Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 This is dedicated to each and every one of you mom's out there today: As I sit in the quiet of the morning this Mother's Day, I think about the mothers who have gone before me. The mother 50 or more years ago that refused to institutionalized her child. The mother who first refused, for medical reasons, to vaccinate her child. The mother who first noticed, and was ridiculed for the noticing, that her child's hand's flapped more when he ate wheat. The mother who stopped feeding her daughter Kool-aide and anything else with sugar and red dye number whatever in it. And her child improved. Being a mother in the best of circumstances is a tough job. A rewarding one, but tough. But when things don't go the way you planned, when your child doesn't talk or walk or eat or play the way others do, the job becomes harder. When you challenge conventional medical wisdom because your " Mommy gut " , tells you to…and your hours of research back it up, the load increases further. When you watch your child get better, and your bank account become critical. When you forgo treatment you know you child needs and will benefit from to put food on the table or to save your home. The load becomes unimaginable. When family and friends not only won't support you, but downright ridicule you. When you are informed that all your therapies and IV's and blood draws and treatments and pills and doctors visits are " denying your child a normal childhood " …. The load is enough to crush a superhero. But you do it. You get up every morning and you dole out the medicines, you drive to or open your home to the therapies. You juggle the bills till you can't anymore, and then you make phone calls and are thrust into situations you never ever could imagine. You smile and help your child… to dress, to cope to live, in the best way they can. You clean up messes, do hours of research, you long for just a few moments with your husband… just a few moments " before autism " . It's all for that smile, that small step by step improvement you see… even if the steps are so small others can't see them, you can. And you know it's better to try to help than do nothing. Our children are in there… waiting … for someone to notice that they are there, and help them find the way out. We are finding the way out. What I want to tell each of you personally this morning, is that you are not alone. That you are making history. The world is changing because of you. It may not feel like it in the middle of holding your child for his 3rd blood draw this month, but you are. The world is noticing. The numbers don't lie. There is something happening to our children and many don't want to listen. But each time you stand up, and treat the underlying conditions of autism, you are part of the solution. There will come a day, I strongly believe, when a child diagnosed with autism or a related condition will simply get the appropriate treatment he or she needs. No questions asked. And it will happen because of all of you out there, bucking the system, fighting for your children. You are the ones making change possible (with the help of many dedicated, believing professionals). So on this Mother's Day, close your eyes for a moment and realize you hold hands with thousands and thousands of mothers (and fathers) around the world who face what you face every day. Who know what you are going through, and who, if they ever had a chance to meet you, would cheer you on. You are a gift to your child and a gift to our world, and I thank you for you courage and bravery. Blessings upon blessings upon blessing to you today. Happy Mother's Day! Ellen Stanley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 Ellen you are a true poet! Not many of us can sum up this beautiful letter that you wrote! Congradulations, it was the most beautiful thought of the day. Lidia _____ From: csb-autism-rx [mailto:csb-autism-rx ] On Behalf Of createyourownhappiness06 Sent: Sunday, May 10, 2009 7:37 AM To: csb-autism-rx Subject: X post: Happy Mother's Day to all you Rockn' Amazing Moms This is dedicated to each and every one of you mom's out there today: As I sit in the quiet of the morning this Mother's Day, I think about the mothers who have gone before me. The mother 50 or more years ago that refused to institutionalized her child. The mother who first refused, for medical reasons, to vaccinate her child. The mother who first noticed, and was ridiculed for the noticing, that her child's hand's flapped more when he ate wheat. The mother who stopped feeding her daughter Kool-aide and anything else with sugar and red dye number whatever in it. And her child improved. Being a mother in the best of circumstances is a tough job. A rewarding one, but tough. But when things don't go the way you planned, when your child doesn't talk or walk or eat or play the way others do, the job becomes harder. When you challenge conventional medical wisdom because your " Mommy gut " , tells you to.and your hours of research back it up, the load increases further. When you watch your child get better, and your bank account become critical. When you forgo treatment you know you child needs and will benefit from to put food on the table or to save your home. The load becomes unimaginable. When family and friends not only won't support you, but downright ridicule you. When you are informed that all your therapies and IV's and blood draws and treatments and pills and doctors visits are " denying your child a normal childhood " .. The load is enough to crush a superhero. But you do it. You get up every morning and you dole out the medicines, you drive to or open your home to the therapies. You juggle the bills till you can't anymore, and then you make phone calls and are thrust into situations you never ever could imagine. You smile and help your child. to dress, to cope to live, in the best way they can. You clean up messes, do hours of research, you long for just a few moments with your husband. just a few moments " before autism " . It's all for that smile, that small step by step improvement