Re: New to group! History synopsis. Comments on current therapies and advice?

[Guest guest]

Hi Juho,

Welcome to the group!

This website contains helpful advice for people with MS:

http://tinyurl.com/grpm9

Check it out!

With best wishes,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

[Guest guest]

Juho,

Please read:

http://www.msrefugees.proboards82.com/index.cgi?board=front & action=display & threa\

d=1159451945

and write me what you think about it.

Haptenologist

[Guest guest]

I think she should start LDN. I don't think she should get anotherMRI. They can

reduce bone density and what is the point? She definitely has an RRMS and the

Kuwert type ll MS which Hans Neiper describes in his literature is helped by

calcium orotate. It can be ordered from . I would call the

Brewer Science Library at and get all the back newsletter on ms

treatments. I have been on Calcium EAP injections from Germany since 1999 and

LDN since 2003. I have no ms symptoms today. Best, Kathy

New to group! History synopsis. Comments on current

therapies and advice?

Hello!

My name is Juho and my girlfriend was re-diagnosed with MS a few

months ago. She was first diagnosed around 5-6 years ago. She started

losing her balance, felt tingliness and pain all over, had very bad

headaches, and altered vision...she went to the doctors...they did a

several MRI scans, some other type of scan, did blood tests, did a

lumar puncture, did evoked potentials, etc...and determined she had

MS. The put her on Avonex (an interferon)...the side-effects hit her

VERY hard, she HATES needles, and she still suffered exacerbations.

So she decided to stop Avonex against her doctors wishes.

She decided to try alternative medicine. She saw a homeopath highly

recommended in the area. This doctor saw her and said she did not

have MS and that her doctors had no idea what they were talking

about. This doctor told her her spine was still slightly out of

alignment from a car crash she was involved in many years ago. He did

a spinal adjustment and put her on 5-HTP. This actually did help

alleviate SOME of her symtpoms. But not all...but she didn't bring up

the symptoms the spinal adjustments weren't helping. She stopped

seeing this doctor because when she did bring up a symptom, she felt

like she was being ignored.

She actually did not seem to suffer any further exacerbations for

around 3-4 years. But then, a few months ago she lost all use of her

left arm...it just hang limp and felt numb. This was during work so

her friend took her to the emergency room...they really didn't do

anything and told her she had to see a neurological specialist ASAP.

The next morning, we went to a osteopathic neurological institute.

They took her patient history, did an MRI, and compared them to past

MRI's from years ago.

The MS had definitley progressed. Many more lesions. The D.O.,

surprisingly, did not offer alternative remedies. He said alternative

remedies should be prescribed to work with allopathic remedies. He

put her on IV steroides that day to help the current

exacerbation...she was very against this but did it because I wanted

her to. The D.O. then wanted to put her on either Avonex or Tysabri.

She refused. She can't get over her fear and terror of needles and

she just is not willing to go through the terrible side effects she

suffered before.

At that point, I took it upon myself to help her. I did some research

and put her on several supplements. A B-complex, B12

(methylcobalamin), B12 (dibencozide), calcium, magnesium, fish oil,

b6, and a few others for depression. She told me her mood definitely

improved A LOT. And her left arm was back to normal.

After a while, I convinced her to go see another doctor. This was

another highly recommended homeopath...another doctor of osteopthic

medicine. This D.O. agreed with the MS diagnosis. The DO kept her on

the supplements but increased some dosages. She put her on kombucha

tea, gota kola, cocculus, arnica. The DO told her to cut out

aspartame out of her diet (she was a diet coke addict!)...cut down on

caffeine...and eat healthier in general. She also prescribed good

sleep and good exercise. We also decided to cut down on alcohol

(can't be good).

Recently, the DO has been doing this " detoxifying " footbaths...some

sort of laser treatment...and put her on modifilan.

The DO said she should start feeling the symptoms go away pretty

soon. We've only been seeing her for a few weeks...maybe 3

appointments so far. And so far, the symptoms have not alleviated.

The DO also said somewhere very soon down the road, we should

schedule another MRI. The DO is very confident the lesions will have

diminished noticeably.

I'm desparate and hopeful. But what do you guys think about all this?

Alternative medicine is VERY new to both of us.

Thanks!!!!

[Guest guest]

Hi Juho,

I would suggest getting to another back doctor to see what still might

be going on with that, I am not that familiar with DO, if you had

success with a chiropractor perhaps you will again. . Have you seen just

plain old xrays of the spine? Then you have to look at the body as a

whole and realize that one thing affects another, so while your big toe

might hurt it could be starting in the lower back.

