Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 Hey everyone. I just wanted to tell everyone what I've been doing. I started taking alternative supplements about 5 months ago in hopes that i could help my MS. I know of a few people that took it and helped them so it might just help me. After 4 months of taking the supplements I had an MRI and the results were amazing. I had about 3/4 or my lesions dissapear. Now I can't say for sure that everyone will get the same results but I know a guy that had 173 lesions on his brain, blind, could move, and many other problems. He has been taking these supplemnts for around 2 years now and he only has 12 lesions and you can't even tell he has a problem except his speach is a little slow but continues to improve. That is very amazing becasue as far as i know your lesions never go away. I recommend this stuff to everyone. If you want to know more email me or reply to this message. I'll answer any question you have. it's almost to good to be true but i'm living proof and can back it up. I hope everyone will at least consider what i have to say. As I said in the beginning. It's worth a try! Coe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 What supplements are you taking? Jackie Lesions are gone!! Hey everyone. I just wanted to tell everyone what I've been doing. I started taking alternative supplements about 5 months ago in hopes that i could help my MS. I know of a few people that took it and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 > > What supplements are you taking? > > Jackie > Lesions are gone!! > > > Hey everyone. I just wanted to tell everyone what I've been doing. I > started taking alternative supplements about 5 months ago in hopes > that i could help my MS. I know of a few people that took it and > Sounds like a HOAX to me! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 , Could you please tell me what products you used to shrink the lesions. Thank you, Matt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 is referring to Glyconutrients. We have discussed them many times on this forum and many people do have good results. They are not a cure for MS lesions or anything else but are simply food for the bodies cells. When cells get healthy then the rest of the body can start to work better. We have talked quite a bit about MS having many different root causes and therefore not everyone has the same results when taking Glyconutrients. They are one part of the puzzle that can help tremendously when used in conjuction with other necessary nutrients and diet modifications and perhaps some changes in lifestyle. I have found that people with MS are usually very toxic and needing to " clean house " before starting any new wellness program. I have been helping people with MS and Glyconutrients for a few years now and if anyone is interested to know more they can join Glyco-Friends where the talk is more specifically geared toward Glyconutrients and how they benefit the body. http://groups.yahoo.com/group/Glyco-friends Jim & Jackie Siperko wrote: >What supplements are you taking? > >Jackie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2006 Report Share Posted September 7, 2006 Hi , I can relate to the denial, that is how I was, just pretend it does not exist and it will go away. Did not exactly work out like that but I refused to let it own me or take up residence for too long. Glad you got back on track with your supplements, its entirely possible that the lesions are disappearing because of the Glyconutrients, keep up the good work and don't get laxed again, the price is too costly! GIna Sembach wrote: >- > >I take glyconutrients also and feel they are helping me, I was dx'd >with ms 3 years ago with serveral lesions and have sort of been in >denial ever since but had been taking ambrotose (sporadicaly sp?) >for the last 3 yrs, and just got another mri last month and about >half of the lesions were gone and I wasn't even taking the stuff >regular. So while I'm not positive it was the ambrotose I just have >a feeling it was and since I've started taking it daily along with a >couple of other products from the same company and I'm feeling very >good. Now I wasn't having any symptoms to start with except I just >felt overall like crap wich is probably nutrition related, anyhow I >think they're great for anybody not just us with MS. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2006 Report Share Posted September 7, 2006 I AM THE MOTHER OF A DAUGHTER WHO HAS M.S. I DON'T MEAN TO CHANGE THE SUBJECT . I JUST WANT ALL OF YOU TO KNOW THAT I THINK THAT YOUR SHARING INFORMATION IS A BLESSING. I HAVE ONLY BEEN ON THIS WEB SITE FOR A VERY SHORT TIME, I HAVE LEARNED SO MUCH ALREADY AND WILL BE LOOKING INTO ALOT OF THE THINGS YOU HAVE BEEN SHARING. MY PRAYER FOR ALL IS THAT ONE DAY SOON THEY WILL FIND A CURE FOR M.S. FROM A GREATFUL HEART Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2006 Report Share Posted September 7, 2006 , Ambrotose has NOT been approved by the FDA. Please don't make statements like that - you can get into trouble! I agree, it is a great product, but it does not have approval! Roe > > , > Yes I am referring to glyconutrients. However, there are many people > that have said exactly what you've said or they simply don't have > results. Many people take their glyconutrients from a place that > doen't take pride in there quality and two other big factors. they are > not patented and or They are not Aprroved by the FDA. Even though the > FDA approves many bad things, for a dietary supplement to be approved > it means that it does have amazing results. One other thing about > peopel that take it is that they simply just don't take enough to see > results that I've had. I can get anyone into contact with many > different people that have the same and better results then I have. > The only reason why I can say this is a cure is because legally I > can't. However, this is what I do know. When people start taking these > supplements and take enough of them They do get the results. I'm not > saying everyone will but so far its true. 1+1=2 right? Of course it > does. And it will everytime. