Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 Hi Kim, Welcome to the group! Aggressive repositioning does work but you have to to be diligent. Have you checked out the repositioning headquarters folder in the files section? It's full of repo info. You can also check out: http://www.bumboseat.com/ http://www.geocities.com/alittleone2000/plagiopage.htm We have a repositioning moderator, Christie, I'm sure she'll reply to you as soon as she sees your post. Please keep us posted on your son. > I'm Kim in Houston. My son has not been diagnosed with plagio, but > my ped said we'd evaluate at 6 mos (he's 4 mos now) and she'd send me > to the neurosurgeon at that time if needed. I'm trying to find out > all I can to help prevent h having to be banded. He refuses to > sleep on his back now, so that helps some, but will no pressure be as > helpful as pressure on the protruding side? Any other suggestions to > help us out? > > I'll read more, and I'm so happy to hear the success stories already. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 Hi Kim, Welcome to the group! h is a good age to try aggressive repositioning to correct his repo. We were able to treat our daughter Remy's plagio/brachy with repo only, starting when she was 5 months of age. Her progress photos are in the PHOTOS section of the group, BEFORE AND AFTER folder, REPOSITIONED folder. Aggressive repo is very demanding. There is a lot of great repo information here at the group that might help you repo your son. You can find all sorts of links to repo products, websites, tips, and studies in the LINKS section, REPOSITIONING folder. Check out the Bumbo Baby Sitter Baby Seat when you get a chance! This innovative seat could be a real help to repo'ing parents. You have a tremendous advantage that your son is not on his flat area at nighttime; nighttime repo is so critical to getting repo results, and I'm so happy you are not fighting that battle! There is also some great photos of repo ideas from our own members here at the group. The repo idea photos are in the PHOTOS section, REPO HDQRTRS folder, REPO PHOTOS folder. My own repo philosophy touches on your question about pressure. With Remy, we made a concerted effort to not only keep her off of her flat area, but to actively place her head in positions which would amount to passive pressure on the bulging back side of her head. These activities including taking advantage of the seat backs in the stroller (which we kept at minimum use), high chair, and carseat, to be a " holding point " for the bulging back side of the head. In addition, Remy took every nap in my right arm for 3 straight months during repo; I actually positioned her facing slightly outward, with the bulging back side of her head resting directly on my breastbone. Even just cuddling with her, I made every effort to place the bulging back side of the head on something! There is an inherent danger that you could flatten the entire back of the head if you aren't careful with this technique, just at bouncie seats, swings, carseats, and back-sleeping contributed to causing the plagio in the first place; I guarded against this by rotating the " passive pressure " on Remy's head between the 7,8, and 9 o'clock position, if you can imagine the top view of a baby's head as a clock face. It was a real eye-opener how much mental energy had to go into aggressive repositioning! You should also take a few things into consideration when evaluating your pediatrician's recommendation of waiting 2 months for a repo follow-up appointment. Does your son have tort, where there is limited range of movement of the neck and head? Tort can seriously undermined repo efforts. Also, does your son have any of the common accompanying asymmetries such as forehead bossing, ear misalignment or facial asymmetry? These can best be viewed by holding your baby up to a mirror, viewing from the chin up, or viewing from the top of the head down. Also, what would the timeline be to get to see a neuro, then get a casting appt. for a band/helmet, and then actually get your son into a band? In addition, what severity plagio would you say that your son has? There are some helpful assessment diagrams in the LINKS section, SEVERITY ASSESSMENT OF PLAGIO folder. I would definitely recommend taking at least a top and side view photos right now, so that you will have a visual starting point for repo. Take follow-up pictures from the same distance and angle every couple of weeks. In a baby your son's age, I would think you would start to see some change in a month's time. If you are seeing no improvement whatsoever, and you are really aggressively repo'ing, then you could consider moving up your appointment with your pediatrician to evaluate next steps with your son, bringing your photos as evidence of lack of change. In our case, we saw continued improvement in the progress photos we took of Remy, so we just kept on repo'ing! Would you let me know if I can be of any help to you with repo questions or concerns? We have quite a few parents repo'ing babies right around your son's age, so you should have a lot of company here at the group. Take care, Christie (Mom to Repo'd Remy) > I'm Kim in Houston. My son has not been diagnosed with plagio, but > my ped said we'd evaluate at 6 mos (he's 4 mos now) and she'd send me > to the neurosurgeon at that time if needed. I'm trying to find out > all I can to help prevent h having to be banded. He refuses to > sleep on his back now, so that helps some, but will no pressure be as > helpful as pressure on the protruding side? Any other suggestions to > help us out? > > I'll read more, and I'm so happy to hear the success stories already. