Re: the decision is in....

[Guest guest]

Thanks . I feel about 1000 lbs lighter already. As for the IEP, this is

probably the first IEP that I have looked forward to actually attending in a

couple of years. I know that we will end up with a very good one as our

attorney's are attending to make sure it is all done properly and has what is

needed. They won't be able to tell me that I can't have a goal or service if

she is entitled to it this time.

Sheryl, Mom to Mitch 14 and 14 CHARGE

[Guest guest]

Sheryl,

Horray! Horray! Wow! Great! I knew it! YES!

We are proud of you and !

I thank you!!!!

Bonnie

[Guest guest]

Sheryl,

I am so happy for you, this must be such a relief for you and your family. Good luck with the upcoming IEP.

Mom to Kennedy 2.5yr old CHARGEr, 11, 9, and wife to GraemeNew Brunswick, CanadaVisit the "Weir homepage" at: http://www.geocities.com/SunsetStrip/Palms/5716ICQ #1426476

the decision is in....

I sent this and it didn't seem to go through. I don't know what happened, and am sorry if it does post twice. So here it is again...Hey everyone...I am so excited I am not sure I can write this. As most of you know, we have been in battle with our school district for over 4 years. The last year and a half have been the ultimate worst. During this time, the school has insisted that is severe/profound MR (without coming right out and saying it) Over the years, I have lost all academic goals and all inclusion. It has been a nightmare to say the least. During the 1998-1999 school year, our school began insisting that I send to a specific school that specializes in the severe/profound MR. My fight got worse and 's education has severely suffered from all of this. I have had an attorney since April of 1999 trying to fight this placement decision. I did manage to keep her from being placed there during this time except for a 45 day trial out placement which was for 1/2 of her day only. Things got worse and I got her out of there and back in our home school full time. We spent the 1999-2000 school year getting evaluations to help the IEP team understand CHARGE and what that means for . We learned so much but the rest of the IEP team still didn't stray from their decision about her being MR and that she could only accomplish a vocational education with no academics. After multiple evaluations, an informal meeting with attorneys to try to reach a peaceful resolution, mediation, 4 or 5 IEP meetings that would last 4 to 16 hours each, we ended up filing for due process hearing. We had our hearing 2 weeks ago. I just received the information about the ruling. All I really know is that WE WON!!!!!!!!!!!!!!!!!!! The school district did not prove that a special school placement would be the LRE or even appropriate for . There is still a lot of work to come with this. The ALJ stated that 's IEP team is to meet again (we are doing that this Thursday) to rewrite 's goals to reflect her true needs. This IEP is to be provided to him no later than October 18th for his review. Hopefully then, we will be able to determine a placement that will be able to meet all of her needs.There are a couple of things that we are going to work towards. This ruling is the first step to getting those. I won't go into the details until I have had more conversation with my attorney and my paper copy of the decision is in front of me. But, he has emphasized how important this first step is. He has mentioned that the next things will be HUGE for SPED kids. As for all of you that are advocating for your kids, keep it up. 's case is not unusual but they way our district handled things it became very extreme. I want all of you to know that I could not have done this without your help and support. This list has taught me more in the last year than I was able to learn in the 13 years prior to finding the list. Thank you doesn't even come close to expressing how much your support has meant to me through all of this. Now, if I can help any of you, I would more than happy to do my best.Sorry to ramble but I am overwhelmed with excitement right now. I will post more about the details when I get them.Sheryl, Mom to Mitch 14 and 14 CHARGE (who will be back in school soon) "5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July20-22, 2001. Information will be available first in CHARGE Accounts, theCHARGE Syndrome Foundation's newsletter."For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter)please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org

[Guest guest]

Sheryl,

I find this all so sad that you have to have attorneys present and you had to have them just to get to this point. Don't get me wrong, I'm happy the way things are going, just sad at the way you had to arrive here.

Mom to Kennedy 2.5yr old CHARGEr, 11, 9, and wife to GraemeNew Brunswick, CanadaVisit the "Weir homepage" at: http://www.geocities.com/SunsetStrip/Palms/5716ICQ #1426476

Re: the decision is in....

Thanks . I feel about 1000 lbs lighter already. As for the IEP, this is probably the first IEP that I have looked forward to actually attending in a couple of years. I know that we will end up with a very good one as our attorney's are attending to make sure it is all done properly and has what is needed. They won't be able to tell me that I can't have a goal or service if she is entitled to it this time.Sheryl, Mom to Mitch 14 and 14 CHARGE"5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July20-22, 2001. Information will be available first in CHARGE Accounts, theCHARGE Syndrome Foundation's newsletter."For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter)please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org

[Guest guest]

Way to go! We are glad to hear everything went well. It is just a shame

what the school system makes you go through when we as parents usually know

what is best for our child. Great that you did not give up!!!