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2006 Report Share Posted September 7, 2006 Hi , Yes there are many companies that you can buy some glyconutrients from, but they are just cheap imitators. The FDA does not deal with food supplements as a rule and so the whole supplement industry is wide open for all kinds of false claims. Its always good to research the company before buying any supplement so that you can be sure they have Good Manufacturing practices which will guarantee that what they say is in the bottle is actually in the bottle. Right now a company can say anything they want is in the bottle and there is no one to regulate them. I really am glad the FDA does not regulate food supplements or they would be more costly and probably need a prescription to get them!! The one product that is FDA approved is called ImmunoSTART and it achieved " orphan drug " status and so it does have approval. To me the FDA is just a very greedy, very dangerous organization and they can stick with approving deadly and debilitating drugs. teamglycoepower wrote: >, >Yes I am referring to glyconutrients. However, there are many people >that have said exactly what you've said or they simply don't have >results. Many people take their glyconutrients from a place that >doen't take pride in there quality and two other big factors. they are >not patented and or They are not Aprroved by the FDA. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2006 Report Share Posted September 7, 2006 What is your opinion on probiotics ? Kathy --- " Kindscher (Charter) " wrote: > Hi , > > Yes there are many companies that you can buy some > glyconutrients from, > but they are just cheap imitators. The FDA does not > deal with food > supplements as a rule and so the whole supplement > industry is wide open > for all kinds of false claims. Its always good to > research the company > before buying any supplement so that you can be sure > they have Good > Manufacturing practices which will guarantee that > what they say is in > the bottle is actually in the bottle. Right now a > company can say > anything they want is in the bottle and there is no > one to regulate > them. I really am glad the FDA does not regulate > food supplements or > they would be more costly and probably need a > prescription to get them!! > > The one product that is FDA approved is called > ImmunoSTART and it > achieved " orphan drug " status and so it does have > approval. To me the > FDA is just a very greedy, very dangerous > organization and they can > stick with approving deadly and debilitating drugs. > > > teamglycoepower wrote: > > >, > >Yes I am referring to glyconutrients. However, > there are many people > >that have said exactly what you've said or they > simply don't have > >results. Many people take their glyconutrients from > a place that > >doen't take pride in there quality and two other > big factors. they are > >not patented and or They are not Aprroved by the > FDA. > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2006 Report Share Posted September 7, 2006 Hi, Sorry to hear about your daughter .How old is she??? Is she doing some things to help herself yet such as diet and supplements?? I personally don't feel MS is a disease of one cause and so finding a cure is something that we do on this forum all the time. We figure out root causes of these MS symptoms. Like mercury toxicity, Candida overload, lyme disease, virus, environmental toxicity and some other things. We have all got to be very proactive these days to preserve our health and or bring it back, its just a very unhealty planet now. So you just start to peel away at the symptoms and see what you end up with, lots of people end up with no symptoms and that is being cured as far as I am concerned. The key is to maintain the lifestyle that you adapt that helps you rid yourself of the symptoms and never go back to the old ways. I pray your daughter finds her pathway to healing and soon. sharontomlin wrote: >I AM THE MOTHER OF A DAUGHTER WHO HAS M.S. I DON'T MEAN >TO CHANGE THE SUBJECT . I JUST WANT ALL OF YOU TO KNOW THAT >I THINK THAT YOUR SHARING INFORMATION IS A BLESSING. I HAVE >ONLY BEEN ON THIS WEB SITE FOR A VERY SHORT TIME, I HAVE >LEARNED SO MUCH ALREADY AND WILL BE LOOKING INTO ALOT OF THE >THINGS YOU HAVE BEEN SHARING. MY PRAYER FOR ALL IS THAT ONE >DAY SOON THEY WILL FIND A CURE FOR M.S. > > >FROM A GREATFUL HEART > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2006 Report Share Posted September 7, 2006 Sharon, all of us pray for that but in the meantime your daughter should get on LDN and have a healthy lifestyle. We could be waiting lifetimes for a cure from the medical community but to me, a permanent remission is just as good as a cure. Prayers, Kathy Re: Lesions are gone!! I AM THE MOTHER OF A DAUGHTER WHO HAS M.S. I DON'T MEAN TO CHANGE THE SUBJECT . I JUST WANT ALL OF YOU TO KNOW THAT I THINK THAT YOUR SHARING INFORMATION IS A BLESSING. I HAVE ONLY BEEN ON THIS WEB SITE