Re: Trentyn update - Jen

[Guest guest]

hi Jen.

I just finished reading your note and its sounds like just a heavy

day for you. I can imagine how tough it is with a new therapist

since like you said, how do you catch her up on your whole journey.

I totally feel and understand what you are going through with the

third band discussion. It is tough to let it go when the answer is

so fuzzy as to whether there will be more correction or not. I am

sure he received great correction and it will be wonderful in January

when T graduates. Just like Natasha with Aidan, Jess graduated 2 mos

ago and is 19 mos old and everyone wants to do the right thing for

their child. And, if our kids just were a few mos younger, maybe it

would be easier to imagine that the correction potential would be

worth it but they are in they gray zone where we still can actually

ask ourselves the question whether we should go on with another

band. I think if Jess were 23 mos old, it would be easier for me to

let it go because I could convince myself there is minimal additional

correction to be had. ANyway, the point is I understand how you feel

and know you are doing what is best with Trentyn. And, we don't

know what our kids heads will look like in 4 years. I still think

there should be some change and the plastic surgeon that wrote our

2nd Rx told us that by getting the additional correction with a

second band, we were helping Jess's head correct into a shape which

will help even out her asymmetries as she grows over the next few

years. it makes some sense to me.

Good luck with the move. I grew up in Ohio and go there often to

visit my family. Are you going to be in the Cleve area or Columbus?

Kim

Mom to Jess doc grad

> > Hi everyone,

> >

> > This is the first time I have been able to get on here to post

an

> update on Trentyn. We had his 1st appointment with our new

therapist,

> since is on maternity leave. It was very hard seeing

someone

> new. She was incredibly nice, but she knows nothing about the

very

> long journey to get here.

> >

> > This was our first appt. on our new 3 week schedule. She looked

> briefly at his head and said he was all set. I was very surprised

> because he has had an adjustment at every appointment. She

noticed my

> surprise and looked at it again and said well, I do see a small

> adjustment that needs to be made. She then went to the back for a

> little while to do the adjustment. Anyone ever wonder if they

just go

> back there and wait a little bit and then come back and say it is

> adjusted? lol Just seemed weird that at first glance there was

> nothing needed and then after I said something, she had two

> adjustments to make. I'm not really serious, I'm sure she did but

it

> did make me question how closely she was paying attention.

> >

> > Then when the receptionist congratulated us on his calendar

> appearance , our therapist went on and on with pride about two

of

> her babies that made it. It just really made me miss our old

> therapist, as there is no relationship here.

> >

> > Then we started talking about the third band. She told me it

was

> completely up to me, but did caution me about the minimal amount

of

> additional correction we might see. I feel this way too, but then

she

> began pointing out the areas that he still needs correction in.

He is

> far from perfect, but and I know where he started, so

the

> change at least to us is startling. It was very depressing to see

> someone pick him apart who does not realize what we started with.

> Anyway, I probably went in there expecting to be disappointed and

> that probably flavored my visit.

> >

> > My husband accepted a job in Ohio, so I think we will

definitely be

> stopping with the 2 bands. Even though he does have areas of

> correction needed, he is already 18 months and I'm just not sure

the

> extra 2 months at 20 months would make that much difference. What

I

> wouldn't do to go back to his 4 month appointment with the

jack#@#$@%

> specialist and have him banded then.... If you are questioning

> whether you should band or not, don't wait! My son will not be

fully

> rounded because we took that Doctor's advice...

> >

> > So, if we stop with this one, he should graduate sometime in

> January. It will be a nice way to start the new year. If you've

made

> it this far, sorry it is so long.

> >

> > Jen- TX

> > Trentyn- 18 mo. DocBand 06/12/03 & 09/17/03

>

>

>