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 Thank you so much. I've been checking out some of the info in the other folders. What we've been doing is pretty much elimnate any time in bouncy seats and swings. h can sit pretty well for a 4 month old, so our playtime involves either tummy time or him sitting (with me or some pillows behind him) or the exersaucer. And then there's tummy sleeping. The tummy sleeping was not initiated because of the flat spot, but because h always rolls over and won't sleep on his back anymore. The only times he is on his head is in the highchair, carseat, or stroller. h has already outgrown his infant seat, and his " big boy " seat has the side impact head proetection which keeps his head facing straight, and when looking down on the top of his head, it seems that it allows passive pressure on the protruding side. He is only in the high chair for maybe 30 minutes to an hour in the evening, and I hadn't been putting foam behind him in there--I'll start now. Same with the stroller. I'll carry my foam everywhere!!! I tried to post a pic of h's head. I created a folder but can't seem to get a pic uploaded. --- In Plagiocephaly , " redlocks2003 " <redlocks@d...> wrote: > Hi Kim, > > Welcome to the group! h is a good age to try aggressive > repositioning to correct his repo. We were able to treat our > daughter Remy's plagio/brachy with repo only, starting when she was > 5 months of age. Her progress photos are in the PHOTOS section of > the group, BEFORE AND AFTER folder, REPOSITIONED folder. > > Aggressive repo is very demanding. There is a lot of great repo > information here at the group that might help you repo your son. > You can find all sorts of links to repo products, websites, tips, > and studies in the LINKS section, REPOSITIONING folder. Check out > the Bumbo Baby Sitter Baby Seat when you get a chance! This > innovative seat could be a real help to repo'ing parents. You have > a tremendous advantage that your son is not on his flat area at > nighttime; nighttime repo is so critical to getting repo results, > and I'm so happy you are not fighting that battle! There is also > some great photos of repo ideas from our own members here at the > group. The repo idea photos are in the PHOTOS section, REPO HDQRTRS > folder, REPO PHOTOS folder. > > My own repo philosophy touches on your question about pressure. > With Remy, we made a concerted effort to not only keep her off of > her flat area, but to actively place her head in positions which > would amount to passive pressure on the bulging back side of her > head. These activities including taking advantage of the seat backs > in the stroller (which we kept at minimum use), high chair, and > carseat, to be a " holding point " for the bulging back side of the > head. In addition, Remy took every nap in my right arm for 3 > straight months during repo; I actually positioned her facing > slightly outward, with the bulging back side of her head resting > directly on my breastbone. Even just cuddling with her, I made > every effort to place the bulging back side of the head on > something! There is an inherent danger that you could flatten the > entire back of the head if you aren't careful with this technique, > just at bouncie seats, swings, carseats, and back-sleeping > contributed to causing the plagio in the first place; I guarded > against this by rotating the " passive pressure " on Remy's head > between the 7,8, and 9 o'clock position, if you can imagine the top > view of a baby's head as a clock face. It was a real eye-opener how > much mental energy had to go into aggressive repositioning! > > You should also take a few things into consideration when evaluating > your pediatrician's recommendation of waiting 2 months for a repo > follow-up appointment. Does your son have tort, where there is > limited range of movement of the neck and head? Tort can seriously > undermined repo efforts. Also, does your son have any of the common > accompanying asymmetries such as forehead bossing, ear misalignment > or facial asymmetry? These can best be viewed by holding your baby > up to a mirror, viewing from the chin up, or viewing from the top of > the head down. Also, what would the timeline be to get to see a > neuro, then get a casting appt. for a band/helmet, and then actually > get your son into a band? In addition, what severity plagio would > you say that your son has? There are some helpful assessment > diagrams in the LINKS section, SEVERITY ASSESSMENT OF PLAGIO folder. > > I would definitely recommend taking at least a top and side view > photos right now, so that you will have a visual starting point for > repo. Take follow-up pictures from the same distance and angle > every couple of weeks. In a baby your son's age, I would think you > would start to see some change in a month's time. If you are seeing > no improvement whatsoever, and you are really aggressively repo'ing, > then you could consider moving up your appointment with your > pediatrician to evaluate next steps with your son, bringing your > photos as evidence of lack of change. In our case, we saw continued > improvement in the progress photos we took of Remy, so we just kept > on repo'ing! > > Would you let me know if I can be of any help to you with repo > questions or concerns? We have quite a few parents repo'ing babies > right around your son's age, so you should have a lot of company > here at the group. > > Take care, > > Christie (Mom to Repo'd Remy) > > > --- In Plagiocephaly , " kimsach " <kimsach@a...> wrote: > > I'm Kim in Houston. My son has not been diagnosed with plagio, > but > > my ped said we'd evaluate at 6 mos (he's 4 mos now) and she'd send > me > > to the neurosurgeon at that time if needed. I'm trying to find > out > > all I can to help prevent h having to be banded. He refuses > to > > sleep on his back now, so that helps some, but will no pressure be > as > > helpful as pressure on the protruding side? Any other suggestions > to > > help us out? > > > > I'll read more, and I'm so happy to hear the success stories > already. Quote Link to comment Share on other sites More sharing options...
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