FOR A VERY SHORT TIME, I HAVE LEARNED SO MUCH ALREADY AND WILL BE LOOKING INTO ALOT OF THE THINGS YOU HAVE BEEN SHARING. MY PRAYER FOR ALL IS THAT ONE DAY SOON THEY WILL FIND A CURE FOR M.S. FROM A GREATFUL HEART Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 , Thank you for your concern. My daughter will be 28 next month.She also has Meniere's disease along with M.S. She just got finished with a three day steroid treatment for Optic Neuritis.This is so hard because , where do you begin. As I told you be for I'm new to this site. I, more than anything , want to help my daughter.Her doctors have her on so much medication it scares me.Seems theres a pill or shot for everything.I will continue reading all information given on this site.Yall make more sense than any of the doctors we've talked with.I really do feel like we've found the right path.Now ,it's just putting one foot in front of the other,right? I'd also like to add that my sister 's daughter also has M.S. and I will be passing on my good fortune of finding this webb site on too them.Keep up the good work your doing,you are making a difference in peoples lives.May God bless & keep you. S.A.T. " Kindscher (Charter) " wrote: Hi, Sorry to hear about your daughter .How old is she??? Is she doing some things to help herself yet such as diet and supplements?? I personally don't feel MS is a disease of one cause and so finding a cure is something that we do on this forum all the time. We figure out root causes of these MS symptoms. Like mercury toxicity, Candida overload, lyme disease, virus, environmental toxicity and some other things. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 My opinion on Pro-Biotics is that everyone should be taking them every day!! I especially think that people with MS should be taking them and digestive enzymes also as bowel function is very important and most don't have that going on to much. GIna Kathy wrote: >What is your opinion on probiotics ? Kathy > >--- " Kindscher (Charter) " > wrote: > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 Hi Sharon, Oh that is way too young to be so sick, it seems more and more this is how things are going these days, the world is not a healhty place. I think its great you are doing this research, the hard part will be getting your daughter on board with what ever you find out. Is she receptive to alternative thinking??? Its very hard for some people to step away from their doctors and trust that others things will be just as much or in some cases way more helpful. Steroids are sometimes necessary for a very short course, but long term the damage is not worth the temporary benefit. Does she notice that her Meniere's gets worse right before or during her monthly cycle??? what are her symptoms for this the ears ringing or dizziness or both. Sometimes managing the water retention can help alot with this and getting imflamtion down. there are many ways to accomplish this. So what is her diet like now, what things does she eat alot of and is she willing to make some changes. This would be a simple yet good place to start. sharon tomlin wrote: >, > Thank you for your concern. My daughter will be 28 next month.She also has Meniere's disease along with M.S. She just got finished with a three day steroid treatment for Optic Neuritis.This is so hard because , where do you begin. As I told you be for > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 , bless your heart, I'm so thankful I found you! My daughters name is Sonya and we found out about the M.S. about a year after she graduated high school. She was half way through cosmetology school at the time. She did get to finish, but had to take many medical leaves.And your right this world is a very unhealthy place.You ask would it be hard to get her to change her way of thinking, maybe, but I'm ready, willing , able & eager to do anything that will help her have a better quality of life.I have already spoken to her about this site and I'm hoping she will check it out.As for her diet,Sonya eats " whatever " .I know she needs to make a lot of changes there.As for the Meniere's ,she found that out after many, many trips to her M.S. doctor.I guess because the two have a lot of the same symptoms they assumed that it was just vertigo,and treated it as such. But finally her doctor sent her to an ear, nose ,and throat doctor.There we found out about the Meniere's.Her symptom is vertigo, sometimes it can be pretty bad, and they have their on timing " mostly expect it when its least at expected " . The MS.has given her a " going problem " she going so much she's having to take medication for that. So she has no fluid retention. Well, as they say " if the Good Lord is willing an the creeks don't rise " there'll be an answer somewhere,someway ,somehow . God bless you Ginna , your an earth angel!!!!! Sharon.Kindscher (Charter) " wrote: Hi Sharon, Oh that is way too young to be so sick, it seems more and more this is how things are going these days, the world is not a healhty place. I think its great you are doing this research, the hard part will be getting your daughter on board with what ever you find out. Is she receptive to alternative thinking??? I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 Hi Sharon, I think the cosmotology school might have been some of the problem . I had one good friend and my sister in law both got very ill from that. One was in the middle of school and she kept passing out and having intense headaches. They did MRI's and said they saw something in her brain but did not know what it was and said