Re: HELLO ALL. I'M NEW HERE.

[Guest guest]

And as I have some visual damage due to MS, I cannot read posts--

anyone's, not just yours that are all in capital letters, and I do want

to be able to read your posts. If my own font needs to be larger, I

can adjust that. A few words, capitalized for emphasis, pose no

problem for me, but all capitals just throws me and I give up.

Sorry to be lodging such a request, but that is part of life with MS--

not having normal vision, that is, NOT the complaining part!

Love to you--do not know your first name,

n Rojas, wMS

-------------- Original message --------------

I HAVE BEEN FOLLOWING EVERYONE'S POSTS FOR A FEW DAYS AND IT HAS SHED

ALOT OF LIGHT ON THINGS FOR ME. I'M 20YRS OLD AND WAS DIAGNOSED 3 YRS

AGO. ONE THING I REALLY NOTICE ABOUT WHAT EVERYONE HAS SAID IS THAT

FOR THE MOST PART EVERYONE AGREES THAT THE MEDS THEY GIVE US KEEP US

SICK. THRU PERSONAL EXPERIENCE I KNOW THIS IS TRUE. I STOPPED SEEING

MY NUEROLOGIST ABOUT 8 MONTHS AGO AND HAVENT FELT AS GOOD AS I DO NOW

SINCE I STARTED SEEING HIM. BETWEEN THE SHOTS (WHICH MADE ME FEEL LIKE

I HAD A BAD FLU EXCEPT FOR THE NASAL SYMPTOMS AND MADE ME HAVE RELAPSES

EVERY 6 MONTHS LIKE CLOCKWORK) AND ALL THE NARCOTICS HE GAVE ME TO SHUT

ME UP FROM COMPLAINING, I WAS MISERALBE. I COULDNT FUNCTION AS A

PERSON. I WISH I PARTICIPATED IN SOMETHING LIKE THIS A LONG TIME AGO

THAT WAY I WOULDN'T HAVE THOUGHT I WAS JUST LOSING MY MIND OR

SOMETHING.

A QUESTION FOR ANY WHO WILL TAKE THE TIME TO GIVE ME SOME FEED BACK....

I'M SURE ALOT OF YOU HAD A LUMBAR PUNCTURE TO CONFIRM THE DIAGNOSIS,

ANY COMPLICATONS FROM THAT???

[Guest guest]

Hi misslady_0905,

Welcome to the group!

If you have been following the posts in this group, then you probably

have visited

http://tinyurl.com/grpm9

It has some good advice for MSers about alternative treatments. If you

have not as yet visited the site, this is a cordial invitation to do so.

With best wishes,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

[Guest guest]

Hi misslady,

I didn't feel good about my neuro's PA doing my LP, so he arranged

for an anesthesiologist to do the LP under flouroscopy (x-ray) which

allows them to make sure they place the needle in the right spot with

the first attemt, which can decrease the risk of complications during

the proceedure.

I followed my doc's instructions to a T. I made sure I was well

hydrated before and after the proceedure, loading up on a mineral and

electrolyte drink. I stayed as flat as possible for 24 hours

following the procedure, only taking bathroom breaks (a necessity

after drinking all that fluid).

I didn't have any complications, except a mild lower back ache for a

few days after the LP was done.

Have you had an LP?

Cara

>

> A QUESTION FOR ANY WHO WILL TAKE THE TIME TO GIVE ME SOME FEED

BACK....

> I'M SURE ALOT OF YOU HAD A LUMBAR PUNCTURE TO CONFIRM THE

DIAGNOSIS,

> ANY COMPLICATONS FROM THAT???

>

[Guest guest]

Greetings:

I do not want to scare you but I had a lumbar puncture one year ago by my nero

and had problems. I would suggest the anesthesiologist do it. I still have a

little back pain and it has been a year. Also I had a spinal headache. I was on

the floor on my back for almost two weeks. It was not a pleasant experience. If

I could do it over again I would not have had it done or would have requested an

anesthesiologist do it.

Good luck...

TJ

To: mscured@...: caracerna@...: Thu, 16 Aug 2007

19:45:44 +0000Subject: Re: HELLO ALL. I'M NEW HERE.

