Re: Double Whammy : MS And Now Surgery - HELP

[Guest guest]

Hi Dawn,

I am curious how you just now found out, was there no symptoms until

now? If you are not in pain now I personally would try supplements for

rebuilding joints before I would do surgery. They certainly will not

hurt you and you might be able to prevent surgery and arthritis. My

husbands knees were bone on bone a few years back, he could barely walk

his pain was so bad. He also had a crushed foot and it was a mess with

arthritis. It did take awhile cause bone cells live a long time but his

improvments are amazing. Do you have any time at all before you have to

make a decision?

Dawn wrote:

>Hi Everyone,

>

>I have a question for anyone with MS that can give me some insight

>and advise. I have had MS for 10 years and managing it as well as I

>can. I just found out (at 38 yrs old) I was born with Hip Dysplasia

>(1 in 1000 are born with it and majority are caught at birth through

>childhood). As a child it is treated with traction/brace so your

>hips grow the way they are suppose too.

>

>

>

[Guest guest]

Hi Dawn,

I am curious how you just now found out, was there no symptoms until

now? If you are not in pain now I personally would try supplements for

rebuilding joints before I would do surgery. They certainly will not

hurt you and you might be able to prevent surgery and arthritis. My

husbands knees were bone on bone a few years back, he could barely walk

his pain was so bad. He also had a crushed foot and it was a mess with

arthritis. It did take awhile cause bone cells live a long time but his

improvments are amazing. Do you have any time at all before you have to

make a decision?

Dawn wrote:

>Hi Everyone,

>

>I have a question for anyone with MS that can give me some insight

>and advise. I have had MS for 10 years and managing it as well as I

>can. I just found out (at 38 yrs old) I was born with Hip Dysplasia

>(1 in 1000 are born with it and majority are caught at birth through

>childhood). As a child it is treated with traction/brace so your

>hips grow the way they are suppose too.

>

>

>

[Guest guest]

You are an ideal candidate for calcium EAP injections. Noone has ever needed hip

replacement according to Dr. Neiper in his 1997 docs. It seems that a person who

has done the therapy for four years gets much in the way of increasing

osteoblasts or bone density. The calcium orotat e from Germany in capsule form

also protects the bones. It would be helpful to you to contact the Brewer

Science Library in Wisconsin and ask them about Dr. Neiper's literature that you

can order. Be careful with too much iron. It has been linked to certain types of

cancer. A good bone formula with boron, Vitamin D, manganese, magnesium and

calcium citrate would be beneficial. Also, natural progesterone is good for the

bones. A half teaspoon twice a day rubbed subdermally on your thighs, triceps,

abdomen or soles of the feet. It also helps the body produce myelin. I don't

know how old you are but if you are over 30 it should be good for you. Look up

strontium or ask the library about their newsletter concerning this substance.

White is an excellent person to speak with. She is full of knowledge

and helpful hints. I don't understand why I can help so many people with

nutrition yet can't figure out how to change the font on my computer. Kind

regards, Kathy

Double Whammy : MS And Now Surgery - HELP

Hi Everyone,

I have a question for anyone with MS that can give me some insight

and advise. I have had MS for 10 years and managing it as well as I

can. I just found out (at 38 yrs old) I was born with Hip Dysplasia

(1 in 1000 are born with it and majority are caught at birth through

childhood). As a child it is treated with traction/brace so your

hips grow the way they are suppose too.

Now at my age I am facing these 3 decisions:

1. Within the next 5 years I will get immobizing arthristis (there

is nothing protecting either hip joint)

2. Once this happens, I will definately need 2 hip replacements (I'm

too young for these)

3. Take action now by getting hip reconstruction surgery! This is

different than hip replacement and if I didnt have MS I wouldnt be

as nervous.

My entire family is so scared how the surgery will affect the MS.

How the stress of my body healing will cause an exacerbation and I

won't beable to take steriods for them (which I take know when I

need them) because they prevent healing and my legs wont heal right.