SHe has taken steroids and so now her bowels would need help getting

rebalanced, pro-biotics would be a good place to start. Might also want

to do some bowel and liver cleansing with all the drugs that have been

on board. I have heard positive and negative reports on the

effectiveness of the foot baths. The diet changes you mention are good,

but perhaps more are in order for just normal health. When we are sick

we have to go the extra mile, more then others might have to in terms of

diet and supplements.

As far as getting another MRI, I would not bother. If you had to pay out

of pocket like I did, you definaely do not run to get these type of

tests unless its absolutely necessary. You have to think about what the

results of the tests will mean to you, a different drug perhaps, or just

more things to worry about. Just keep moving in the direction your are

with many different things that can help and she will find h er way back

to health.

michiganitis wrote:

>Hello!

>

>My name is Juho and my girlfriend was re-diagnosed with MS a few

>months ago. She was first diagnosed around 5-6 years ago. She started

>losing her balance, felt tingliness and pain all over, had very bad

>headaches, and altered vision...s

>

>

[Guest guest]

Our D.O. believes an MRI is required for a couple reasons. The D.O.

thinks it's very important that we know her methods are working and

not just a bunch of homeopathic crap. She also wants us to see the

remedies are not merely treating symptoms but rather curing the

disease. The D.O. asserts that my girlfriend will not have to on all

these pills and remedies forever...just until the disorder is cured.

We still haven't scheduled an MRI...but the D.O. is pushing us to

make an appointment. To be honest, we're terrified of the MRI...we're

afraid that it'll show no improvement in her lesions.

Anyway...thank you for your advice! I will definitely look into LDN

and the alternative calcium supplements you've mentioned!

Thanks again!

>

> I think she should start LDN. I don't think she should get

anotherMRI. They can reduce bone density and what is the point? She

definitely has an RRMS and the Kuwert type ll MS which Hans Neiper

describes in his literature is helped by calcium orotate. It can be

ordered from . I would call the Brewer Science

Library at and get all the back newsletter on ms

treatments. I have been on Calcium EAP injections from Germany since

1999 and LDN since 2003. I have no ms symptoms today. Best, Kathy

> New to group! History synopsis. Comments on

current therapies and advice?

>

>

> Hello!

>

> My name is Juho and my girlfriend was re-diagnosed with MS a few

> months ago. She was first diagnosed around 5-6 years ago. She

started

> losing her balance, felt tingliness and pain all over, had very

bad

> headaches, and altered vision...she went to the doctors...they

did a

> several MRI scans, some other type of scan, did blood tests, did

a

> lumar puncture, did evoked potentials, etc...and determined she

had

> MS. The put her on Avonex (an interferon)...the side-effects hit

her

> VERY hard, she HATES needles, and she still suffered

exacerbations.

> So she decided to stop Avonex against her doctors wishes.

>

> She decided to try alternative medicine. She saw a homeopath

highly

> recommended in the area. This doctor saw her and said she did not

> have MS and that her doctors had no idea what they were talking

> about. This doctor told her her spine was still slightly out of

> alignment from a car crash she was involved in many years ago. He

did

> a spinal adjustment and put her on 5-HTP. This actually did help

> alleviate SOME of her symtpoms. But not all...but she didn't

bring up

> the symptoms the spinal adjustments weren't helping. She stopped

> seeing this doctor because when she did bring up a symptom, she

felt

> like she was being ignored.

>

> She actually did not seem to suffer any further exacerbations for

> around 3-4 years. But then, a few months ago she lost all use of

her

> left arm...it just hang limp and felt numb. This was during work

so

> her friend took her to the emergency room...they really didn't do

> anything and told her she had to see a neurological specialist

ASAP.

> The next morning, we went to a osteopathic neurological

institute.

> They took her patient history, did an MRI, and compared them to

past

> MRI's from years ago.

>

> The MS had definitley progressed. Many more lesions. The D.O.,

> surprisingly, did not offer alternative remedies. He said

alternative

> remedies should be prescribed to work with allopathic remedies.

He

> put her on IV steroides that day to help the current

> exacerbation...she was very against this but did it because I

wanted

> her to. The D.O. then wanted to put her on either Avonex or

Tysabri.

> She refused. She can't get over her fear and terror of needles

and

> she just is not willing to go through the terrible side effects

she

> suffered before.

>

> At that point, I took it upon myself to help her. I did some

research

> and put her on several supplements. A B-complex, B12

> (methylcobalamin), B12 (dibencozide), calcium, magnesium, fish

oil,

> b6, and a few others for depression. She told me her mood

definitely

> improved A LOT. And her left arm was back to normal.

