Re: Follow up appt w/NSG today -- Please provide opinions

October 20, 1999

badaf@... wrote:

On my own, I called a NSG in Raleigh NC and went today for an appt. I have ACM

I

with 8mm herniation. Dr. Koeleveld told me my acm was " mild " and he doubted it

was causing all of my symptoms (memory lapses, choking on drink, burning spots

in

left foot and back, tingling in all extremeties, numbness in right foot,

cough/laugh/sneeze headaches, vision blurring, etc). He said the cough

headaches

were definitely acm, not the other. He said it looked like there was minimal

csf

flow due to the blockage. He did offer to do surgery which would include

removing a part of my lower skull, the first vertebrate and part of the 2nd and

inserting cadaver pericardium.

Debi suggested I get a consult with Dr. Rosner, and I just might. Anyone that

has

had any dealing with him please fill me in on him. I also would appreciate your

help in understanding all this confusion.

> Anelisa in NC

> ACM I 8mm

> CONFUSED!

Anelisa,

I would definitely run as fast as you can from the nsg that said the ACM wasn't

causing those symptoms. You don't want him doing surgery on you if he is

obviously misinformed, and not all that experienced with ACM.

I did not have surgery by Dr. Rosner, but I would agree with Debi that you

schedule a consultation with him. Many people in our group have had dealings

with Dr. Rosner, and he is very experienced with ACM.

Good luck,

Sheila

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