This is somewhat rare as an adult - there are approximately 26

doctors in the US who do this surgery - they have to go in, carve

out my pelvis and reposition it over my hip joints (which will then

be held together by a pin). I have to get one hip done in October

and the next hip done in January. Crutches/walker and extensive

physical therapy for approximately the next 6 months.

Has anyone gone through extensive surgery with MS and what have they

done to prepare themselves for it? Any ideas on how to handle flare

ups if I do have them? Any vitamins or natural ways to help the

healing I may help? I have heard there are people called " chore

workers " that I could hire (I dont have much money though) to help

out with driving to physical therapy, laundry, cooking,

housecleaning - anyone know who I can contact?? [im done being on

hold with medicare and social security to find out!! ]

I have not gone through surgery while I have had MS - if I do not

get this surgery - either my hips or the MS or both will immobilize

me.

I know to keep a positive attitude, limit stress (Im getting

everything ready so my family is taken care of when I go through

this), my orthopedic told me to take iron and vitamin C. My

neurologist - hasnt said much.

ANY HELP TO GET ME THROUGH THIS AS HEALTHY AS POSSIBLE WILL BE MUCH

APPRECIATED!! THANK YOU IN ADVANCE FOR ALL THE ADVISE!

[Guest guest]

You are an ideal candidate for calcium EAP injections. Noone has ever needed hip

replacement according to Dr. Neiper in his 1997 docs. It seems that a person who

has done the therapy for four years gets much in the way of increasing

osteoblasts or bone density. The calcium orotat e from Germany in capsule form

also protects the bones. It would be helpful to you to contact the Brewer

Science Library in Wisconsin and ask them about Dr. Neiper's literature that you

can order. Be careful with too much iron. It has been linked to certain types of

cancer. A good bone formula with boron, Vitamin D, manganese, magnesium and

calcium citrate would be beneficial. Also, natural progesterone is good for the

bones. A half teaspoon twice a day rubbed subdermally on your thighs, triceps,

abdomen or soles of the feet. It also helps the body produce myelin. I don't

know how old you are but if you are over 30 it should be good for you. Look up

strontium or ask the library about their newsletter concerning this substance.

White is an excellent person to speak with. She is full of knowledge

and helpful hints. I don't understand why I can help so many people with

nutrition yet can't figure out how to change the font on my computer. Kind

regards, Kathy

Double Whammy : MS And Now Surgery - HELP

Hi Everyone,

I have a question for anyone with MS that can give me some insight

and advise. I have had MS for 10 years and managing it as well as I

can. I just found out (at 38 yrs old) I was born with Hip Dysplasia

(1 in 1000 are born with it and majority are caught at birth through

childhood). As a child it is treated with traction/brace so your

hips grow the way they are suppose too.

Now at my age I am facing these 3 decisions:

1. Within the next 5 years I will get immobizing arthristis (there

is nothing protecting either hip joint)

2. Once this happens, I will definately need 2 hip replacements (I'm

too young for these)

3. Take action now by getting hip reconstruction surgery! This is

different than hip replacement and if I didnt have MS I wouldnt be

as nervous.

My entire family is so scared how the surgery will affect the MS.

How the stress of my body healing will cause an exacerbation and I

won't beable to take steriods for them (which I take know when I

need them) because they prevent healing and my legs wont heal right.

This is somewhat rare as an adult - there are approximately 26

doctors in the US who do this surgery - they have to go in, carve

out my pelvis and reposition it over my hip joints (which will then

be held together by a pin). I have to get one hip done in October

and the next hip done in January. Crutches/walker and extensive

physical therapy for approximately the next 6 months.

Has anyone gone through extensive surgery with MS and what have they

done to prepare themselves for it? Any ideas on how to handle flare

ups if I do have them? Any vitamins or natural ways to help the

healing I may help? I have heard there are people called " chore

workers " that I could hire (I dont have much money though) to help

out with driving to physical therapy, laundry, cooking,

housecleaning - anyone know who I can contact?? [im done being on

hold with medicare and social security to find out!! ]

I have not gone through surgery while I have had MS - if I do not

get this surgery - either my hips or the MS or both will immobilize

me.

