a couple of random questions...

[Guest guest]

Two things tonight-

Yesterday I had an abscessed tooth removed- no big deal except I acted like

a loon (as I always do in a dentist chair- white knuckle bit- lots of eye

rolling) -procedure was done beautifully and no complications except my

walking has deteriorated hugely as has my typing. I am back to pre pump

functioning. Do you think just the few hours of stress could do that? Do

you think it could be the antibiotics? Those are my only changes in the

time before the deterioration.

Also- with all the talk about Ohio this summer - which I do intend to try

and attend- does anyone else want to see a more southern meeting? I could

try to set one up here in San or perhaps Joann could be drafted and

I could help with Austin but I really wonder if Dallas might be better... I

know a hotel that gives good convention rates (don't know if they'd let us

stay but can't hurt to ask)- I lost the name and address of the

, Texas PLSer but the hotel is the Clarion on ... Might want to try

for spring break before the heat gets too bad...What do you guys think? Lavon

[Guest guest]

I'm at 88 mcg/day now. I was on 40 ml/day orally and thought 80 would be my magic number, but my doc told me yesterday at my refill that I would probably need to keep getting adjustments thru the next year. I am pleased with how I'm doing so far. Thank goodness I had a neuro that recommended this implant.

How is your double vision doing? Has it eased off a bit? I sure hope so.

"Roy A. s" wrote:

,How much intrathecal baclofen are you getting? I'm at 350 micrograms/day. I've already had my first refill and they went from 500 micrograms per cc to 2000 so that I won't have to have a refill every three weeks or so.RoyAt 11:10 AM 12/8/00 -0800, you wrote:>Lavon,>>I have setbacks whenever I'm tired or stressed or sick. Also, it seems as >if I have setbacks everytime I need a dosage adjustment. My body reacts >to the new dosage favourably, then after a week or two I go back to the >pre-adjustment level. My neuro said it would take a while before my body >levels out and holds the dosage. Did I explain that so it makes sense?>>My last adjustment seems to be much better than the last. I'm due to have >another one next Tuesday along with my 2nd refill. I would bet I'm pretty >close to my optimim level now. But I still have setbacks (temporary) when >I over do it.>> ThomsonHelp raise money for PLS ResearchVisit www.geocities.com/mdmfoo/pls.html

[Guest guest]

,

I still have the double vision ... although it seems to be improving. I

am now up to 380 mcg/day (Wednesday). The dx says she thinks between 400

and 500 will do. They will continue to adjust until I get too limp and

then back off. We may be getting close. She says she has a patient on

1300 mcg/day.

I saw the physical therapist (3rd visit) and he was amazed at my

progress. (I also saw an Occupational Therapist for evaluation - she said

that typing, dressing myself, taking care of myself, and going to work

were the best things I can do and did not recommend any special

exercises.) I am doing my exercises regularly and really am moving better

(walking) and I'm starting to see a real difference in my manual

dexterity (especially typing) and in my voice (I can sing some again).

And I am feeling so much better mentally ... the fog is gone, thoughts

and expression clearer, etc.

and I are really pleased ... best thing we've done in addition to

building a handicap-friendly house.

Regards, Roy

At 07:39 PM 12/13/00 -0800, you wrote:

I'm at 88 mcg/day now. I was

on 40 ml/day orally and thought 80 would be my magic number, but my doc

told me yesterday at my refill that I would probably need to keep getting

adjustments thru the next year. I am pleased with how I'm doing so

far. Thank goodness I had a neuro that recommended this

implant.

How is your double vision doing? Has it eased off a bit? I

sure hope so.

" Roy A. s "

wrote:

,

How much intrathecal baclofen are you getting? I'm at 350

micrograms/day. I've already had my first refill and they went from 500 micrograms

per cc to 2000 so that I won't have to have a refill every three weeks or

so.

Roy

At 11:10 AM 12/8/00 -0800, you wrote:

>Lavon,

>

>I have setbacks whenever I'm tired or stressed or sick.

Also, it seems as >if I have setbacks everytime I need a dosage adjustment. My

body reacts >to the new dosage favourably, then after a week or two I go back

to the >pre-adjustment level. My neuro said it would take a while

before my body >levels out and holds the dosage. Did I explain that so it

makes sense?

>

>My last adjustment seems to be much better than the last.

I'm due to have >another one next Tuesday along with my 2nd refill. I would

bet I'm pretty >close to my optimim level now. But I still have setbacks

(temporary) when >I over do it.

>

>

Thomson

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Visit

www.geocities.com/mdmfoo/pls.html