Hi misslady,I didn't feel good about my neuro's PA doing my LP, so he arranged

for an anesthesiologist to do the LP under flouroscopy (x-ray) which allows them

to make sure they place the needle in the right spot with the first attemt,

which can decrease the risk of complications during the proceedure.I followed my

doc's instructions to a T. I made sure I was well hydrated before and after the

proceedure, loading up on a mineral and electrolyte drink. I stayed as flat as

possible for 24 hours following the procedure, only taking bathroom breaks (a

necessity after drinking all that fluid). I didn't have any complications,

except a mild lower back ache for a few days after the LP was done.Have you had

an LP? Cara>> A QUESTION FOR ANY WHO WILL TAKE THE TIME TO GIVE ME SOME FEED

BACK....> I'M SURE ALOT OF YOU HAD A LUMBAR PUNCTURE TO CONFIRM THE DIAGNOSIS, >

ANY COMPLICATONS FROM THAT???>

_________________________________________________________________

Learn. Laugh. Share. Reallivemoms is right place!

http://www.reallivemoms.com?ocid=TXT_TAGHM & loc=us

[Guest guest]

Hello Cara,

Thanks for your response. Yes, I have had a LP but I wasnt given and

wasnt aware that there were other options to having it done. The

first time I saw ny nuerologist he told me I needed to have it done,

I wanted some time to think about it but he said if I didnt get it

done that day I would phsyc myself out of having it done and he said

it was really necessary. Since having the LP I have 1herniated disk

and 1 buldging disk. I myself question whether this procedure is

really necessary. Maybe if it had been done as you discribed I

wouldnt feel that way, I'm just frustrated because it seems that I

have one serious medical condition added to another in order to get a

diagnosis that my neuro was already positive of he was the 3rd person

to diagnose me.

>

> Hi misslady,

>

> I didn't feel good about my neuro's PA doing my LP, so he arranged

> for an anesthesiologist to do the LP under flouroscopy (x-ray)

which

> allows them to make sure they place the needle in the right spot

with

> the first attemt, which can decrease the risk of complications

during

> the proceedure.

>

> I followed my doc's instructions to a T. I made sure I was well

> hydrated before and after the proceedure, loading up on a mineral

and

> electrolyte drink. I stayed as flat as possible for 24 hours

> following the procedure, only taking bathroom breaks (a necessity

> after drinking all that fluid).

>

> I didn't have any complications, except a mild lower back ache for

a

> few days after the LP was done.

>

> Have you had an LP?

>

> Cara

[Guest guest]

Hello n,

Thanks for taking the time to respond. I'm very sorry about the all

caps, I wasnt aware that this was considered screaming on the

internet either. So I also want to take this chance to appologize to

any one else who that this may have bothered in any way. I really

should have been more sensitive to that. One of my relapses was

vision problems.

Much love,

Cadriel

>

> And as I have some visual damage due to MS, I cannot read posts--

> anyone's, not just yours that are all in capital letters, and I do

want

> to be able to read your posts. If my own font needs to be larger, I

> can adjust that. A few words, capitalized for emphasis, pose no

> problem for me, but all capitals just throws me and I give up.

> Sorry to be lodging such a request, but that is part of life with

MS--

> not having normal vision, that is, NOT the complaining part!

> Love to you--do not know your first name,

> n Rojas, wMS

>

>

>

>

>

>

[Guest guest]

Hi Dudley,

Thanks! I havent been able to follow all the links being that there

are so many but I will definately check it out.

Cadriel

>

>

> Hi misslady_0905,

>

> Welcome to the group!

>

> If you have been following the posts in this group, then you

probably

> have visited

>

> http://tinyurl.com/grpm9

>

> It has some good advice for MSers about alternative treatments. If

you

> have not as yet visited the site, this is a cordial invitation to

do so.

>

> With best wishes,

>

> Dudley Delany

>

>

> http://profiles.yahoo.com/dudley_delany

>

[Guest guest]

, I did not and do not consider caps " screaming, " though some do;

and I do know that individual words and phrases are often capitalized for

emphasis. I just cannot sort out the caps readily--yet my vision tests so

very well, WITH glasses! (one does wonder!). Thank you so much for

your very kind reply, which, come to think of it, I could have sent privately!

Thank you for your thoughtfulness, and consideration.

Love to you and to yours in coping with our delightful " Multiple Surprises! "

n

-------------- Original message ----------------------

> Hello n,

>

> Thanks for taking the time to respond. I'm very sorry about the all

> caps, I wasnt aware that this was considered screaming on the

> internet either. So I also want to take this chance to appologize to

> any one else who that this may have bothered in any way. I really

> should have been more sensitive to that. One of my relapses was

> vision problems.