I know to keep a positive attitude, limit stress (Im getting

everything ready so my family is taken care of when I go through

this), my orthopedic told me to take iron and vitamin C. My

neurologist - hasnt said much.

ANY HELP TO GET ME THROUGH THIS AS HEALTHY AS POSSIBLE WILL BE MUCH

APPRECIATED!! THANK YOU IN ADVANCE FOR ALL THE ADVISE!

[Guest guest]

hello Dawn,

My name is I too have MS, I am going to

suggest that you go to MANNATECH.COM and take the

optium health package and look at sume of the

testomonials, use my name david morgan as who

recogmended you to mannatech..

--- Dawn wrote:

> Hi Everyone,

>

> I have a question for anyone with MS that can give

> me some insight

> and advise. I have had MS for 10 years and managing

> it as well as I

> can. I just found out (at 38 yrs old) I was born

> with Hip Dysplasia

> (1 in 1000 are born with it and majority are caught

> at birth through

> childhood). As a child it is treated with

> traction/brace so your

> hips grow the way they are suppose too.

>

> Now at my age I am facing these 3 decisions:

>

> 1. Within the next 5 years I will get immobizing

> arthristis (there

> is nothing protecting either hip joint)

>

> 2. Once this happens, I will definately need 2 hip

> replacements (I'm

> too young for these)

>

> 3. Take action now by getting hip reconstruction

> surgery! This is

> different than hip replacement and if I didnt have

> MS I wouldnt be

> as nervous.

>

> My entire family is so scared how the surgery will

> affect the MS.

> How the stress of my body healing will cause an

> exacerbation and I

> won't beable to take steriods for them (which I take

> know when I

> need them) because they prevent healing and my legs

> wont heal right.

>

> This is somewhat rare as an adult - there are

> approximately 26

> doctors in the US who do this surgery - they have to

> go in, carve

> out my pelvis and reposition it over my hip joints

> (which will then

> be held together by a pin). I have to get one hip

> done in October

> and the next hip done in January. Crutches/walker

> and extensive

> physical therapy for approximately the next 6

> months.

>

> Has anyone gone through extensive surgery with MS

> and what have they

> done to prepare themselves for it? Any ideas on how

> to handle flare

> ups if I do have them? Any vitamins or natural ways

> to help the

> healing I may help? I have heard there are people

> called " chore

> workers " that I could hire (I dont have much money

> though) to help

> out with driving to physical therapy, laundry,

> cooking,

> housecleaning - anyone know who I can contact?? [im

> done being on

> hold with medicare and social security to find out!!

> ]

>

> I have not gone through surgery while I have had MS

> - if I do not

> get this surgery - either my hips or the MS or both

> will immobilize

> me.

>

> I know to keep a positive attitude, limit stress (Im

> getting

> everything ready so my family is taken care of when

> I go through

> this), my orthopedic told me to take iron and

> vitamin C. My

> neurologist - hasnt said much.

>

> ANY HELP TO GET ME THROUGH THIS AS HEALTHY AS

> POSSIBLE WILL BE MUCH

> APPRECIATED!! THANK YOU IN ADVANCE FOR ALL THE

> ADVISE!

>

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

hello Dawn,

My name is I too have MS, I am going to

suggest that you go to MANNATECH.COM and take the

optium health package and look at sume of the

testomonials, use my name david morgan as who

recogmended you to mannatech..

--- Dawn wrote:

> Hi Everyone,

>

> I have a question for anyone with MS that can give

> me some insight

> and advise. I have had MS for 10 years and managing

> it as well as I

> can. I just found out (at 38 yrs old) I was born

> with Hip Dysplasia

> (1 in 1000 are born with it and majority are caught

> at birth through

> childhood). As a child it is treated with

> traction/brace so your

> hips grow the way they are suppose too.