Murray

wife to Jay and mom to twin Chargers and

[Guest guest]

Sheryl -

What wondeful news! You are inspiring and is so fortunate to have

you for a mom. I will keep my fingers crossed that you get everything she

needs.

Michele Hatfield

the decision is in....

> Hey everyone...I am so excited I am not sure I can write this. As most of

> you know, we have been in battle with our school district for over 4

years.

> The last year and a half have been the ultimate worst. During this time,

the

> school has insisted that is severe/profound MR (without coming

right

> out and saying it) Over the years, I have lost all academic goals and all

> inclusion. It has been a nightmare to say the least.

>

> During the 1998-1999 school year, our school began insisting that I send

> to a specific school that specializes in the severe/profound MR.

My

> fight got worse and 's education has severely suffered from all of

> this. I have had an attorney since April of 1999 trying to fight this

> placement decision. I did manage to keep her from being placed there

during

> this time except for a 45 day trial out placement which was for 1/2 of her

> day only. Things got worse and I got her out of there and back in our

home

> school full time. We spent the 1999-2000 school year getting evaluations

to

> help the IEP team understand CHARGE and what that means for . We

> learned so much but the rest of the IEP team still didn't stray from their

> decision about her being MR and that she could only accomplish a

vocational

> education with no academics.

>

> After multiple evaluations, an informal meeting with attorneys to try to

> reach a peaceful resolution, mediation, 4 or 5 IEP meetings that would

last 4

> to 16 hours each, we ended up filing for due process hearing. We had our

> hearing 2 weeks ago.

>

> I just received the information about the ruling. All I really know is

that

> WE WON!!!!!!!!!!!!!!!!!!! The school district did not prove that a

special

> school placement would be the LRE or even appropriate for . There

is

> still a lot of work to come with this. The ALJ stated that 's IEP

> team is to meet again (we are doing that this Thursday) to rewrite

's

> goals to reflect her true needs. This IEP is to be provided to him no

later

> than October 18th for his review. Hopefully then, we will be able to

> determine a placement that will be able to meet all of her needs.

>

> There are a couple of things that we are going to work towards. This

ruling

> is the first step to getting those. I won't go into the details until I

have

> had more conversation with my attorney and my paper copy of the decision

is

> in front of me. But, he has emphasized how important this first step is.

He

> has mentioned that the next things will be HUGE for SPED kids.

>

> As for all of you that are advocating for your kids, keep it up.

's

> case is not unusual but they way our district handled things it became

very

> extreme. I want all of you to know that I could not have done this

without

> your help and support. This list has taught me more in the last year than

I

> was able to learn in the 13 years prior to finding the list. Thank you

> doesn't even come close to expressing how much your support has meant to

me

> through all of this. Now, if I can help any of you, I would more than

happy

> to do my best.

>

> Sorry to ramble but I am overwhelmed with excitement right now. I will

post

> more about the details when I get them.

>

> Sheryl, Mom to Mitch 14 and 14 CHARGE (who will be back in school

> soon)

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

>

>

[Guest guest]

This is soooo exciting. Especially since I have met and heard many

stories of her spirit. Sheryl, I commend you once again for doing all of this

for your child and, in the long run, for all CHARGErs. God bless you and may

you finally get some sleep!!!!

G

sdoolit272@... wrote:

> Hey everyone...I am so excited I am not sure I can write this. As most of

> you know, we have been in battle with our school district for over 4 years.

> The last year and a half have been the ultimate worst. During this time, the

> school has insisted that is severe/profound MR (without coming right

> out and saying it) Over the years, I have lost all academic goals and all

> inclusion. It has been a nightmare to say the least.

>

> During the 1998-1999 school year, our school began insisting that I send

> to a specific school that specializes in the severe/profound MR. My

> fight got worse and 's education has severely suffered from all of

> this. I have had an attorney since April of 1999 trying to fight this

> placement decision. I did manage to keep her from being placed there during

> this time except for a 45 day trial out placement which was for 1/2 of her

> day only. Things got worse and I got her out of there and back in our home

> school full time. We spent the 1999-2000 school year getting evaluations to

> help the IEP team understand CHARGE and what that means for . We

> learned so much but the rest of the IEP team still didn't stray from their

> decision about her being MR and that she could only accomplish a vocational

> education with no academics.

