Re: new

[Guest guest]

It took 11 weeks. But i think if you are very insistent they will

get you in sooner. Tell them about the neck tightness. That may

even get you in sooner. Also if you are flexible in going to the

Kansas or downtown location. We got in sooner since we were willing

to go to Kansas. Ask the pediatrician to refer you to Dr. Singhal

if a referral is necessary. Jenna wasn't officially diagnosed with

tort. She did though have a tilt to the left. Dr. Singhal was

wonderful with jenna. If cranio has been ruled out, your

pediatrician may prescribe a band if you go that route.

Angie and Jenna(STARband grad 1/21/03)-- In

Plagiocephaly , " Steve Barlow " <sbarlow@m...> wrote:

> thanks that is great i have friends in bluesprings my husband

graduated from there yahh i havent gotten to see anyone yet

corbyn did see a neurosurgen and thy totally ruled out cranio but

his head is still funnylooking and his left eye doesnt open as wide

and his face is looking a bit more lopsided at the time no one

mentions plagio as a possiblty or that maybe he had tight neck

musle though he tends to keep his head tilted we have ped check up

today so i will see , how long did it take for you to get in to see

dr slnghal at childerns?

> Re: new

>

>

> Hi Hillary and Welcome to the group!! You have a beautiful

family!!

> Some of those pictures just cracked me up, mostly, " green

pea soup "

> lol It sounds as if you have a wonderful sense of humor,

which you

> would have to, with as much as you have on your plate.

>

> My daughter was also a preemie, 6wk 5days, she spent 7 days

in NICU,

> unlike you whe had wonderful nurses caring for her and I

knew

> everything they were doing to her. Also, the nurses in NICU

> encouraged me and my husband to only come twice a day and at

the most

> (if at all possible) 3 times a day. We were always there

though,

> except at night because I have 2 older girls that were in

school.

> What a shame that you had to deal with nurses like this.

This being

> said, I really couldn't tell any shape problem with Corbyn's

head

> until I looked at the top view. It looks just like my

daughters did

> before treatment. They considered this Scaphocephaly, very

commom in

> premature births but there are pictures in our photo section

of

> Lorenzo who had scaphy, he was not a preemie. If you can,

please

> take a look at -Dustie and Lorenzo's pictures, there are

before

> and after banding pictures. It is extremely difficult to

reposition

> a scaphy headshape, but of course not impossible. I'm not

sure what

> direction you are wanting to go with this or any direction

at all,

> but if we can help any way, just let us know. Where are you

> located? Maybe somebody is in your area and can help with a

> specialist.

>

> Dustie, mom to , DOCGrad'03

> Texas

>

>

> >

> > i am new here not sure if i belong but i and another

friend are in

> search of answers regaurding our sons a another online

friend gave

> her the link to here and she in turn gave it to me

> > my name is hillary i am 31 mother to 6 gorgeous childern 5

boys 1

> girl my youngest son corbyn is the one i am having concerns

about he

> is nearly 5mos come the 16th at birth he was considering

premature

> though by my calculations he was 37wks exactly spent a

hellish week

> in the nicu in which i fought to get him released i have

all that on

> my site under corbyns birth link , since birth he didnt open

his left

> eye much at all we used to think he was glaring at us my

husband

> and friends would joke but as he grew his head never seemed

quite

> normal and something about him seemed a bit off i had him

evauled for

> craino they said with out a doubt his sutures are still

open but to

> date he looks lopsided

> > his left eye rarely opens as wide as his right , his face

seems

> just a bit off and he keeps it tilted funny though he can

move it i

> think normally not sure why he does that its very noticable

when he

> is laying on his belly looking up how his eyes dont quite

match up

> from the tophis ears dont seem to align to me he has a ped

check

> tomorrow and i am worried my friend says i should definatly

get that

> checked out she was one that noticed his eye were off even

though i

> had never told her and her son has the same thing he is

getting

> pyhsio for the one that gave her the link here has twins her

son is

> in what i beleive is a doc band for the same condition

anyhow that is

> how i got there in search of answers

> > i hope you dont mind me being here and not being sure he

even has

> it as of yet but i am unsure where to start and exactly what

i need

> to push for if his ped doesnt seem to see what i see and i

guess if

> you could look at his pics and tell me what you think i

understand

> your not drs just unbaised opinon might be more helpful

> > thanks

> > hillary mom to corbyn

> >

> > http://64.216.130.105/hilly/corbyns.htm

>

>

>

> For more plagio info