>

> Now at my age I am facing these 3 decisions:

>

> 1. Within the next 5 years I will get immobizing

> arthristis (there

> is nothing protecting either hip joint)

>

> 2. Once this happens, I will definately need 2 hip

> replacements (I'm

> too young for these)

>

> 3. Take action now by getting hip reconstruction

> surgery! This is

> different than hip replacement and if I didnt have

> MS I wouldnt be

> as nervous.

>

> My entire family is so scared how the surgery will

> affect the MS.

> How the stress of my body healing will cause an

> exacerbation and I

> won't beable to take steriods for them (which I take

> know when I

> need them) because they prevent healing and my legs

> wont heal right.

>

> This is somewhat rare as an adult - there are

> approximately 26

> doctors in the US who do this surgery - they have to

> go in, carve

> out my pelvis and reposition it over my hip joints

> (which will then

> be held together by a pin). I have to get one hip

> done in October

> and the next hip done in January. Crutches/walker

> and extensive

> physical therapy for approximately the next 6

> months.

>

> Has anyone gone through extensive surgery with MS

> and what have they

> done to prepare themselves for it? Any ideas on how

> to handle flare

> ups if I do have them? Any vitamins or natural ways

> to help the

> healing I may help? I have heard there are people

> called " chore

> workers " that I could hire (I dont have much money

> though) to help

> out with driving to physical therapy, laundry,

> cooking,

> housecleaning - anyone know who I can contact?? [im

> done being on

> hold with medicare and social security to find out!!

> ]

>

> I have not gone through surgery while I have had MS

> - if I do not

> get this surgery - either my hips or the MS or both

> will immobilize

> me.

>

> I know to keep a positive attitude, limit stress (Im

> getting

> everything ready so my family is taken care of when

> I go through

> this), my orthopedic told me to take iron and

> vitamin C. My

> neurologist - hasnt said much.

>

> ANY HELP TO GET ME THROUGH THIS AS HEALTHY AS

> POSSIBLE WILL BE MUCH

> APPRECIATED!! THANK YOU IN ADVANCE FOR ALL THE

> ADVISE!

>

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

Hi ,

I had no pain until 6 months ago. I woke up one morning in pain and I

couldn't even walk. I knew it wasn't the MS - this was different. My family

doctor told me it was bursitis - and I went through physical therapy for 1

month. After I didn't get much relief I went to an orthopedic. He then sent me

to another orthopedic specializing in hip Dysplasia. He is actually a pediatric

orthopedic. I have to have the surgery because my bones have grown wrong and

they need to repair them. This is much different than hip replacement - which a

lot of people think it is. I have to have the surgery; however, any supplements

people can suggest to speed the recovery would be nice. My surgery is planned

for October 3rd. I need to have it asap before anything happens to my cartilage

or arthritis sets in. Thanks for writing -

Dawn

" Kindscher (Charter) " wrote:

Hi Dawn,

I am curious how you just now found out, was there no symptoms until

now? If you are not in pain now I personally would try supplements for

rebuilding joints before I would do surgery. They certainly will not

hurt you and you might be able to prevent surgery and arthritis. My

husbands knees were bone on bone a few years back, he could barely walk

his pain was so bad.

[Guest guest]

Hi ,

I had no pain until 6 months ago. I woke up one morning in pain and I

couldn't even walk. I knew it wasn't the MS - this was different. My family

doctor told me it was bursitis - and I went through physical therapy for 1

month. After I didn't get much relief I went to an orthopedic. He then sent me

to another orthopedic specializing in hip Dysplasia. He is actually a pediatric

orthopedic. I have to have the surgery because my bones have grown wrong and

they need to repair them. This is much different than hip replacement - which a

lot of people think it is. I have to have the surgery; however, any supplements

people can suggest to speed the recovery would be nice. My surgery is planned

for October 3rd. I need to have it asap before anything happens to my cartilage

or arthritis sets in. Thanks for writing -

Dawn

" Kindscher (Charter) " wrote:

Hi Dawn,

I am curious how you just now found out, was there no symptoms until

now? If you are not in pain now I personally would try supplements for

rebuilding joints before I would do surgery. They certainly will not

hurt you and you might be able to prevent surgery and arthritis. My

husbands knees were bone on bone a few years back, he could barely walk

his pain was so bad.