>

> After multiple evaluations, an informal meeting with attorneys to try to

> reach a peaceful resolution, mediation, 4 or 5 IEP meetings that would last 4

> to 16 hours each, we ended up filing for due process hearing. We had our

> hearing 2 weeks ago.

>

> I just received the information about the ruling. All I really know is that

> WE WON!!!!!!!!!!!!!!!!!!! The school district did not prove that a special

> school placement would be the LRE or even appropriate for . There is

> still a lot of work to come with this. The ALJ stated that 's IEP

> team is to meet again (we are doing that this Thursday) to rewrite 's

> goals to reflect her true needs. This IEP is to be provided to him no later

> than October 18th for his review. Hopefully then, we will be able to

> determine a placement that will be able to meet all of her needs.

>

> There are a couple of things that we are going to work towards. This ruling

> is the first step to getting those. I won't go into the details until I have

> had more conversation with my attorney and my paper copy of the decision is

> in front of me. But, he has emphasized how important this first step is. He

> has mentioned that the next things will be HUGE for SPED kids.

>

> As for all of you that are advocating for your kids, keep it up. 's

> case is not unusual but they way our district handled things it became very

> extreme. I want all of you to know that I could not have done this without

> your help and support. This list has taught me more in the last year than I

> was able to learn in the 13 years prior to finding the list. Thank you

> doesn't even come close to expressing how much your support has meant to me

> through all of this. Now, if I can help any of you, I would more than happy

> to do my best.

>

> Sorry to ramble but I am overwhelmed with excitement right now. I will post

> more about the details when I get them.

>

> Sheryl, Mom to Mitch 14 and 14 CHARGE (who will be back in school

> soon)

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

[Guest guest]

the decision is in....

Sheryl,

I am sooo happy for you. Your persistance has paid off. is lucky

to have you!

Stevermer

> I sent this and it didn't seem to go through. I don't know what happened,

> and am sorry if it does post twice. So here it is again...

>

> Hey everyone...I am so excited I am not sure I can write this. As most of

> you know, we have been in battle with our school district for over 4

years.

> The last year and a half have been the ultimate worst. During this time,

the

> school has insisted that is severe/profound MR (without coming

right

> out and saying it) Over the years, I have lost all academic goals and all

> inclusion. It has been a nightmare to say the least.

>

> During the 1998-1999 school year, our school began insisting that I send

> to a specific school that specializes in the severe/profound MR.

My

> fight got worse and 's education has severely suffered from all of

> this. I have had an attorney since April of 1999 trying to fight this

> placement decision. I did manage to keep her from being placed there

during

> this time except for a 45 day trial out placement which was for 1/2 of her

> day only. Things got worse and I got her out of there and back in our

home

> school full time. We spent the 1999-2000 school year getting evaluations

to

> help the IEP team understand CHARGE and what that means for . We

> learned so much but the rest of the IEP team still didn't stray from their

> decision about her being MR and that she could only accomplish a

vocational

> education with no academics.

>

> After multiple evaluations, an informal meeting with attorneys to try to

> reach a peaceful resolution, mediation, 4 or 5 IEP meetings that would

last 4

> to 16 hours each, we ended up filing for due process hearing. We had our

> hearing 2 weeks ago.

>

> I just received the information about the ruling. All I really know is

that

> WE WON!!!!!!!!!!!!!!!!!!! The school district did not prove that a

special

> school placement would be the LRE or even appropriate for . There

is

> still a lot of work to come with this. The ALJ stated that 's IEP

> team is to meet again (we are doing that this Thursday) to rewrite

's

> goals to reflect her true needs. This IEP is to be provided to him no

later

> than October 18th for his review. Hopefully then, we will be able to

> determine a placement that will be able to meet all of her needs.

>

> There are a couple of things that we are going to work towards. This

ruling

> is the first step to getting those. I won't go into the details until I

have

> had more conversation with my attorney and my paper copy of the decision

is

> in front of me. But, he has emphasized how important this first step is.

He

> has mentioned that the next things will be HUGE for SPED kids.

>

> As for all of you that are advocating for your kids, keep it up.

's

> case is not unusual but they way our district handled things it became

very

> extreme. I want all of you to know that I could not have done this

without

> your help and support. This list has taught me more in the last year than

I

> was able to learn in the 13 years prior to finding the list. Thank you

> doesn't even come close to expressing how much your support has meant to

me

> through all of this. Now, if I can help any of you, I would more than

happy

> to do my best.

>

> Sorry to ramble but I am overwhelmed with excitement right now. I will

post

> more about the details when I get them.

>

> Sheryl, Mom to Mitch 14 and 14 CHARGE (who will be back in school

> soon)

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

>