maybe from some accident when she was young??? She had to quit the school and for along time she could not drive because she could black out at any time. She completely recovered after she was free from all the chemicals. My sister in law owns her own beauty shop and is getting sicker by the day, she refuses to listen to the fact that her shop is what is killing her. She lives on major drugs, some which she has to inject herself every day just to stay pain free. She is mostly plagued with migraines and but also has hormonal problems and other things. Is your daughter still trying to do that line of work??? If she wants to reverse her symptoms she will have to get pro-active and soon, the longer she is sick and taking all the drugs offered, the longer she will take to recover. I think if she beleives its fate and there is nothing she can do then she will do nothing. You must tell her its not fate, and she can do so much to recover and she is so very young it will not take her as long if she gets going now. Mostly likely her irritable bowel is being caused by her " whatever diet " , she really needs to get on the forum cause I know that kids do not listen to their moms, I have a strong minded daughter so I know!!! So the Lord is willing, he will hold back the creeks for one of his kids, but the kids got to take action!!! Bless you and keep the faith. sharon tomlin wrote: >, bless your heart, I'm so thankful I found you! My daughters name is Sonya and we found out about the M.S. about a year after she graduated high school. She was half way through cosmetology school at the time. She did get to finish, but had to take many medical leaves.And your right this world is a very unhealthy place.You ask would it be hard to get her to change her way of thinking, maybe, but I'm ready, willing , > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 Wow, now isn't that interesting. All this talk about glyconutrients, and Ambrotose got me doing some searching. I wanted to know what about the glyconutrients makes them so special. I found some info on the Mannatech website, and noticed that it mentioned brown seaweed. Well, I use a couple of products that have Fucoidan as the main ingredients, and Fucoidan also comes from brown seaweed. So I looked on the flyer for one of the products with the Fucoidan, and sure enough, there it is: fucoidan has a full spectrum of (amoung other things) glyconutrients. Well, now that is an interesting connection? One of the products I take, Pure Relief, is a freeze dried supplement in a capsule that has Fucoidan and other ingredients that make it a natural anti-inflammatory. Well, as soon as I was diagnosed, and realized that MS is a disease of inflammation, I immediatly began taking the Noni capsules, and the Pure relief. I also suspect that it is mercury that causes all the problems in the first place, so I started taking a product called Ziwi, which also has the Fucoidan (glyconutrients). One of the things that Ziwi is good for is removing heavy metal toxins from the body. Ziwi has other wonderful ingredients too, like Acai, and Gogi, but I think it is the Fucoidan that helps the body get rid of the heavy metals. In July, I had all my mercury dental fillings removed, and I am using Ziwi as part of my heavy metal/mercury detox. After I started using the Pure Relief, and Noni, but before I got my fillings out my MS symptoms stopped advancing, and started decreasing. The numbness in the bottoms of my feet was gone even before I got the fillings out. I am not sure if it was the anti-inflammatory effect of the Pure Relief and Noni, or if it was the Ziwi starting to get the heavy metals out of my brain that was helping, or a combination of both. There are many foods, herbs and ingredients that can pull mercury out of the brain, and/or eliminate it from the body. I even considered just doing a heavy metal detox every day for the rest of my life instead of paying to get the mercury fillings out. But then I realized that I needed to get rid of the source of the mercury contamination, not just do a daily heavy metal detox/clean-up, if I wanted to move my body to total health. I really want to have another baby someday, and I certainly don't want to have mercury circulating around my body while pregnant. I have read that many people have had great success with a highly nutritious diet, and herbs, or the glyconutrients, and someone even mentioned regular heavy metal detox, etc. I wonder if the one connection among all these things that have lead to an improvment in MS symptoms, and even MS lesions is getting the mercury out of the BRAIN. Not just getting the mercury out of the teeth, but out of the brain. The mercury in the teeth is only the source of the mercury contamination, that leaches out to do repeated assaults on the brain. It is the mercury that reaches the brain that actually does the damamge. So anything that removes the mercury from the brain, or stops it from reaching the brain could, in theory, improve the MS symptoms, or even MS lesions. I am new to MS, and this group, so maybe you guys have already had this discussion. I guess I just have mercury on the brain (literally). So what do you guys know about glyconutrients? Do the glyconutrients have a heavy metal detox effect on the body? Are all products with glyconutrients effective, or just those that use brown seaweed as their source of glyconutrients? Is it really the glyconutrients that is giving the benefits, or is it something else in the brown seaweed that chelates mercury that could be the real reason the MS symptoms