[Guest guest]

Thank you for all the supplements. They will come in helpful after the surgery.

You see, I have to have the surgery - this is different than hip replacement.

My bones have actually grown wrong and my pelvis doesnt cover them and protect

them like they should. This is why I need hip RECONSTRUCTION - not

replacement. It is rare to get to my age and it not be caught - even more rare

that someone with MS have it. All the supplements you mentioned sound great and

should help with the repair and strength after the surgery. Thank you.

P.S. If you need help with the font on your computer, let me know, LOL. I do

web design.

Kathy Lintzenich wrote:

You are an ideal candidate for calcium EAP injections. Noone has ever

needed hip replacement according to Dr. Neiper in his 1997 docs. It seems that a

person who has done the therapy for four years gets much in the way of

increasing osteoblasts or bone density.

[Guest guest]

Thank you for all the supplements. They will come in helpful after the surgery.

You see, I have to have the surgery - this is different than hip replacement.

My bones have actually grown wrong and my pelvis doesnt cover them and protect

them like they should. This is why I need hip RECONSTRUCTION - not

replacement. It is rare to get to my age and it not be caught - even more rare

that someone with MS have it. All the supplements you mentioned sound great and

should help with the repair and strength after the surgery. Thank you.

P.S. If you need help with the font on your computer, let me know, LOL. I do

web design.

Kathy Lintzenich wrote:

You are an ideal candidate for calcium EAP injections. Noone has ever

needed hip replacement according to Dr. Neiper in his 1997 docs. It seems that a

person who has done the therapy for four years gets much in the way of

increasing osteoblasts or bone density.

[Guest guest]

>HELLO. I HAVE HAD TWO CESARIANS WHILE HAVING MS.(NO PROBLEMS. I

THINK SUCESS IS IN YOUR FAITH IN GOD & A GOOD DOCTOR).

> Hi Everyone,

>

> I have a question for anyone with MS that can give me some insight

> and advise. I have had MS for 10 years and managing it as well as

I

> can. I just found out (at 38 yrs old) I was born with Hip

Dysplasia

> (1 in 1000 are born with it and majority are caught at birth

through

> childhood). As a child it is treated with traction/brace so your

> hips grow the way they are suppose too.

>

> Now at my age I am facing these 3 decisions:

>

> 1. Within the next 5 years I will get immobizing arthristis (there

> is nothing protecting either hip joint)

>

> 2. Once this happens, I will definately need 2 hip replacements

(I'm

> too young for these)

>

> 3. Take action now by getting hip reconstruction surgery! This is

> different than hip replacement and if I didnt have MS I wouldnt be

> as nervous.

>

> My entire family is so scared how the surgery will affect the MS.

> How the stress of my body healing will cause an exacerbation and I

> won't beable to take steriods for them (which I take know when I

> need them) because they prevent healing and my legs wont heal

right.

>

> This is somewhat rare as an adult - there are approximately 26

> doctors in the US who do this surgery - they have to go in, carve

> out my pelvis and reposition it over my hip joints (which will

then

> be held together by a pin). I have to get one hip done in October

> and the next hip done in January. Crutches/walker and extensive

> physical therapy for approximately the next 6 months.

>

> Has anyone gone through extensive surgery with MS and what have

they

> done to prepare themselves for it? Any ideas on how to handle

flare

> ups if I do have them? Any vitamins or natural ways to help the

> healing I may help? I have heard there are people called " chore

> workers " that I could hire (I dont have much money though) to help

> out with driving to physical therapy, laundry, cooking,

> housecleaning - anyone know who I can contact?? [im done being on

> hold with medicare and social security to find out!! ]

>

> I have not gone through surgery while I have had MS - if I do not

> get this surgery - either my hips or the MS or both will

immobilize

> me.

