Navarro, Patient Rights Act

[Guest guest]

Date: Mon, 3 Dec 2001 16:51:31 -0800

From: Eccleston <KEcclest@...>

Subject: Little and Philomena's Journey (That Their Journey May Not

Be In Vain)

Dear Friends,

Please forgive me for not keeping in contact with you about little .

I lost access to all of my personal email addresses on my home computer

system in September, not long after sending you the September 10th update

on . I have been unable to send or receive emails for the past two

months. It was only just a few days ago that the problems with my computer

were finally fixed.

The last two months were very difficult for . Even though his tumors

continued to be reduced by Dr. Burzynski's treatment, ' immune system

was terribly compromised by the chemo treatments he had received. He was

in and out of the hospital innumerable times due to repeated bouts with

pneumonia.

Finally, in the early morning hours of Monday, November 19, 2001, while in

the loving arms of his mom and dad, shared with them that he was

tired and that he was ready to go home to Jesus. After valiantly

struggling for over two years against insurmountable odds, little

peacefully ended his journey here with us and went on to be with the Lord.

It was on November 17, 2000, that little Philomena returned to the Lord

(almost a year ago to the day).

Little Navarro's Memorial Mass was held at Saint Vianney

Catholic Church in Houston, Texas on Tuesday, November 27th. His body was

laid to rest in the ground at Earthman Cemetery in Houston with his little

brother, , saying goodbye in the only way he could think of... With

his little orange shovel he poured the soil of Mother Earth onto '

coffin and then laid a bouquet of flowers on top.

Please keep ' family in your prayers. I know that they are

struggling to understand the meaning of all this. And perhaps a part of

the answer lies in a phone call that Jim and Donna received from

Representative Dan Burton's office in Washington, D.C. on the day of

' funeral. The call was to inform ' parents that ' Bill

is being reintroduced in both the Senate and the House of Representatives

on December 13th. When this Bill is passed, children like and

Philomena and other cancer patients will have the choice to try non-toxic

alternative treatments first rather than being forced by the FDA to use the

toxic conventional treatments. and Philomena made their journey

here for a reason. May we open our minds and our hearts to the Lord for

His guidance that we may do what we were sent here to do so that the

Journey of and Philomena will not be in vain.

Please see the note at the end of this message for suggestions on how to

contact your House and Senate Representatives. Let them know how you feel

about the tragedy of and Philomena's stories, how these little ones'

stories are being repeated every day, and how you want the changes that

' Bill will bring about.

If you wish to send something in ' memory, a monetary gift to his

family in his name would be greatly appreciated. This is a very difficult

time for the family not only emotionally, but also financially. If you so

choose, please send your gift to:

Jim, Donna and Navarro

2901 Elmside

# 117

Houston, Texas 77042

For the love, concern, support and prayers that you have so selflessly

given, ' family is forever grateful.

God Love and Bless Each of You.

In Memory of Little

, you little traveler, you made the Journey - the long and difficult

Journey.

Your strength of spirit,

Your joy for the gift of this life,

Your fortitude,

Your patience,

Your compassion and your love

Have touched our hearts forever, .

And now, Little One, you have touched the wind and the stars

And have come to rest in His arms.

And now you know things we have yet to know.

Pray for us, , as we continue on our Journey.

Pray for us that we may know and grow in

His Wisdom,

His Compassion,

His Love and Understanding.

******************************************************

How To Look up and Contact Your Congressperson:

1. On the Internet through the Congressional Directory:

http://congress.nw.dc.us/citizens/congdir.html

2. By Phone: Call the U.S. Capitol Switchboard at (202) 224-3121 and ask

for your Senator's and/or Representative's office.

***********************

What to Say or Write: (Phone calls and personal letters are the most

effective.)

As a constituent, I ask that you please support the Navarro FDA

Patient Rights Act. This legislation gives patients, rather than the Food

and Drug Administration, the power to choose the method of medical

treatment that they want.

The Act ensures that patients can choose their treatment, with full

disclosure of treatment options from the FDA, and removes the FDA's ability

to block access to treatments. The Act also assures that scientific

research can advance based on safety and efficacy.

Thank you for your thoughtful consideration of the memory of

Navarro for whom this legislation is named. The Navarro family, and

millions of other Americans facing serious medical challenges, MUST have

the freedom to choose the medical treatment they deem best.

Sincerely yours,

**********************************************

See 's story at www.cancerbusters.com.

Also visit the Burzynski Patient Group at www.burzynskipatientgroup.org.

***********************************************

You are digging your grave with your teeth!

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