush had a very coarse consistency, much like a small dried leaf after a morning dew. I had taken several of them out of the toilet bowl with a pair of tweezers, and washed them off to examine them. They had the same markings down the center of the " leaf " as the snail fluke has. But if they were indeed flukes, wouldn't they have had a more fleshy, " worm " like texture to them? I'm just curious. I am going to do the ia, no doubt. I can remember eating raw hamburger as a child (I liked the taste) so God only knows what's in there. Again, thanks to all for the support and ideas this group offers. It is invaluable. Regards, Steve Barwick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 Hi everyone, I just wanted to write a note to tell ALL of you how much your support and information has meant to me and to Spencer in the last few months. We have just returned home from the Autism Center at UCSB, where they specialize in behavioral issues and intervention, with a focus on communication issues as they relate to negative behavior. The director of the center, Dr. Lynn Koegel, after a very cursory observation of Spencer, said that she would question a diagnosis of autism. Speech and social delays, yes, autism, no. It was 1 year ago this month that Spencer was diagnosed. I immersed myself in research about autism and the various treatment protocols and therapies available for him. As many of you have read my words...I do not focus on the fact that my toddler is autistic, I focus on the fact that I will not have an adult child with autism, living in a group home and anything I have to do to get him to that point is fine. So, the most important and most valuable step I took during this process was to become a member of this board. The name of the board does not do justice to the benefits it has offered at least my family. Of all of the things we have embraced in our journey to deal with this monster, this board has made the most impact. I grant you that we were fortunate that Spencer was diagnosed before he was even 18 months old. We got a great head start on turning him into a lab rat. I am also quite stubborn when it comes to pursuing something that my gut tells me is right. So, Spencer got the best mom for the job--me and I got the best support system-you all. Without you I wouldn't know about Houston enzymes, or MSM, or Megson vitamin A therapy, or probiotics, or Colostrum, or the Pfeiffer Treatment Center, or many of the other things we have implemented that have helped so much. Our lives would most likely be quite different right now if not for you all. So, after a more thorough evaluation, Dr. Koegel tells me that she will help us teach Spencer to read this summer (just before his 3rd birthday) because of his obvious intellectual ability. She says that the research and her center's experience indicate that Spencer's chance of being undiagnosable as compared to typical peers by the time he reaches school is quite high, actually, she would expect that he will excel academically ahead of his peers due to his intellect at this point. All of this I found out today, at a time when most parents of AS kids are just beginning the process of questioning whether their child is " special " and in need of some assistance. Interestingly, I have been telling people over the last couple of months that I wondered if Spencer would even meet the criteria for autism now. My gut told me that he was well on the way to recovery; the expert confirmed my gut feeling today...without any prompting. For those of you skeptics out there, we are not paying for the behavioral services at the center. They are a Regional Center vendor. So, this isn't a matter of filling a vulnerable parent full of empty wishes so as to empty my wallet. She gets no money from me at all, so I guess her motivation to create false hope would be limited. I say all of this only for those who might question her ethics. For the rest of you who hold out hope that miracles do occur, I'm right there with you. Again, thanks for all of your support, and know that I will be here, whether I am an active contributor, supporting you all in my heart. Most Sincerely, Amber Onstot I want to thank you all so much. I know that you all have a very accuarate idea of how full my heart is right now. I wish for all of you the same success and fullness that we have had. I will continue to monitor this board because there is always room for more great things. In addition, my NT kids have benefitted from much of the advice I have implemented. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 Thank you so much for all the wonderful info and support everyone has given me the last few days. you guys don't know how much it means when I am so upset to look at my mailbox and see so many posts from so many people trying to help me! I have been so depressed lately and confused. I am sorry to burden everyone with all of my mess but I feel like you really are the only ones who understand what I am dealing with. I really-really appreciate all of the time everyone has taken to help me and looking up old posts from three years ago! you have really brightened my day! To answer some of the questions, I do have short term and long term disability benefits through my current employer. I am scared to ask about the details of these plans as I don't want to "alert" anyone in HR but I used the short term when my son was born for maternity leave and I think it was 60% pay. I am not sure how long they last or when ss would have to be applied for. I am not sure how the long term works or what it takes to apply/qualify for them. I am scared that my conditons won't be "good enough" (you know how insurance companies are these days) for them then I will be in trouble for filing as I will have alerted my employer. I guess I will have to tread lightly there. I know that they won't hold my position no matter what which I guess is OK but what I am mainly concerned about is being able to get the 60% to support my family until I can get it back together. I agree that I am only making things worse and slowing my healing by staying under such stress - my hubby agrees, too. It is just scary to make that jump as I know that there will be no turning back once I say something to them. Hopefully I will get the doctors to agree. I have and advantage in having doc Vasey in my area but I am not sure how he feels about the disability thing. My primary wouldn't agree, probably. I have an appt 4/22 w/ an infectious disease specialist who maybe can get more info on what is really going on inside me if there needs to be proof. All I have now is the FM, CFS, and severe depression and I wasn't sure if it would qualify. I can't imagine with the way i feel day in and day out being turned down but i am also very aware of the insurance companies getting harder and harder on us. Also, I don't work for the most understanding people in the world. They give me a hard time for taking off when my baby is sick, I can't imagine what they would do if I said that I had to leave for a few months - this is yet another source of my constant anxiety-worrying about them. My hubby and I have been discussing it - actually he told me to quit a year ago but I was so scared to be without the income and having it hurt my family and ruining my credit but I guess now I must put myself first and stop worrying about money and work. We will have to manage and hopefully my faith will find me through all of this. bless all of you who have helped me lately. It has definately made me stronger the last few days which I desparately needed! love to all of you!!! shari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Shari: you dont need to discuss the policy with anyone. Get your policy handbook and it will give you all the info on short and long term disability. Then have your doctor write a letter putting you on disability for short term when that is close to expiring you have him re-evaluate and go for long term. Once your employer gets the letter, they can not fire you. If they do, you go to the EEOC. Having been out on short and long term disability will better your chances of getting SSDI if you still need it. Again, do not discuss this, just have the letter written and take it to your HR department, stay home and get well. Vickiehalvey70@... wrote: Thank you so much for all the wonderful info and support everyone has given me the last few days. you guys don't know how much it means when I am so upset to look at my mailbox and see so many posts from so many people trying to help me! I have been so depressed lately and confused. I am sorry to burden everyone with all of my mess but I feel like you really are the only ones who understand what I am dealing with. I really-really appreciate all of the time everyone has taken to help me and looking up old posts from three years ago! you have really brightened my day!To answer some of the questions, I do have short term and long term disability benefits through my current employer. I am scared to ask about the details of these plans as I don't want to "alert" anyone in HR but I used the short term when my son was born for maternity leave and I think it was 60% pay. I am not sure how long they last or when ss would have to be applied for. I am not sure how the long term works or what it takes to apply/qualify for them. I am scared that my conditons won't be "good enough" (you know how insurance companies are these days) for them then I will be in trouble for filing as I will have alerted my employer. I guess I will have to tread lightly there. I know that they won't hold my position no matter what which I guess is OK but what I am mainly concerned about is being able to get the 60% to support my family until I can get it back together. I agree that I am only making things worse and slowing my healing by staying under such stress - my hubby agrees, too. It is just scary to make that jump as I know that there will be no turning back once I say something to them. Hopefully I will get the doctors to agree. I have and advantage in having doc Vasey in my area but I am not sure how he feels about the disability thing. My primary wouldn't agree, probably. I have an appt 4/22 w/ an infectious disease specialist who maybe can get more info on what is really going on inside me if there needs to be proof. All I have now is the FM, CFS, and severe depression and I wasn't sure if it would qualify. I can't imagine with the way i feel day in and day out being turned down but i am also very aware of the insurance companies getting harder and harder on us. Also, I don't work for the most understanding people in the world. They give me a hard time for taking off when my baby is sick, I can't imagine what they would do if I said that I had to leave for a few months - this is yet another source of my constant anxiety-worrying about them. My hubby and I have been discussing it - actually he told me to quit a year ago but I was so scared to be without the income and having it hurt my family and ruining my credit but I guess now I must put myself first and stop worrying about money and work. We will have to manage and hopefully my faith will find me through all of this.bless all of you who have helped me lately. It has definately made me stronger the last few days which I desparately needed!love to all of you!!!shari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Very valuable info Vickie! Thank you so much for sharing. --- In , Vickie <gracie17db@y...> wrote: > Shari: you dont need to discuss the policy with anyone. Get your policy handbook and it will give you all the info on short and long term disability. Then have your doctor write a letter putting you on disability for short term when that is close to expiring you have him re-evaluate and go for long term. Once your employer gets the letter, they can not fire you. If they do, you go to the EEOC. Having been out on short and long term disability will better your chances of getting SSDI if you still need it. Again, do not discuss this, just have the letter written and take it to your HR department, stay home and get well. > Vickie Quote Link to comment Share on other sites More sharing options...
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