>

> I know to keep a positive attitude, limit stress (Im getting

> everything ready so my family is taken care of when I go through

> this), my orthopedic told me to take iron and vitamin C. My

> neurologist - hasnt said much.

>

> ANY HELP TO GET ME THROUGH THIS AS HEALTHY AS POSSIBLE WILL BE

MUCH

> APPRECIATED!! THANK YOU IN ADVANCE FOR ALL THE ADVISE!

>

[Guest guest]

It was funny I just was listening to this program on this Hip-Re-

jointing technique ont he radio. Sounds pretty good if you were born

with this physical hip displacement issue. Anything but a hip

replacement with a synthetic hip! Supplements to help grow Bone:

*Calcium(mlk;greens) Vitamin D (egg yolks;fish) Vitamin K (greens And

of course the Nutrients mentioned below like Strontium. Fish Oil A+!

>

> You are an ideal candidate for calcium EAP injections. Noone has

ever needed hip replacement according to Dr. Neiper in his 1997 docs.

It seems that a person who has done the therapy for four years gets

much in the way of increasing osteoblasts or bone density. The

calcium orotat e from Germany in capsule form also protects the

bones. It would be helpful to you to contact the Brewer Science

Library in Wisconsin and ask them about Dr. Neiper's literature that

you can order. Be careful with too much iron. It has been linked to

certain types of cancer. A good bone formula with boron, Vitamin D,

manganese, magnesium and calcium citrate would be beneficial. Also,

natural progesterone is good for the bones. A half teaspoon twice a

day rubbed subdermally on your thighs, triceps, abdomen or soles of

the feet. It also helps the body produce myelin. I don't know how old

you are but if you are over 30 it should be good for you. Look up

strontium or ask the library about their newsletter concerning this

substance. White is an excellent person to speak with. She

is full of knowledge and helpful hints. I don't understand why I can

help so many people with nutrition yet can't figure out how to change

the font on my computer. Kind regards, Kathy

> Double Whammy : MS And Now Surgery - HELP

>

>

> Hi Everyone,

>

> I have a question for anyone with MS that can give me some

insight

> and advise. I have had MS for 10 years and managing it as well as

I

> can. I just found out (at 38 yrs old) I was born with Hip

Dysplasia

> (1 in 1000 are born with it and majority are caught at birth

through

> childhood). As a child it is treated with traction/brace so your

> hips grow the way they are suppose too.

>

> Now at my age I am facing these 3 decisions:

>

> 1. Within the next 5 years I will get immobizing arthristis

(there

> is nothing protecting either hip joint)

>

> 2. Once this happens, I will definately need 2 hip replacements

(I'm

> too young for these)

>

> 3. Take action now by getting hip reconstruction surgery! This is

> different than hip replacement and if I didnt have MS I wouldnt

be

> as nervous.

>

> My entire family is so scared how the surgery will affect the MS.

> How the stress of my body healing will cause an exacerbation and

I

> won't beable to take steriods for them (which I take know when I

> need them) because they prevent healing and my legs wont heal

right.

>

> This is somewhat rare as an adult - there are approximately 26

> doctors in the US who do this surgery - they have to go in, carve

> out my pelvis and reposition it over my hip joints (which will

then

> be held together by a pin). I have to get one hip done in October

> and the next hip done in January. Crutches/walker and extensive

> physical therapy for approximately the next 6 months.

>

> Has anyone gone through extensive surgery with MS and what have

they

> done to prepare themselves for it? Any ideas on how to handle

flare

> ups if I do have them? Any vitamins or natural ways to help the

> healing I may help? I have heard there are people called " chore

> workers " that I could hire (I dont have much money though) to

help

> out with driving to physical therapy, laundry, cooking,

> housecleaning - anyone know who I can contact?? [im done being on

> hold with medicare and social security to find out!! ]

>

> I have not gone through surgery while I have had MS - if I do not

> get this surgery - either my hips or the MS or both will

immobilize

> me.

