Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Bruce, Does the Copaxone BURN when you take the injection? Meredith Sent from my BlackBerry wireless handheld. Re: interferon Merideth I have been on Copaxone for 5 years. No problems with it. It along with Swank diet, meditation and exercise. No relapses, no depression. bruce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 The copaxone injection stings a little but I use ice for 1 minute before and after and that helps B mfisher150@... wrote: Bruce, Does the Copaxone BURN when you take the injection? Meredith Sent from my BlackBerry wireless handheld. --------------------------------- On Yahoo!7 Socceroos Central: Latest news, schedule, blogs and videos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 So, nowhere near as bad as with Interferon? I actually called the Rebif MS suport line, to ask if Interferon was TOXIC! I was just being crazy, of course. m. bruce frost wrote: The copaxone injection stings a little but I use ice for 1 minute before and after and that helps B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Hi Meridith, you cannot expect to get any positive info on alterntive health from a neuro. The word " cure " is a medical term and so it just does not fit well with healing the body naturally. People think, take a pill, get a cure. If you are dying of thirst, having a drink will cure you but the FDA will not allow anyone to say that. Its a known fact that scruvy can be cured by eating lemons, and yet the FDA says we cannot say that. So you are asking a doctor who is ruled by the FDA " is there a cure for MS using the holistic approach " and he has no choice but to say no. In my opinion and from what I have seen all of your symptoms can go away when you get to the bottom of their root causes. One of those causes is toxicity which taking the drugs they offer will only add to the burden your liver already has. I hope over time you can learn how to support your body naturally and see for yourself what the body is capable of. mfisher150@... wrote: > New to the group. Is a holistic cure really possible? My beloved > neurologist doesn't seem convinced, but at this point, I'm willing to > try anything. Had MS for 9 years, been on interferons the whole > time. Avonex and Rebif. But they cause such serious depression, I'm > trying to switch to Copaxone. Anything to get me off the > interferons! Anyone else have the same reaction to the meds? > > Meredith > Sent from my BlackBerry wireless handheld. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 , What does the group think of the NMSS? I like the way you think! Finally, I think I've found compatriots! Meredith Sent from my BlackBerry wireless handheld. Re: interferon Hi Meridith, you cannot expect to get any positive info on alterntive health from a neuro. The word " cure " is a medical term and so it just does not fit well with healing the body naturally. People think, take a pill, get a cure. If you are dying of thirst, having a drink will cure you but the FDA will not allow anyone to say that. Its a known fact that scruvy can Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 In a message dated 6/1/2006 3:58:44 P.M. Eastern Daylight Time, mfisher150@... writes: Avonex and Rebif. But they cause such serious depression, I'm trying to switch to Copaxone. Anything to get me off the interferons! Anyone else have the same reaction to the meds? Meredith I was dx'd in 2001. Took Avonex b/c I THOUGHT my neuro knew best. I was sick in bed 2 days a week with flu-like symptoms. For some stupid reason stayed on this for a year. Actually think it made me worse (started dragging left leg while on it). Any interferon is toxic to the body, it's just putting poisons in your body. If it wasn't doing that, there would be no side effects. Have you looked at the side effects listed on the insert? Unbelievable. I was switched to Copaxone, which also did nothing for me. I had been on the Best Bet Diet since Aug 2001. I think that did more for me than either one of the injections. My neuro was impressed with how I was doing with the diet. Decided to take matters into my own hand. Went on low dose naltrexone LDN, which apparently stops progression in about 85% of PWMS. _www.lowdosenaltrexone.org_ (http://www.lowdosenaltrexone.org) Also it's a capsule, not an injection. Your neuro probably won't know about it. You'll have to read about it and educate him, so he will give you a prescription. It's a compounded capsule. The interferons and Copaxone only help about 30%. Not very good odds. Check it out and join the ldn Yahoo group. You'll see a lot of positive from the people on LDN. It's main purpose is to stop progression, but some people actually see symptom relief in the areas of balance, bladder, strength. Hope this helps. If you have any questions, please ask. Also, if you would like to start reading about LDN write to _aletha@..._ (mailto:aletha@...) . Tell her I referred you to her to get a welcome packet on LDN. It will help you start learning about it. Her husband has had wonderful success on it. Be well, Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Eats away at the fat? That sounds like a GOOD thing! Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Arlene, I am new to the group. Where can I find more information on the Best Bet Diet? Thank you, _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 I'm happy to hear that someone else has a neurologist! Meredith Sent from my BlackBerry wireless handheld. -----Original Message----- I didn't have any reaction from copaxone, BUT I ended up having large dents at the injection sites! My neuto said to ice it, but after several months he said I should get off copaxone because they are permanent dents, something like it eats away at the fat. Looks terrible! Chere Elsinga Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 In a message dated 6/2/2006 11:49:23 A.M. Eastern Daylight Time, mfisher150@... writes: It's just CRIMINAL, if my neuro doesn't know about this! Meredith Yes, it is criminal, but it's all about the money with them! LDN only costs about $20-$30 a month. CRABS cost around $1,000 - $1,500. Such a shame. Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 In a message dated 6/2/2006 12:00:38 P.M. Eastern Daylight Time, mfisher150@... writes: Arlene, Thanks to you, I'm a new Naltrexone Lo-Dose convert! Meredith Meredith Welcome aboard the LDN train! Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Arlizotte, It's just CRIMINAL, if my neuro doesn't know about this! I'm thinking now that Copaxone may not be my only solution! Meredith Sent from my BlackBerry wireless handheld. -----Original Message----- From: Arlizotte@... Avonex� and Rebif.� But they cause such serious depression, I'm trying to switch� to Copaxone.� Anything to get me off the interferons!� Anyone else� have the same reaction to the meds? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Chere, Thank you for being another voice to NOT encourage Copaxone! Meredith Sent from my BlackBerry wireless handheld. -----Original Message----- No, it isn't...otherwise they'd have a great invention for Americans!� No, it just leaves dents, kind of like the small-pox vaccinations of many years ago, with the small mark on the arms.� No, the dents I have are ugly...like deformaties...everywhere I had injections.� Nothing good came from copaxone for me. � Chere Elsinga Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Arlene, Thanks to you, I'm a new Naltrexone Lo-Dose convert! Meredith Sent from my BlackBerry wireless handheld. -----Original Message----- From: Arlizotte@... Avonex� and Rebif.� But they cause such serious depression, I'm trying to switch� to Copaxone.� Anything to get me off the interferons!� Anyone else� have the same reaction to the meds? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Hi Meredith. I've had three neurologists and each had a different opinion. They all still prescribed the same medications, one of the CRAB drugs (Copaxone, Rebif, Avonex andBetaseron). Does that make any sense? They only want to treat the symptoms, and in most cases, prevent further disease progression. They don't get to the issue of what causes the symptoms in the first place. In my opinion, MS is a disease of toxicity that causes neurological symptoms. I don't believe it's a neurological disease. I've been helped by diet, supplementation, physical therapy and faith. I take LDN (low dose Naltrexone) to halt progression of the disese and haven't had an exacerbation (relapse) since taking it. It's much less invasive and works for a larger percentage of people than the CRAB drugs. Here's my story: http://www.webspawner.com/users/allisonsmsvictory/index.html mfisher150@... wrote: I'm happy to hear that someone else has a neurologist! Meredith Sent from my BlackBerry wireless handheld. --------------------------------- New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Hi Meredith. I saw a homeopathic doctor who diagnosed me with Lyme disease, candidiasis and mercury toxicity, another set of diagnoses! He prescribed the LDN to me at my request. Before I became moderator of this group, I was a new member, thirsty for knowledge. I got lots of information here from the " then " moderators and other members of the group. Those previous moderators have gotten past their MS by using alternative treatments instead of drugs. I started researching everything I read here and designed a protocol I believed would work for me. After some trial and error, I'm on the road to recovery. The NMSS has some good qualities and some bad. They send free cooling vests to people with MS and raise money for awareness, but some of that money goes to payroll and some to big pharma for studies. It's a vicious cycle from that point because the information they get back is that drugs are the answer and they recommend them to justify their studies and secure their jobs. Round and round they go. Don't get sucked in by their propaganda. The drugs are for managed care. The body heals itself with the right fuel. mfisher150@... wrote: I just learned yesterday about LDN! And I'm a new convert! How did you get a neuro to agree to prescribe it? That's my next hurdle. I'm such a traditionalist, I've been raised to believe that the National MS Society knows all, but now they're acting like Medical-Industry know-it-alls too! You know, they suggest that all MS patients take one of the CRABs. Meredith Sent from my BlackBerry wireless handheld. --------------------------------- Be a chatter box. Enjoy free PC-to-PC calls with Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Glad your are here too, I will let the others answer on the NMSS, I don't have any experience with them. mfisher150@... wrote: > , > What does the group think of the NMSS? I like the way you think! > Finally, I think I've found compatriots! > Meredith > Sent from my BlackBerry wireless handheld. > > --- Quote Link to comment Share on other sites More sharing options...
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