>

> After a while, I convinced her to go see another doctor. This was

> another highly recommended homeopath...another doctor of

osteopthic

> medicine. This D.O. agreed with the MS diagnosis. The DO kept her

on

> the supplements but increased some dosages. She put her on

kombucha

> tea, gota kola, cocculus, arnica. The DO told her to cut out

> aspartame out of her diet (she was a diet coke addict!)...cut

down on

> caffeine...and eat healthier in general. She also prescribed good

> sleep and good exercise. We also decided to cut down on alcohol

> (can't be good).

>

> Recently, the DO has been doing this " detoxifying "

footbaths...some

> sort of laser treatment...and put her on modifilan.

>

> The DO said she should start feeling the symptoms go away pretty

> soon. We've only been seeing her for a few weeks...maybe 3

> appointments so far. And so far, the symptoms have not

alleviated.

> The DO also said somewhere very soon down the road, we should

> schedule another MRI. The DO is very confident the lesions will

have

> diminished noticeably.

>

> I'm desparate and hopeful. But what do you guys think about all

this?

> Alternative medicine is VERY new to both of us.

>

> Thanks!!!!

>

>

>

>

>

>

[Guest guest]

DO's are doctors of osteopathy. Osteopaths are doctors with varying

degrees of openness to alternative medicine. The first DO she saw was

a total 100% homeopath and a chiripractor. The second DO she saw was

very similar to a MD...he was very open to alternative medicine was

also suggested going back on the Avonex her original MD had her on or

switch to Tysabri. The current DO we're seeing is a total 100%

homeopath.

She will not go back to the chiropractor/DO...he's the irresponsible,

arrogant SOB that had the temerity to say that all her previous

doctors were idiots...that she did not have MS or anything remotely

similar to MS. And said all her problems were the result of a spinal

misalignment. Yet...his treatments were not able to alleviate her MS

symptoms (except for a few), his treatments do not last and had to be

done over and over and over and over. We think he's full of crap,

something that seems to be all to common in the world of alternative

medicine.

Thank you for our other suggestions! I'm open to anything! If you

have any other advice, please let me know!

>

> >Hello!

> >

> >My name is Juho and my girlfriend was re-diagnosed with MS a few

> >months ago. She was first diagnosed around 5-6 years ago. She

started

> >losing her balance, felt tingliness and pain all over, had very

bad

> >headaches, and altered vision...s

> >

> >

>

[Guest guest]

how can i find out the source of the haptens that are causing my

girlriends MS? do i need to employ the services of a haptenologist?

>

>

> Juho,

>

> Please read:

>

> http://www.msrefugees.proboards82.com/index.cgi?

board=front & action=display & thread=1159451945

>

> and write me what you think about it.

>

> Haptenologist

>

>

>

>

[Guest guest]

I did not think you would want to go back to the first chiro but here

are many good ones out there. SOme use really good nutrition to help

also. I would not be so upset with him simply because he did not think

you have MS. DO you realize that MS is not a disease in itself but many

different things combined that cause the symptoms that then lead to a

diagnosis of MS. SPinal misalignment is one very real cause of alot of

peoples symptoms. The fact that he could not help with all just means

you need to look further into nutrition, chelation, candida and bowel

issues. Most people do not get well from the symptoms of MS with just

one thing.

I used several body cleanses, took tons of supplements, saw the

chiropractor and the accupuncture and changed my diet completely over

what I used to eat. If I would have just thought my chiro would have

helped me completely I would have been dissapointed. I personally will

not take any drugs and so after a point I did not waste my time or money

(no inusurance) going to any doctor who would prescribe them. ITs a

choice you have to make.

As far as lesions, I have seen people with lots of them with no

symptoms hardly at all, and people with no lesions with tons of

symptoms. If it were me, I would tell the doctor I will happily take the

MRI if you pay for my out of pocket costs. Then see how anxious she is

for you to have one.

My original suggestions still hold, get going on some pro-biotics to

help rebalance the gut and if you are not into the chiro then perhaps a

accupuncturist. FInd one that is not going to sell you a $1,000 in

herbs, just one who will do a good job. I went to the teaching institute

in my area and had great results and it was really cheap. Just remember

that MS is many things and need many things to help it go away.

michiganitis wrote:

>DO's are doctors of osteopathy. Osteopaths are doctors with varying

>degrees of openness to alternative medicine. The first DO she saw was

>a total 100% homeopath and a chiripractor. The second DO she saw was

>very similar to a MD...he was very open to alternative medicine was

>also suggested going back on the Avonex her original MD had her on or

>switch to Tysabri. The current DO we're seeing is a total 100%

>homeopath.

>

>

>

>

>