>

> I know to keep a positive attitude, limit stress (Im getting

> everything ready so my family is taken care of when I go through

> this), my orthopedic told me to take iron and vitamin C. My

> neurologist - hasnt said much.

>

> ANY HELP TO GET ME THROUGH THIS AS HEALTHY AS POSSIBLE WILL BE

MUCH

> APPRECIATED!! THANK YOU IN ADVANCE FOR ALL THE ADVISE!

>

>

>

>

>

>

[Guest guest]

It was funny I just was listening to this program on this Hip-Re-

jointing technique ont he radio. Sounds pretty good if you were born

with this physical hip displacement issue. Anything but a hip

replacement with a synthetic hip! Supplements to help grow Bone:

*Calcium(mlk;greens) Vitamin D (egg yolks;fish) Vitamin K (greens And

of course the Nutrients mentioned below like Strontium. Fish Oil A+!

>

> You are an ideal candidate for calcium EAP injections. Noone has

ever needed hip replacement according to Dr. Neiper in his 1997 docs.

It seems that a person who has done the therapy for four years gets

much in the way of increasing osteoblasts or bone density. The

calcium orotat e from Germany in capsule form also protects the

bones. It would be helpful to you to contact the Brewer Science

Library in Wisconsin and ask them about Dr. Neiper's literature that

you can order. Be careful with too much iron. It has been linked to

certain types of cancer. A good bone formula with boron, Vitamin D,

manganese, magnesium and calcium citrate would be beneficial. Also,

natural progesterone is good for the bones. A half teaspoon twice a

day rubbed subdermally on your thighs, triceps, abdomen or soles of

the feet. It also helps the body produce myelin. I don't know how old

you are but if you are over 30 it should be good for you. Look up

strontium or ask the library about their newsletter concerning this

substance. White is an excellent person to speak with. She

is full of knowledge and helpful hints. I don't understand why I can

help so many people with nutrition yet can't figure out how to change

the font on my computer. Kind regards, Kathy

> Double Whammy : MS And Now Surgery - HELP

>

>

> Hi Everyone,

>

> I have a question for anyone with MS that can give me some

insight

> and advise. I have had MS for 10 years and managing it as well as

I

> can. I just found out (at 38 yrs old) I was born with Hip

Dysplasia

> (1 in 1000 are born with it and majority are caught at birth

through

> childhood). As a child it is treated with traction/brace so your

> hips grow the way they are suppose too.

>

> Now at my age I am facing these 3 decisions:

>

> 1. Within the next 5 years I will get immobizing arthristis

(there

> is nothing protecting either hip joint)

>

> 2. Once this happens, I will definately need 2 hip replacements

(I'm

> too young for these)

>

> 3. Take action now by getting hip reconstruction surgery! This is

> different than hip replacement and if I didnt have MS I wouldnt

be

> as nervous.

>

> My entire family is so scared how the surgery will affect the MS.

> How the stress of my body healing will cause an exacerbation and

I

> won't beable to take steriods for them (which I take know when I

> need them) because they prevent healing and my legs wont heal

right.

>

> This is somewhat rare as an adult - there are approximately 26

> doctors in the US who do this surgery - they have to go in, carve

> out my pelvis and reposition it over my hip joints (which will

then

> be held together by a pin). I have to get one hip done in October

> and the next hip done in January. Crutches/walker and extensive

> physical therapy for approximately the next 6 months.

>

> Has anyone gone through extensive surgery with MS and what have

they

> done to prepare themselves for it? Any ideas on how to handle

flare

> ups if I do have them? Any vitamins or natural ways to help the

> healing I may help? I have heard there are people called " chore

> workers " that I could hire (I dont have much money though) to

help

> out with driving to physical therapy, laundry, cooking,

> housecleaning - anyone know who I can contact?? [im done being on

> hold with medicare and social security to find out!! ]

>

> I have not gone through surgery while I have had MS - if I do not

> get this surgery - either my hips or the MS or both will

immobilize

> me.

