Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 i only recently found out about the rsv vaccine has tavin had that it wasnt until my 35wker was hospitalized with rsv this week that i found out he should have had it grrr i didnt even know he needed it but i dont know if i agree iwth his age but that is waht the nicu claims was how old he was anyhow stay as afar as away from that its awful orbys mama Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2004 Report Share Posted February 14, 2004 I think the article is a wonderful idea. In the March issue of Parents magazine, there is a tiny blurb about plagio. I wrote the magazine and asked them to do a more in depth article as I feel that many parents are ill informed about the condition. My son was in the NICU for 4 weeks after he was born and no one mentioned a thing!! They just put him on his side once in a while. Even when I told my family and friends about Tavin's head, they all thought I was over reacting and said Oh it will grow out. Glad I didn't listen!! Also, I may ask the NICU if I can join their preemie support group and talk about infant positioning. If Tavin does wear a helmet in the future, I may decorate with something that says, Ask me about my helmet!! And have handouts ready. Poor guy was a preemie and has not been out into the outside world much since he was born. We are trying to protect him from the RSV virus. Now when he gets to go out, he may be wearing a helmet. I hope strangers are kind??? Janet Louisville, KY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2004 Report Share Posted February 14, 2004 Hi , Great ariticle! It all sounded too familiar; especially when you mentioned how you thought it was cute how he slept with his head turned to one side. I thought the same thing. Later I wanted to kick myself. As far as feedback goes: I know the doc say to do tummy time, but they don't really tell you why. And I didn't start it until Matt was around 2 months because I thought he might be too young at first. I think it's important for the docs to tell new parents to start it right away. Also, I think that if I would have started alternating his head position right away, maybe he wouldn't have developed such a strong preference for that one side. But Matt had tort as well, so who knows. But if I would have known what tort was, I could have started the stretches earlier. Unfortunately, my ped kept saying, it will round out on it's own. I had to really press for a referral to a neuro, and then the neuro said he'd give me a rx if I wanted one, but didn't really recommend it. I was so gald to find this group because I was certainly not getting support from the medical community. You mentioned that Kale was older and that the optimum time for banding was at 6-7 months. While this is true, older babies can still get great results. My son Matt was banded at 10 months and wore his band for about 4.5 months. He went from 8mm asymmetry to 3mm. (He just graduated this past friday). We are thrilled with the results. Also Cranial Tech will band babies up to 24 months. You also might want to mention in future articles that another reason to have the baby evaluated by a neuro or specialist is to rule out cranial systenosis (Early suture closing) - although it's rare. I've still found that the general population is not aware of this problem. While Matt was wearing his helmet, I would try to educate as many people who were curious enough to ask and were willing to listen! I applaud you efforts and I think that will be a great public service to write more articles on this subject. I look forward to reading them! and /DOCgrad 10-7-03 to 2-13-04/PAmjl_2 <mjl_2@...> wrote: Hi Everybody,My name is and my son Kale is a plagio baby who is now 27 months old. About a year and a half ago, when I was just discovering what Plagiocephaly was, I discovered this group which helped me tremendously. After little success with repositioning, I got Kale a helmet. As a result of the whole experience, I decided to an article about it to create some awareness about Plagiocephaly. (I am a writer working on a novel and this is my first journalistic piece). The article came out in the Feb 9th issue of Maclean's magazine (a Canadian news magazine - I'm Canadian). In the coming year I am going to be writing a few other articles which will be published in parenting magazines both American and Canadian, and would love your feedback about what you think needs to be said. In addition to helping other mothers know that they are not alone, I also want to arm them with tools and choices. My question is: Has anything changed with diagnosis, doctors, the Back to Sleep campaign etc. in the last year since my son wore the helmet? Or is the public still as unaware of the problem as ever before? I also want to say that reading all the new postings really brought back memories of what you are going through. There is just such a bravery and compassion in everyone's voices that is so inspiring to me. Gosh, it's exactly what makes writers want to write! What I hope to do is insitgate some change. I would like your help in telling me what you feel is important for people to know. Your opinions are just between you and me - unless you don't want it to be. You can email me directly at mjl_2@... or respond to the magazine regarding the article. I've attached a link to the article if you are interested in having a look. http://www.macleans.ca/switchboard/overtoyou/article.jsp?content=20040209_74642_74642Thanks everyone for your support. I can't wait to hear from you. (mom to Kale)For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 Hi , I read your article - it's great. I have a few points to add. Plagio can develop inutero, birth trauma, by positioning, premature birth, or due to the neck muscles (tight or weak) not allowing full range of motion. There is some research that shows that it can be more than an abnormal head shape, increased risk for migraines, TMJ, ear infections, vision and respiratory problems. It is not cosmetic!!!! This is just for the insurance companies : ) There are many different helmets and bands. They treat children from 3 - 18 months old (adjusted age - beginning of treatment). Some are passive (child's head grows into the shape) and some our active (gentle pressures discourage growth in the prominent areas and allow growth in the flat areas). Helmets and bands are worn up to 23 hours a day. The use of swings, car seats, bouncy seats, etc has also increased the incidence of plagio. Aggressive repositioning at the first signs can correct the deformity. The optimal age to begin treatment is 4-6 months. I'm going to email you a copy of the appeal I sent my insurance. It has a ton of internet links to some good research. I look forward to reading more of your articles. mom to na DOC #1 10-27 to 11-26 DOC #2 12-10 to ?? South Carolina Macleans article Hi Everybody,My name is and my son Kale is a plagio baby who is now 27 months old. About a year and a half ago, when I was just discovering what Plagiocephaly was, I discovered this group which helped me tremendously. After little success with repositioning, I got Kale a helmet. As a result of the whole experience, I decided to an article about it to create some awareness about Plagiocephaly. (I am a writer working on a novel and this is my first journalistic piece). The article came out in the Feb 9th issue of Maclean's magazine (a Canadian news magazine - I'm Canadian). In the coming year I am going to be writing a few other articles which will be published in parenting magazines both American and Canadian, and would love your feedback about what you think needs to be said. In addition to helping other mothers know that they are not alone, I also want to arm them with tools and choices. My question is: Has anything changed with diagnosis, doctors, the Back to Sleep campaign etc. in the last year since my son wore the helmet? Or is the public still as unaware of the problem as ever before? I also want to say that reading all the new postings really brought back memories of what you are going through. There is just such a bravery and compassion in everyone's voices that is so inspiring to me. Gosh, it's exactly what makes writers want to write! What I hope to do is insitgate some change. I would like your help in telling me what you feel is important for people to know. Your opinions are just between you and me - unless you don't want it to be. You can email me directly at mjl_2@... or respond to the magazine regarding the article. I've attached a link to the article if you are interested in having a look. http://www.macleans.ca/switchboard/overtoyou/article.jsp?content=20040209_74642_74642Thanks everyone for your support. I can't wait to hear from you. (mom to Kale)For more plagio info Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.