Guest guest Posted November 16, 1999 Report Share Posted November 16, 1999 Dear All, I had a difficult birth insofar as it was double breeched. I know little more than that as my mother died a few years ago, and my dad does not seem to knowthat much about what went on at the time, (we talk about things like that in England, dont you know). I was lucky enough to get see Prof Graham Flint fora second opinion, earlier this year. (UK's top Chiari S/M specialist - I think). Amongst other subjects discussed he was of the opinion that " difficult " births do have a bearing on some Chiari patients, and I believe he is currently surveying the number. It will be interesting to see how many " difficult " births there are within this group. Regards from from Manchester the one in UK not NH. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1999 Report Share Posted November 16, 1999 , I'm not sure any of the messages I've been sending to individuals on the list are making it so I thought I would repsond, again, on the list. I was a forcep delivery after about 36 hours of labor for my mom. I've been told that when I was finally delivered, I had indents on the sides of my head and my eyes were swollen shut. I have asked any number of nsgs. and neurologists if the fact that I was a forcep birth could have any thing to do with the Chiari and SM. Of course, they have all said that it had nothing to do with it. I'm not convinced. Pat bpglenn@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1999 Report Share Posted November 16, 1999 , I'm not sure any of the messages I've been sending to individuals on the list are making it so I thought I would repsond, again, on the list. I was a forcep delivery after about 36 hours of labor for my mom. I've been told that when I was finally delivered, I had indents on the sides of my head and my eyes were swollen shut. I have asked any number of nsgs. and neurologists if the fact that I was a forcep birth could have any thing to do with the Chiari and SM. Of course, they have all said that it had nothing to do with it. I'm not convinced. Pat Me neither. An informal survey on this list last year showed a great many of us were either delivered with foreceps, or were otherwise difficult deliveries. I don't think it's wise to ignore this possibility. ronny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1999 Report Share Posted November 16, 1999 I think sometimes the #1 rule in med school, is " always lie if you don't know the answer, or if the answer may have a negative result " My sister and myself were both forcep births. She still has a mishapened head it was so bad. And she is the one with stenosis, fibro, and lots of other stuff, no check for chairi yet. My point is , that the Dr.s know , and admit that being in the birth canal too long , or squeeezed too tightly in there, has , and does cause hydrocephalous. (this is without the mention of forceps ), so how can more squeezing and mishaping caused by forceps always have the same answer from these docs? Because they are peobably the ones who used the forceps in the first place, right? THAT Dr. isn't ever going to admit to any possible damage from what he just did, unless he, is one hell of an exception to the rule, and is done practicing medicine. PS I watched a birth on TV where they " successfully " delivered a child using the " suction cup method " as opposed to forceps. That baby's head was so messed up looking when they got that cup off of it!! It had taken on the swelled shape of the cup every where it had been suctioned on to the head. It looked like a mongoloid right then. But they acted as if all was well, of course. My feelings... If they only really knew what they were messing with... they think because all vital signs at birth are normal , everything was done just fine. Kind of an ignorant way of thinking. Word for the day C-section. No cone headed babys, no forcep babys, no suction cup babys. At least give them a chnce to really inherit Chairi, if they are going to inherit it. For all we know the mother's birth canal is hereditary. Carry on, Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1999 Report Share Posted November 16, 1999 Hi all - I just had to check with my mother on this one - After her telling me - Dang- your head was huge!! she said mine was a relatively normal birth. No forceps, labor time in between my two siblings times. Other than hurting her like heck cuz I have a big head, everything went well. Keri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1999 Report Share Posted November 16, 1999 IMHO both of these " means of acquisition " <g> are very viable....... I feel that in the future there are going to be different " subdivisions " of Chiari..... with different causative factors,etc. Sally R Kathleen Grigg wrote: > > At least give them a chnce to really inherit Chairi, if they are going > > to inherit it. > > I fall into the inherited category. I was a normal birth and so was (our > youngest that is borderline chiari). was a two hour labor and delivery > without any of the torture devices that are used to assist in birth. > > Kathleen > > ------------------------------------------------------------------------ > WACMA Site: http://www.pressenter.com/~wacma > Your Personal support group member page: http://www.eGroups.com/group/chiari/ > **Avoid List Congestion: > Unsubscribe from this list: mailto:chiari-unsubscribeegroups > Contact list mgmt: mailto:chiari-owneregroups > > eGroups.com Home: /group/chiari/ > - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 1999 Report Share Posted November 17, 1999 I have the personal opinion that Chairi can be inherited, and induced, AND induced , or induced further , by , a difficult birth, or most especially, (if there is the tiniest hint of any thing wrong) ,induced by a normal , even " easy birth " . Just seems logical to me. Anyone else? Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 1999 Report Share Posted November 17, 1999 Hi all and , Actually that is not a factor in most cases. I'm sure one of the reasons that they ask is for research purposes. I was a normal birth, and Dr. Milhorat has diagnosed me with chiari. Many are researching to learn more about chiari, and the genetics involved. Naturally those that have a trauma induced chiari, would not fit into that category. Though it is not guaranteed that forceps will cause chiari, I'm sure they are looking at all aspects for accuracy in determining genetic involvement for those without any trauma. ---Have you had surgery with Dr. Milhorat? How did you like him? Or are you waiting to see him? It's nice to meet you. Good Luck and let us know! By the way everyone, my email may come through differently, but it's still the same---mbaron@.... My husband's installing a new phone program--you know how that goes. Love, Maureen -----Original Message----- From: jbonnes1@... This is the first time I've posted here, so please forgive me if I do so incorrectly. I am 25 years old, and was just diagnosed with Chiari type I this past summer. I usually only read the posts here for moral support,(thanks for being here, by the way) but this forceps issue has compelled me to respond. I was lucky enough to be referred to Dr. Milhorat after only a few months of doctors looking at me like I had completely lost my mind. His Physician Assistant, Finklestein, spent a couple of hours speaking with me to get my medical background info on paper. He specifically asked if I was a forceps or difficult labor baby. I was a basically trouble-free delivery, so unfortunately, I did not inquire further on this topic. However, I consider Dr. Milhorat one of " the Best " , and if he thinks it's important to have ask this, I'm assuming he either suspects or already knows that it is a factor. Bonnes jbonnes1@... Quote Link to comment Share on other sites More sharing options...
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