you see. even if the steps are so small others can't see them, you can. And you know it's better to try to help than do nothing. Our children are in there. waiting . for someone to notice that they are there, and help them find the way out. We are finding the way out. What I want to tell each of you personally this morning, is that you are not alone. That you are making history. The world is changing because of you. It may not feel like it in the middle of holding your child for his 3rd blood draw this month, but you are. The world is noticing. The numbers don't lie. There is something happening to our children and many don't want to listen. But each time you stand up, and treat the underlying conditions of autism, you are part of the solution. There will come a day, I strongly believe, when a child diagnosed with autism or a related condition will simply get the appropriate treatment he or she needs. No questions asked. And it will happen because of all of you out there, bucking the system, fighting for your children. You are the ones making change possible (with the help of many dedicated, believing professionals). So on this Mother's Day, close your eyes for a moment and realize you hold hands with thousands and thousands of mothers (and fathers) around the world who face what you face every day. Who know what you are going through, and who, if they ever had a chance to meet you, would cheer you on. You are a gift to your child and a gift to our world, and I thank you for you courage and bravery. Blessings upon blessings upon blessing to you today. Happy Mother's Day! Ellen Stanley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 Ellen - Thank you for sharing - you made very good points and sometimes we need a little push to keep going. Thank you for giving me that push! Laureen > Ellen you are a true poet! Not many of us can sum up this beautiful letter > that you wrote! Congradulations, it was the most beautiful thought of the > day. > > > > Lidia > > > > _____ > > From: csb-autism-rx [mailto:csb-autism-rx ] > On Behalf Of createyourownhappiness06 > Sent: Sunday, May 10, 2009 7:37 AM > To: csb-autism-rx > Subject: X post: Happy Mother's Day to all you Rockn' > Amazing Moms > > > > > > > > > > This is dedicated to each and every one of you mom's out there today: > > As I sit in the quiet of the morning this Mother's Day, I think > about the mothers who have gone before me. The mother 50 or more years > ago that refused to institutionalized her child. The mother who first > refused, for medical reasons, to vaccinate her child. The mother who > first noticed, and was ridiculed for the noticing, that her child's > hand's flapped more when he ate wheat. The mother who stopped > feeding her daughter Kool-aide and anything else with sugar and red dye > number whatever in it. And her child improved. > > Being a mother in the best of circumstances is a tough job. > A rewarding one, but tough. But when things don't go the way you > planned, when your child doesn't talk or walk or eat or play the way > others do, the job becomes harder. When you challenge conventional > medical wisdom because your " Mommy gut " , tells you to.and > your hours of research back it up, the load increases further. When you > watch your child get better, and your bank account become critical. > When you forgo treatment you know you child needs and will benefit from > to put food on the table or to save your home. The load becomes > unimaginable. > > When family and friends not only won't support you, but downright > ridicule you. When you are informed that all your therapies and IV's > and blood draws and treatments and pills and doctors visits are > " denying your child a normal childhood " .. The load is enough to > crush a superhero. > > But you do it. You get up every morning and you dole out the medicines, > you drive to or open your home to the therapies. You juggle the bills > till you can't anymore, and then you make phone calls and are thrust > into situations you never ever could imagine. You smile and help your > child. to dress, to cope to live, in the best way they can. You > clean up messes, do hours of research, you long for just a few moments > with your husband. just a few moments " before autism " . > > It's all for that smile, that small step by step > improvement you see. even if the steps are so small others can't > see them, you can. And you know it's better to try to help than do > nothing. Our children are in there. waiting . for someone to > notice that they are there, and help them find the way out. We are > finding the way out. > > What I want to tell each of you personally this morning, is that > you are not alone. That you are making history. The world is changing > because of you. It may not feel like it in the middle of holding your > child for his 3rd blood draw this month, but you are. The world is > noticing. The numbers don't lie. There is something happening to > our children and many don't want to listen. But each time you > stand up, and treat the underlying conditions of autism, you are part of > the solution. There will come a day, I strongly believe, when a child > diagnosed with autism or a related condition will simply get the > appropriate treatment he or she needs. No questions asked. And it will > happen because of all of you out there, bucking the system, fighting for > your children. You are the ones making change possible (with the help > of many dedicated, believing professionals). > > So on this Mother's Day, close your eyes for a moment > and realize you hold hands with thousands and thousands of mothers (and > fathers) around the world who face what you face every day. Who know > what you are going through, and who, if they ever had a chance to meet > you, would cheer you on. You are a gift to your child and a gift to > our world, and I thank you for you courage and bravery. > > Blessings upon blessings upon blessing to you today. > > Happy Mother's Day! > > Ellen Stanley > > Quote Link to comment Share on other sites More sharing options...
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