> Much love,

> Cadriel

>

>

> >

> > And as I have some visual damage due to MS, I cannot read posts--

> > anyone's, not just yours that are all in capital letters, and I do

> want

> > to be able to read your posts. If my own font needs to be larger, I

> > can adjust that. A few words, capitalized for emphasis, pose no

> > problem for me, but all capitals just throws me and I give up.

> > Sorry to be lodging such a request, but that is part of life with

> MS--

> > not having normal vision, that is, NOT the complaining part!

> > Love to you--do not know your first name,

> > n Rojas, wMS

> >

> >

> >

> >

> >

> >

[Guest guest]

I did not have a lumbar puncture because of the stories of things going

wrong. This is the minority of cases (something going wrong), but can

include a bleed with leads to terrible pain and needs a treatment

follow up. More common is severe headaches for several days. In rare

cases, I have heard of people never feeling the same after the lumbar

puncture, and I think I've heard of people having lifelong headaches

afterwards. Even with a top doctor, there's still a chance of something

going wrong in my opinion,

Also, I don't really think it adds much to the picture, especially if

one has already been diagnosed with MS through symptoms, MRI, and/or

evoked potentials tests.

[Guest guest]

Do you know for sure that you didn't have the disk problems before the

lumbar puncture. I have never had a lumbar puncture but have been

diagnosed with 2 or 3 herniated and bulging disks. I do not have any

back pain at all.

-- In mscured , " misslady_0905 "

wrote:

>

> Hello Cara,

>

> Thanks for your response. Yes, I have had a LP but I wasnt given and

> wasnt

[Guest guest]

When my first neuro brought up the Lumbar Puncture, she basically told

me we would be doing it. She didn't ask me, she told me. Additionally,

she didn't take the time to describe it or anything. I really do not

care for the very large majority of doctors' and their non-

collaborative approach and in-the-box thinking of just following how

they were trained as well as their desensitization to their patients'

difficulties. It's dehumanizing. I canceled the LP the day it was

scheduled after reviewing the risks on my own.

A

>

>

> Greetings:

>

> I do not want to scare you but I had a lumbar puncture one year ago

by my nero and had problems. I would suggest the anesthesiologist do

it. I still have a little back

[Guest guest]

Hi misslady,

Yeah, my neuro's PA didn't tell me about the option of having the LP

done under flouroscopy until I cancelled the LP that he had scheduled

to perform himself. I had decided I didn't want an LP after all,

because I wasn't planning to use traditional meds anyway. But after

he asked me why I had cancelled, and I told him it wasn't worth the

risks, he convinced me that the LP was the last step for a definite

Dx, and if done under flouroscopy, it had very few risks. I had had

1 epidural, and 1 spinal for c-section, and hadn't had any

complications, so I agreed to do it.

They had already found a herniated disc in my neck, just above an MS

leasion, and I really did need to know if my symptoms were caused by

MS or the herniated disc, because the disc problem could be repaired,

and symptoms relieved if my symptoms were caused by the disc, but not

if they were caused by MS. Since my LP came back positive for MS, I

opted against any disc surgery, since most of my symptoms were

probably are caused by the MS. Most of which are gone now that my MS

is in remission, so I guess it wasn't the disc that was causing those

problems after all. So in my case, it was necessary to get a

definite Dx of MS, because I also have the herniated disc in the same

area.

But it might not be necessary for someone else, especially if

Everything else has been ruled out, and MS is the only thing left

that fits all the other signs, symptoms, and test results.

I wonder how an LP could have lead to a herniated disc? Are the

affected discs near the LP site? What are your thoughts about the

connection?

I have heard that a lot of MSers have degenerative disc disease, so

that might be your connection between MS and the herniated discs.

Did you drink a lot of fluids to prepare for the proceedure, and stay

down for 24 hours afterward? Did you have any other complications?

Cara

> Yes, I have had a LP but I wasnt given and

> wasnt aware that there were other options to having it done.

> Since having the LP I have 1herniated disk

> and 1 buldging disk. I myself question whether this procedure is

> really necessary. Maybe if it had been done as you discribed I

> wouldnt feel that way, I'm just frustrated because it seems that I

> have one serious medical condition added to another in order to get

a

> diagnosis that my neuro was already positive of he was the 3rd

person

> to diagnose me.

[Guest guest]

Dear n:

Turmeric makes my eyes happy. Cod liver oil and melatonin are also good for

eyes that I take.

Heidi

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