>

> I know to keep a positive attitude, limit stress (Im getting

> everything ready so my family is taken care of when I go through

> this), my orthopedic told me to take iron and vitamin C. My

> neurologist - hasnt said much.

>

> ANY HELP TO GET ME THROUGH THIS AS HEALTHY AS POSSIBLE WILL BE

MUCH

> APPRECIATED!! THANK YOU IN ADVANCE FOR ALL THE ADVISE!

>

>

>

>

>

>

[Guest guest]

Thank you for your best wishes. If you need anything for a web site: design,

hosting, marketing, etc. please give me a call or email

Dawn Hockin

Sunshine Web Design

Holly, MI 48442

swdllc@...

Kathy Lintzenich wrote:

Dawn, thank you. I figured it out . However, if you could send me

contact info, I will keep you in mind for web design. Best of luck to you Dawn.

I

[Guest guest]

Dawn, thank you. I figured it out . However, if you could send me contact info,

I will keep you in mind for web design. Best of luck to you Dawn. If I can help

you with any info after the procedure, don't hesitate to contact me. Best, Kathy

Re: Double Whammy : MS And Now Surgery - HELP

Thank you for all the supplements. They will come in helpful after the

surgery. You see, I have to have the surgery - this is different than hip

replacement. My bones have actually grown wrong and my pelvis doesnt cover them

and protect them like they should. This is why I need hip RECONSTRUCTION - not

replacement. It is rare to get to my age and it not be caught - even more rare

that someone with MS have it. All the supplements you mentioned sound great and

should help with the repair and strength after the surgery. Thank you.

P.S. If you need help with the font on your computer, let me know, LOL. I do

web design.

Kathy Lintzenich wrote:

You are an ideal candidate for calcium EAP injections. Noone has ever needed

hip replacement according to Dr. Neiper in his 1997 docs. It seems that a person

who has done the therapy for four years gets much in the way of increasing

osteoblasts or bone density.

[Guest guest]

Hi Dawn,

That is so interesting that something could be so wrong in the body and

you did not know. I guess its like cancer, no symptoms until you are

ready to die. Have you thought about maybe this having something to do

with your MS symptoms??? Spinal alignment and nerve problems can affect

so many things in the body. I would imagine a Chiropractor would have

noticed this problem before now if you had gone, still hard to believe

you had no pain anywhere.

Dawn Hockin wrote:

>Hi ,

> I had no pain until 6 months ago. I woke up one morning in pain and I

couldn't even walk. I knew it wasn't the MS - this was different. My family

doctor told me it was bursitis - and I went through physical therapy for 1

month. After I didn't get much relief I went to an orthopedic.

>

>

[Guest guest]

I know - I find in hard to believe too. In high school I use to run track and

play softball. I have never had a reason to have an x-ray of my hips and I

always functioned so they never caught it. This doesnt have anything to do with

my MS - I was born with this. The MS just makes everything more complicated. I

joined this group and others in hopes of finding someone with MS with the same

problem. No luck yet. I have found lots with MS and lots with hip dysplasia

but no one with both. Talk to you soon.

" Kindscher (Charter) " wrote: Hi

Dawn,

That is so interesting that something could be so wrong in the body and

you did not know. I guess its like cancer, no symptoms until you are

ready to die. Have you thought about maybe this having something to do

with your MS symptoms??? Spinal alignment and nerve problems can affect

[Guest guest]

Hi Dawn,

SInce I am sure this condition is not that common, it might be hard to

find someone with both MS and that. If the surgery is your concern I am

sure there are many who have gone through some type of surgery and could

give input on that and their recovery.

Dawn Hockin wrote:

>I know - I find in hard to believe too. In high school I use to run track and

play softball. I have never had a reason to have an x-ray of my hips and I

always functioned so they never caught it. This doesnt have anything to do with

my MS - I was born with this.

>

>