improve after taking these products? I was wondering why MS symptoms come and go. Why the MS attacks, and then goes into remission with no detectible rhyme or reason. Could it be that sometimes people with MS eat foods, or herbs that are actually heavy metal chelators, without even realizing it, and their symptoms get better? Then they stop eating that food, and the mercury is allowed to return to the brain, or the mercury is no longer stopped as it leaches out of fillings, so new mercury can migrate to the brain to do additional damage? Makes me wonder why MS is rarely found in certian populations, even though they have just as many mercury fillings as the rest of us. For example, Central and South America have a low incidence of MS. (or so I have read) But they also eat a lot of cilantro, garlic, and fresh fruits, like limes, that are packed with Vitamin C. The combination of those 3 foods can help to remove heavy metals from the body. It could be that the mercury from their fillings is getting caught by the Vit C, the Garlic, and the cilantro, and then elimitated from the body before it can reach the brain and start doing damage. I might have mentioned this in my first post, but I don't remember. I will include it any way: Since my mercury removal I have continued to use Ziwi, Pure Relief, Noni, and I started an oral chelation formula. The foot numbness has not returned, numbness around my midsection has disappeared, the itching in my left armpit has decreased so much it rarely itches, and the numbness in my hands is almost gone. I have also noticed that the numbness in my hands, and the itching tend to increase after I eat dairy products. Someone told me that dairy interferes with heavy metal chelation, so this would make sense. So what do you guys think? Does it seem to you guys that the connection between many of the things that have helped with MS is the ability of those things to detox the body and the brain of mercury? I think there is also a candida connection, since candida is attracted to mercury, and is frequently found in overgrowth where ever there is mercury. But I don't know if it would be 1.) the candida that causes the damage, and the mercury just pulls the candida to where it can do the damage, or if it is 2.) the mercury that does the damage to the myelin, and candida is just present with the mercury causing its own problems, or if it 3.)the combination of the mercury and the candida that has a synergistic effect to cause the damage that leads to MS. That is why I am also using the Ultimate Zapper while I am chelating out the mercury, to kill the candida. I'd really love to hear what you guys think. Thanks, Cara > > , > Yes I am referring to glyconutrients. However, there are many people > that have said exactly what you've said or they simply don't have > results. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 Wow, lots of questions and some great info from you! I think sunlight plays a role in MS and also vaccinations. There is a form of mercury in a lot of vaccinations and my daughter ended up with mercury in her brain and lot of migraines. A friend of mine got MS very shortly after a hep B vaccination. She worked in a doctor's office and it was mandatory. Perhaps in some countries/climates they are not so vaccination-crazy and have less MS. Others connect it to vitamin D. Perhaps they sleep better in the poorer countries because their homes are not so filled with a constant barrage of new stuff that all gives off toxins or electro- smog. I'm really theorizing here! I believe all disease is caused by an energy imbalance or blockage or many blockages in some cases. Things like amalgam fillings, root canals, scars, tatoos, piercings, toxins in the body, vaccinations, etc will cause blockages (this is a very oversimplified explanation!). A lack of bio energy in the cells results. When the cells are toxic they can't do their job properly, lack oxygen, fill up with toxins and make us sick and tired. How to solve this problem? You're doing it by detoxifying with your Noni, Fucoidon, etc. Raw food, well chewed or blended is another excellent way. Don't forget to detoxify the home too. Toss out chemical cleaners, makeup, personal care products, etc that contain toxic ingredients. Wear natural fibres like cotton, silk, hemp, etc. Use a good quality probiotic as well. It should contain the entire spectrum of lactobaccillus bacteria if you want it to work, not just one or two. There are many other ways to detoxify. I've used an ionic footbath for about a year with good results. I've just ordered some zeolite which would have saved me buying the footbath had I known about it sooner. The zeolite attaches itself to the toxins like metals, teflon, depleted uranium (yes, it's in our bodies thanks to the Iraqi war and some jet streams) and removes it safetly out of the body. I recently posted about magnets which can help the symptoms of MS for the vast majority (not all, but most). They can also help for neuropathy. I went through quite the detox when I started using magnets. Welcome to the list Cara! I don't have MS myself but joined this list looking for something that might help the 10% or so that don't benefit from the things I know about and recommend. You mentioned the seaweed. That's a big part of a macrobiotic diet which is also quite successful in reversing some things like cancer. You'd probably enjoy Dr. Sherry ' books. Certain genetic types also have problems to detoxify and doing a cleanse can make them worse. Sharon H. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.